Topic: NEW questions end of page 2; parkinson's neurologist told me i can not question him!
blaze
Unregistered
posted
I don't think we should be nitpicking about the word 'duck'. That's just so high school - not the word, but the nitpicking, that is.
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bettyg
Unregistered
posted
my3boys,
thank you for the good suggestion and compliment of how i've educated myself thru LYMENET board members/many files here of accurate info.
i'm a disabled secretary off work 10 yrs, which took 5 yrs. to get SSDI ~~ pure hell and 3 drawers full of a 4-drawer file of medical paperwork and RED TAPE reduntancy.
i do understand what you are saying; for those of you RNs/LPNS, good advise you gave for those still working.
tick tock ... what mentality you spoke too!
yes, everyone doesn't have the courage/guts to speak up but that has been me from a very young girl! i thought i did it respectfully also...
may i and please!
robin, yes, i plan on talking to hospital CEO PERSONALLY this time; will make an appt. with him.
side note: when i redid my will last year, i designated a certain $$ % be left for their diabetes and EDUCATION center. MONEY TALKS AS A FUTURE BENEFACTOR!!
that is providing hubby/i do NOT end up in nursing home using all we have been able to save in our middle-income earning jobs.
ticksuck .. thank you for the compliments as well and for what i try to do here on this board! it's heartfelt and makes MY heart feel super good!
sorry, i couldn't respond to every post above; it's just too overwhelming going back and forth to read someone's post; have a 2nd window open and then type a response, and then go back to reading/replying.
BUT heartfelt thanks for those who responded on my experience w/this man and suggestions for me on hubby's lyme/parkinson's!!
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bettyg
Unregistered
posted
PLEASE HELP ON THESE QUESTIONS OF MINE ....
other things i don't understand well are these:
1. he has terrible time getting tshirts on/off; it gets all lumped up right behind the neck and he can't get it shifted down.
2. it's so easy to bump him and he is NOT a solid rock; he starts a falling motion promptly.
3. he's fallen 4 times earlier this year; took me 30 minutes on july 4th to get him up calling a close friend for him to come over and he was able to in 5 minutes.
4. slowness .. he told me other day when he turns his body, he's afraid that he's going to fall each time. guess this is how he has felt the other times he fell outside and once on living room floor.
thanks for your input helping me to understand the disease and what i can do to HELP continue being supportive. *************************
the only places he goes to are:
drs/hearing aid center, groceries, and rarely to pick up his/my meds since he has to sign for them.
yes, thank you God and my beloved deceased Mom for being a very vocal lady and speaking up when need be in front of groups, etc.
i never know how i'm going to phrase something, i try to work it out in my mind, but i start talking and what comes ... comes!
thanks again for useful info, support, and compassion for us.
may God bless you all as he has blessed me/hubby! hubby NEVER complains; his glass if 50% full.
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Betty,
I'm just curious, has hubby's heart been checked out lately? Is he on any medications?
When my dad was in A-Fib, he was having a lot of problems like that & since they put him on Coumadin he's been doing MUCH better.
Ali
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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bettyg
Unregistered
posted
hi ali,
no, his heart has NOT been checked except for when they listen during normal appt.
on 3 meds only: levothyroxine, amantidine, and carbodoba/levo
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posted
on falling: neuro symptom ??? (also around here volunteer fireman will help
with someone who falls and needs help to get
up at no charge..ems will charge but the volunteer have helped many a time..might call to check?? ))
would suggest having cardio looked at and check
for PMH with tilt table?? i myself need this too
and will timber if i close my eyes and balance
out of whack..seems like something kicking in the
autonomic nervous system..
on dressing: OT therapy may help, teaches patients to re-learn dressing, bathing, etc and use adaptive measures or adaptive equip. is covered by medicare with no cost to pt.
best wishes
-------------------- i am not a Dr. any info is only for education, suggestion or to think/research. please do not mis-intuprest as diagnostic or prescriptive, only trying to help. **
dx in 08:lyme, rmsf, bart, babs, and m.pneumonia. Posts: 422 | From TX | Registered: Oct 2008
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bettyg
Unregistered
posted
my 3 boys,
thank you for your suggestions and advise on my hubby's symptoms!
i'll have to check into the firemen as their main building is 10 blocks from us! we're right in the middle of mainy things ... clinic, hospital, fire station, and shopping mall 5 minutes away.
i will discuss your suggestions with him!
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
betty, remember hon, that my mom's symptoms sound very much like your husband's.
not to scare you, but please make sure he has a complete cardiac checkup.
they found her congestive heart failure too late.
but i still say LYME.....
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
TINCUP - Your Quack - Quack post gave me the best laugh I've had all day. SMILES - Gracie
Posts: 212 | From Arizona | Registered: Jul 2008
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bettyg
Unregistered
posted
randi, thank you for your comments on your own mom!
gracie...glad you enjoyed tincup's quacks!! her keyboard was acting up before and it was Q that would not type!! she made up for it....
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Just an after thought.
A local parky friend of mine from old had great success with an operation that takes most of there 'shake' away.
Would that help your hubby?
And here I go,,,jumping right square into the "FRAY"
Blame TUTU for that pic of hers.
I think it is not supportive(okay, derogatory) of our feathered friends,,, to call these MD's 'there' rightful name.
I make a motion we invent a completely NEW word which is a spin off. let us use TUTU's word for it,,,"dux" and no I didnt captilize it on purpose. (cause they dont deserve it)
AND I dont KNOW if a dux quacks or just "sux". maybe they are just quack suxers
For pity sakes folks,,,we have been calling the ducks,,,ducks,,, since the beginning of time,,,lets just "MOVE ON" to bigger pastures everyone!!!
Instead of frying minnows,,,lets fry some BIGGER fish!!!while I remain--just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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bettyg
Unregistered
posted
hi don, we sure have missed your words of wisdom and compassion on theboard!! xox thanks for suggestion though.
hubby had his eyes operated on; i'm sure he wouldn't allow the shuttle type thing hooked up to his brain! he hates HOSPITALS and drs. offices with a deep passion.
he lost many in his family at young ages...
don, i'm still laughing from your other remarks though!! you're quite the poet!!
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