posted
Part 1: Does anyone out there also experience SEVERE jaw pain? I can barely move my jaw forward or to the right without excruciating pain on my left TMJ. Can the Lyme (or other) bacteria be festering in my TMJ? If you have have similar issues what steps do you recommend for pain management? Do you use prescribed pain killers? I am to see an acupuncturist next week...
Part 2: I was treated two years ago with 2 weeks oral doxy, then 5 weeks intravenous Rocephin by an infection disease "specialist" here in NYC. Now symptoms are back. Bloodwork confirms. What does the consensus say should be my next step. Which abx should follow? Oral/Intra -- both? Should Rocephin not be considered because I have used it already? Thank you for any feedback.
Posts: 4 | From NYC | Registered: Nov 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Hi BTP,
Sorry you are in so much pain! There are a few others here who have the severe jaw pain, I'm sure they will be along to help.
As far as your relapse goes, you should find a Lyme Literate Doctor. Go to SEEKING A DOCTOR and folks will be along to help you find someone in your area.
A lyme literate doctor will know what to do as far as treatment goes i.e. which antibiotics to use.
Best, Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
How long have you had the pain? Does yours click, pop, grind, lock open or lock shut?
My llmd said lyme can definitely get into the TMJ. This was one of my first symptoms.
I have had TMJ for over 20 years. Finally locked shut with extreme pain in the Left TMJ.
Got help from a TMJ specialist. It's better but still very bothersome at times. It doesn't pop or lock anymore.
Warm compresses short term relief.
TENS unit when it gets too sore and had Prolotherapy for the really bad times. Splint therapy all the time especially at night.
Sounds like your left TMJ is out of the condyle and your disc between is displaced with lots of inflammation.
Some people here have found relief with lyme treatment. I have not seen much improvement with mine tho. hth
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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Alv
Unregistered
posted
yes definitly -and you know what that sid where they hang out the most ( due to toxic level of injections -feelings or metals you have )
I lost 12 mollars due to lyme and coinfections and got bells palsy
I had the TMJ since at least 15 years ago when I started doing so many dental work and changing nightguards....until it locked at night and felt like chocking...
I take superdoses just to reach that place ..and even the load of bus is lower in other part..this part still swollows up -means they are still there even though I have removed the cavitations and mollars -root canals and metals from my mouth.
I mean all of them are there , bart , babesia and lyme...whenever I hit one bug at the time , my jaw hurts the most.
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posted
I've been Lymed since '99! Hey that rhymes! Anyway, I have had serious jaw pain and TMJ through most of these years. But now, finally it seems to be so much better. And I can only point to detoxification work I have been doing lately.
I would like to tell everyone to remember and take seriously the toxic load we all carry and how it can be responsible for much of our pain, stiffness, gut problems, brain fog, and general discomfort.
My Lyme Doc in CA has been on me for some time about detoxifying, yeah, yeah, I would think. Well, at my last appointment a few weeks ago when I told him I was in so much pain and growing so weak I found it hard to lift my grocery bags, I asked him if it was due to the Bicillin I was taking or toxic die off. He strongly felt it was due to toxicity.
He recommended a whole host of detoxifying regimens. And I'll be hornswaggled, if I haven't been feeling lots better, stronger, and most impressive, is my jaw that has been so painful for many years is feeling tons better.
For any that are interested, the detox recommendations my doc gave me are: LL Magnetics Clay Baths, Dry Skin Brushing, stretching, Florastor and Theralac, Extra virgin olive oil mouth swishes for 1-2 minutes (absorbs fat soluble toxins), chlorella. He also suggested other protocols I have not added in yet including castor oil packs, rizols, Hot Springs/saunas. Also, after 2 weeks on therapies, with my suggestion becuase I used it a number of years ago with success, is to add in cholestyramine to absorb and carry toxins out of the body. I have been amazed that these low tech treatments have worked so well. I just had to get around to actually doing them!
Also, on advice from other doctor, I am doing Metagenics Innflamm-X program. Not eating exactly right on the program, but I feel this is helping too.
Also, I have just discovered a new probiotic that works better for me than any other probiotic I have ever tried, and that's saying alot over the last 10 years. It is called Prescript-Assist and uses human based probiotics. After the first pill I could feel the difference. And after just a few days, my gut was more comfortable and could digest foods I am not supposed to eat (wheat/sugar) without the usual bloating and discomfort.
Long post, but I feel I should share what has been for me finally some headway after along barren downtime of no progress.
Robin
Posts: 103 | From California | Registered: Jan 2003
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posted
I had/have pain in my lower and upper Jaw. So it may be much different than yours. My got worse and worse and I was in agony most of the day.
My pain started before I was diagnosed with Lyme. So I was treated by a neuralagist.
He diagnosed me with tri-gemnial neuralga. But that should only effect the upper jaw. He didn't have a answer for that.
But anyway we tried different things. I finaly got relief with Triliptal. We also tried Lyrica.
I don't know how it would work in your case. But I sure know the kind of pain your in and you have my sympathy.
Good Luck
Posts: 65 | From Georgia | Registered: Oct 2007
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I too have TMJ pain (as well as popping and cracking) and also TMJ pressure at times.
And it IS a symptom of lyme disease, so yes, lyme can cause it and does.
Like others said, you really need to find a lyme literate doctor. There aren't very many unfortunately. Only they are the ones who will treat until symptoms are totally gone. And only they care that we still have symptoms after the CDC's round of 3 weeks or so antibiotics.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
I have bad jaw pain. I have TMJ and see a TMJ specialist. My jaw never clicked or popped. My TMJ specialist told me that it doesn't have to do that to have TMJ.
What helps me is to apply castor oil on jaw and cheeks. I do take pain meds as well.
When it's really bad I apply castor oil and let it sit for about 10 minutes than rinse for 5 min. with the hottest water I can stand.
I repeat several times and it helps.
Fancy
Posts: 258 | From San Diego, CA USA | Registered: Sep 2002
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tickbattler
Unregistered
posted
I was researching jaw pain recently because my son complained of it. I had a few people mention that they think it was related to babesiosis (a common coinfection of lyme).
You definitely need to see an LLMD to get this checked out. Don't bother with the infectious disease docs; you will get better much faster with an LLMD!
posted
Marnie, thanks for the informative link on "TMJ Disease: When Arthritis Strikes the Jaw." I am going to start with the antioxidant supplements like vitamins E and C immediately. No, I am not on Fosamax. I have read that there may be a connection to necrosis...
Posts: 4 | From NYC | Registered: Nov 2008
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