posted
Both Stony Brook and IgeneX report all Lyme bands on the Western Blot.
If I were just doing one, though, I would definitely trust IgeneX more. I haven't heard of people using two labs. Start with IgeneX, and you can decide what to do after you get your results back.
Posts: 311 | From CA | Registered: Jul 2008
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posted
just going to dr, which works with Stoony Brook, with my own Igenex kit and don't know what to expect.
should my spouse have this test too, even though he doesn't have any symptoms except extremely high tiredness?
wouldn't like to waste the time but neither the money.
any experience.
Posts: 24 | From ny | Registered: Oct 2008
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
The Tick Test I sent in came back with 3 Possitives 1.Lyme Pos- 2.Pos Babsia Babesiosis - 3.Pos Rickettsia or Rocky Mountain Spotted Fever. Here I go again. They called me Friday evening. Ill get hard copy of tests this week.
The other two tests were negative Test is I believe PCR Tick Test Bartonella henselae- Ehrlichiosis (Ehrlichia)
For your info pass it on to whomever you think needs to know. One bite 3 diseases out of five I tested for.
Now this was a Tick Test it tested for 5 diseases. I trust Igenex just for info.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Not clear on what you are saying. Are you going to a doctor that is at Stony Brook, or uses them as his lyme testing lab?
Stony Brook not considered a good place to get treatment for lyme. And the word on the street is that although they used to be a good testing lab, they have changed the cutoff points to produce fewer positive tests. I presume there are still some positive results, just not as many. This is intentional.
So, if the doctor requires you to use Stony Brook, that doesn't sound like you have a choice if you want to use that doctor. I would be wondering, though, if the doctor could be trusted in that case.
Guess you are going to have to go and see what the doc says, then decide if you want to use him and that lab. If they take your insurance, you could give it a try, get the result, see how the doc will be treating, then decide whether to continue down this path.
The problem is that even the best labs do not catch all cases because chronic cases may not be producing antibodies to measure on these tests. So after all is said and done, the test results may help, but may not, and then it is a clinical diagnosis which depends on an experienced doctor.
Good luck.
Posts: 8430 | From Not available | Registered: Oct 2000
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gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
In my opinion, I would tell your doctor to use IGENEX. Here is the website. You can go to the section marked tests, and you can print the forms and have your doctor authorize it. You will either take the papers to the lab, or he may do it right in his office for you.
posted
Well, it raises a question in my mind. You might ask him why he is using the lab and what will he do if the test is not CDC positive. That might shed some light on the situation.
Have you had a tickbite, are your symptoms new or old?
Posts: 8430 | From Not available | Registered: Oct 2000
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bettyg
Unregistered
posted
mork,
igenex put instruction sheet in there and IGENEX'S REQUIRED FORM BE COMPLETED.
your dr. needs to request the blood draw, sign it, date it, and put a diagnosis code on WHY he is having this done.
it needs complete info from drs. office...phone/FAX NOS., addresses, etc.
it's PREPAY too; check or credit card info must be included.
other instructions are in my detailed newbie package links.
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Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
I've been tested at three labs: Igenex, MDL and Stony Brook
My experience has been is that Igenex testing is more sensitive than MDL which is more sensitive than Stony Brook.
Stony Brook produced a band 41 MDL produced bands 41 and 66 Igenex produced 31,39,41,58,66 and 83-93
I actually got a positive band 39 once from Labcorp.
I have never tested CDC positive though from any lab.
-------------------- Mathias Posts: 1250 | From New Jersey | Registered: Feb 2004
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quote:Originally posted by morkovka: he uses this lab, like at least a few more llmds in ny.
is it bad sign for llmd?
it was a very bad sign!
he told me that igenex is not the best place for test,
but if i want i can choose from igenex's list whatever i want to test and he'll just sign it with great pleasure.
i finally did it through the other office.
and was told i have all chances to get a positive result
will see in three weeks. Posts: 24 | From ny | Registered: Oct 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
That's astonishing. I would like to believe the other labs are grossly inaccurate, but....again, why are these other labs being paid by insurance companies and allowed to remain open if they are grossly inaccurate?
quote:Originally posted by Mathias: I've been tested at three labs: Igenex, MDL and Stony Brook
My experience has been is that Igenex testing is more sensitive than MDL which is more sensitive than Stony Brook.
Stony Brook produced a band 41 MDL produced bands 41 and 66 Igenex produced 31,39,41,58,66 and 83-93
I actually got a positive band 39 once from Labcorp.
I have never tested CDC positive though from any lab.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
I was also shocked. The blood draws were not all done at the same time though. I wonder what would show up if I was tested by Stony Brook today. That would make for a good case study.
-------------------- Mathias Posts: 1250 | From New Jersey | Registered: Feb 2004
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Igenex is a credible laboratory. They've been thoroughly investigated using negative and positive samples by independent laboratories. They passed with flying colors.
If they produce a lot of positives, it's for one reason and one reason alone. By the time someone is willing to cough up 200 dollars + of their own money, they've gone through a lot of other testing, and the suggestion of Lyme Disease came up enough to make it a top contender, especially if a lot of other circumstantial evidence was present.
So what do you get when a lot of sick people with symptoms compatible with a Lyme Like illness sent blood work to a lab that is highly specialized and sensitive when testing for Lyme Disease? You get positive results in most cases.
The math isn't confusing. Here is the objective evidence and facts:
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