We saw 2 chiropractors in Redwood City and Los Altos. Los Altos chiro has a bionic 880, but didn't use it on my daughter, said she was too sick.
We are now in Reno and have met with Dr. R, ND today for 3 hours and again tomorrow.
All 3 say the problem is her immune system has crashed and we have to rebuild that first. Needless to say, they all have different ways to do that.
I think that by the time we get home we will have a plan in place. I am feeling more optimistic at the moment.
One thing that I am finding is that a lot of the advice I got here was good advice, but not good for my daughter in particular.
For example, her body is not capable of detoxing right now, it is overloading her. We need to open the detox pathways first. Also, I am told that she can't handle glutithione,.
I really appreciate all the support and advice, I just want to caution you if you are very, very ill I really think you need expert help.
If you're not critically ill I think it is great to try things that make sense to you. Just my opinion. Again, I feel so supported by all of you.
Bless you all:) Marla
-------------------- "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Anonymous Posts: 450 | From California | Registered: Feb 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Good advice Marla. Hoping that things start to progress for your daughter, will keep you in my thoughts.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
Stay strong and encouraged. Prayers for you and your daughter.
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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posted
I am glad that you have found some physicians that you feel can help. That is half the battle. And don't feel like you have to see one physician exclusively. Often works out better to have one primary type doc who can coordinate everything, but to maybe have a 2nd doc for nutrition or detox or whatever who complements the other one.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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bettyg
Unregistered
posted
maria, thx for feedback on your visits and your personal opinion on your daughter ... what can work or not when one is so sick!
best wishes on a safe trip home; traveling is never easy for any of us.
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Angelica
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posted
Wishing a safe trip and improved health for both of you!
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posted
Is that the same thing that they have in Germany? So, people can get this treatment in the U.S. or am I mistaken?
-------------------- ~*~Lyme POW~*~
I will escape. Posts: 100 | From n/a | Registered: Oct 2008
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
The Ronald McDonald House will provide housing while you're traveling. You'll need approval by your doctor.
Many of them serve supper and have plenty of food on hand to make your own breakfast & lunch...or offer a place to shower and relax even if you don't need a room for the night.
A social worker or your doctor can make the referral, but you may be able to initiate a request by yourself.
Hope this helps you Marla.
Please post your detox plan when you get one. It would help many here who are in a similar predicament.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
I'd love to hear what your daughter uses to detox.
I have the HLA-DR4 gene that may make it more difficult to detox. I suspect my daughter may have it too. Each short attempt at treatment causes her to be in terrible pain.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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bettyg
Unregistered
posted
hshbmom, i'm suer i have this hla-dr4 gene too; just spent time looking for this in my detailed minn. llmd trip i wrote up everything ... couldn't find it.
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hshbmom
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posted
Betty, I hope you find it soon. At least you know why you feel rotten when everyone thinks you should be doing better.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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posted
It has been a long road with a complicated protocol of plant stem cells, samento, trace minerals and other things to get the detox process started.
One thing that helped to start detoxing right away was Yucca Root (not stalks). She started sweating and it smelled like ammonia. Lyme gives off ammonia when it dies.
-------------------- "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Anonymous Posts: 450 | From California | Registered: Feb 2008
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
Hi Marla, how is your daughter?
My daughter is still very sick. She has two MTHFR genetic mutations and likely has the HLA-DR4 problem like me.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
You are right 4, we are loaded with cloride from the Bb.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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lightparfait
Frequent Contributor (1K+ posts)
Member # 22022
posted
Research KPU, HPU, or Porphyrin disease.
Many lyme patients have this inherited disorder, causing the inablitly to detox.
Check out Dr. K's site for treatment of KPU.
And also check out the threads and search KPU here on lymenet.
Take this info to your LLMD.
Good luck, lp
Posts: 1009 | From NJ | Registered: Aug 2009
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
I'd love to hear an update on your daughter 4Seasons. I hope she's moving forward.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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