posted
In reading information on antibodies and how it cannot be clear cut on diagnosing Lyme from various tests, I need help on clarification of my CSF lab results. I'm confused. The test ordered was: LYME, Rapid Pl Reagin The listing of the results are: Lyme Disease AB Total IgG&M My results are 1.10 (positive) Negative <0.9 Equivocal 0.9 - 1.09 Positive >1.09 Do the Lyme antibodies only come from the microbe itself? The literature says CSF diagnosis is rare. I don't understand what that means.(brain fog) I am in the process of getting an appt. with Dr. S here in the bay area, but in the meantime it is scaring me if I fall into that "rare" category. Rare means bad. My symptoms are mostly in my CNS and are on the incline. Any wisdom is appreciated :0)
-------------------- tiggerangie Posts: 14 | From Central Valley, California | Registered: Nov 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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By rare, it means that rarely is this test enough to determine. It is like fishing, as one poster here explains. They can fish the fluid and may not come up with a fish, but that does not mean fish are not there. You clearly had a fish in your net.
So, since your results show "positive" so you were lucky for a quick answer. Some doctors might still insist on other tests or just offer a short course of a single medicine.
I hope you can get into your local LLMD soon, please be sure to let them know of the CSF test and your CNS symptoms. You might ask them advice for while you wait. See if you can get on their cancellation list.
Is the doctor who tested you willing to treat you? If so, that could be a good stop-gap measure if the treatment is done correctly.
And, you will still need to be assessed for coinfections.
I know this is frightening, but know that you will be in good hands and you really have won the lotto ticket that will help you advance to claim your right to treatment.
Best of luck.
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This book, by an ILADS member LLMD, holds great information about treatments options and support measures:
posted
Thank you Keebler, Your fish analogy made it so much clearer for me to understand. The dr. that tested me ended up being an ignoramus on Lyme. He insists that Lyme is rare in CA because he only treats one case a year himself, and it's with the tick bite. So I got a new dr. who is more open minded. Now that I stumbled onto Lyme.net and flash, I was able to see that I need a LLMD. I found a dr. in the bay area here, who is well known for treating it and actually is the author of some of the articles in the links I've been seeing. Thank you again, I am a more educated newbie!
-------------------- tiggerangie Posts: 14 | From Central Valley, California | Registered: Nov 2008
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