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I live in Dalllas area and just got my dd into a new church preschool. Do I tell them she has Lyme? I'm scared they will kich us out, but then I think if that is who they are I don't want to be part of that anyhow!
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We also have our girls in a chruch school. I haven't told them yet because I'm not sure it change or help anything.
It would be very un-Christian to kick you out for having an illness.
-------------------- Diagnosed with :yme and mycoplasma pneumonia Aug 08. Treating with Doxy and Ceftin ever since. 15 sessions in hyperbaric o2 chamber Posts: 183 | From all around | Registered: Jul 2008
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DO you think that they will be afraid of their kids "catching" it?
Posts: 193 | From New Jersey | Registered: Oct 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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I would NOT tell them. You can say that your daughter has a medical condition that requires care and some adjustments.
You can have a note from her doctor that she is under care and requires this or that change in environment if needed. If you do a doctor's note, you do not have to have a diagnosis but it could state that it is not at all contagious.
That's all.
If pressed, I'd say . . . "oh, it's a condition that affects her in many ways, including making her sensitive to sounds or lights - or needing to rest frequently."
Practice . . . Practice . . . Practice how you will answer various questions. Practice a light and centered tone of voice and how to quickly shift the subject.
You might be surprised on the parking lot with a parent sometime. Most people are nice, but you just need to be protective in our current medical/political atmosphere.
It's okay to say that your family has decided not to elaborate on this so that it's simple yet straightforward to your daughter just as much as she needs to know to take care of herself but not set her apart or scare her.
Besides, you can add something like: " . . . . medical information can be a bit sketchy and we have so much more to learn - should get better . . ."
If asked about medicines, you may need to have that on record with the school nurse - I'm not sure. But try to keep as much confidential as possible. You never have to share a diagnosis.
Just assure any curiosity seekers that it is not contagious.
An "immune system condition" covers a lot of ground but could mark her in some ways. I am not sure of a term that would work just right. An inner ear disorder, if she has vertigo, will serve just fine.
While I think it's great to give the teacher(s) a chance to create a workable environment, and you have to be somewhat open to set that stage, I think they will respect your desire not to talk this out too much.
Just some suggestions. A different approach may work for you. You also might contact your area support group for suggestions and word on others' experiences.
If there is any chance that word of mouth would jeopardize your doctor's treatment of your daughter you simply cannot afford to discuss it. It's not just about being asked to leave, it's about your right to medical treatment. And that has not gone well in many places.
Oh, I apologize for the length of my answer and for not being concise. My brain has a very hard time putting this together.
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It is completely up to you whether or not you tell the school.
I guess that you need to consider the pros and cons.
Would it help in any way for the school to know?
Do you feel it would jeopordize her treatment as Keebler mentioned?
Do you think she would be set apart from the rest of the class because of her condition?
Maybe because I live in NJ and Lyme disease is so prevelant here (even according to the "experts") I don't feel that there is such a stigma put on it.
I have explained to my boss and a few interested parents what I have been going through since my positive Lyme diagnosis and since I began having symptoms. Honestly I feel I am letting people know that the CDC and all the "experts" are not always right.
I do not disclose any Dr. names to anyone because frankly that is none of anyone elses business, unless I would want to reccommend that dr.
I think it is horrendous that anyone suffering from any disease should have to be put through any type of judgements from others who just don't understand. Unfortunately we live in a world where that is pretty commonplace.
ldsucs...I suggest only to do what you feel would be best for your dd. If you feel it would hurt her or her treatment, then frankly...nobody needs to know a darn thing.
Posts: 193 | From New Jersey | Registered: Oct 2008
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