I have been treating my BB, Mycoplasma, Cpn infections for two years with Doxy/Mino, and Zith pulses and feel about 90-95% now most days. Also did 2 months of Diflucan which really cleared remaining neuro symptoms.
My only major symptom remaining is the twitching. I get twitches in the thumb, thigh, face, really all over. Comes and goes. Magnesium does not help.
Is twitching mainly a symptom of BB, Mycoplasma, Bart or Babs?
My LLMD thinks I have bart as I have an equivocal test and had major anxiety and neuro symptoms to start with along with alot of heart irregularities (vagal mostly) and panic attacks.
I think I may have to treat Bart with Rifampin and Zith, maybe add in some flagyl later to make sure everything is covered, but I am a little wary as I feel so well and don't want to rock the boat.
I feel very well most days. Some early morning fog, fatigue rarely, some anxiety here and there, but am back to exercising 5 days a week and used to be bedridden with at least 100 symptoms.
Any ideas?
Thanks!
Posts: 770 | From USA | Registered: Jul 2006
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
It's wonderful to hear you're doing so well and I hope it continues for you!!!
I also have twitches basically everywhere on my body, scalp, face, arms, legs, feet, bum, neck, etc.
I wish I could answer. I have no idea which infection causes it. I'd guess maybe a mixture of all of them can cause it. I think twitching is a symptom of having neuro lyme, buggies in the brain. But don't quote me on that.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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Dawnee
Unregistered
posted
How wonderful that you are feeling so well! I've been on abx for 6 months and the twitches got better on Zith..but I switched after two months to Amox, and now Doxy and the twitches never really left, but seems like they are not as "gone" as they were. I have twitching every day.. everywhere. Sometimes little twitches, sometimes enough to make limbs move.
I have Mycoplasma.. but so far tested negative for Babs and Bart.. although I am certain that I have Bart... I would guess it's either Myco or Bart causing the twitches.
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posted
I've been on abx for 4 mos., and the twitching seemed to be the first symptoms to go, for me. I had twitching in calves, hamstrings, and lower lip on my face. They are mostly gone now. The stubborn symptoms for me are the balance issues, burning/numbness in the feet, and stiffened fingers which tend to lock in clenched or open positions. It's like "trigger finger" in all my fingers. Very weird, and not much better yet.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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posted
I have them from Lyme. All over. Everywhere. Or it might be babesia. Neg for bartonella although did 5 months of rifampin+zith that did 0 for the twitching.
I hope yours will get better.
Mine get worse when on heavy ABX IV for lyme. Herxing I think.
Posts: 347 | From sweden | Registered: Feb 2008
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Alv
Unregistered
posted
IT IS BAAAARRRRTTTT!
I have all coinfections.read my posts.Worst of me was bart and this one is the last one.Still treating it.
Ok..babesia , ehrlichia, muco fermentas , viruses , parasites gone ...now BART ( some places ) and lyme left.
I Have treated BART agresively since DAY ONE.MY LOAD was VERY HIGH.TEST negative( all patterns).
My twitches are gone.So there are still bugs of bart Like some in the jaw and some in my knee...not in difestive track ...so only on exstremitis...( I rub oils to reach them there).
So while fighting all coinfections...If I stoped treating bart and jumped even for 1 month to anotehr BUG..it will come back with full revenge... So stayed focused on treated BART all teh way ( and while hitting the others ).
Bart is the last coinfecion that comes right now on me.( again the load is low) .I had that BUG for at least symtomatic since 20 years -more than 1 strain....I sleep through the night with no pills...Read my post about hitting bart.I guess I was the one ONLY that CHASED this bug more than anybody else.
I still insist that this is WORST than any other BUG!!!!( Had Lyme longer than BART decades)
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What did you hit the Bart with?
Posts: 770 | From USA | Registered: Jul 2006
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I suspect Bart as well and energetically when I have tested, Bart was the reason.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Alv
Unregistered
posted
It has ben very long list , almost tried it all ...HErbs mailny.Try to find all my post.Ironicly -my post are very long as the treatment changed on my case while one bug will go down a neew infection came up whiel BART was strong and I have done crazy dosages....
Read all my posts...Do a search ...above under my name...I had a break lately ( can tell my brain burns and you feel as you have ADHD -I know is bart).Sometimes I feel than MAKING your head BOLD and just keep rubbing oils might be the only solution to reach the brain without taking all the things I have swollowed .I am thinking of doing it on MY SON though as I can not do it in my self.
My digestive track has healed.USED to VOMIT non stop for 30 years.TEsting showes that BART is not in MY digestive track at all .Only head and feet.
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posted
I was positive for Bart and that is my main problem. I had twitching pretty bad... mostly in my legs and arms... after my 3rd week of treatment it went away! Not that other symptoms though! Good luck to you!
Posts: 52 | From Owings Mills MD | Registered: Aug 2008
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posted
i have this pretty bad too, everywhere. early in tx and waiting on all co-infection testing
LLMD did tell me at appt. that if oral mag. does not help then will try IV mag with plan to go to iv abt. after next round of labs (trying to get enough for ins to cover tx)
he explained as mag. levels get to low intracellular and sometimes oral supp not enough to help get your body balanced and iv m ore effective for mucsle problems
did say thinks i have multiple co-infections and do not remember if twitching was that or neruo?? neruo pretty bad too, so ..that is our plan anyway
-------------------- i am not a Dr. any info is only for education, suggestion or to think/research. please do not mis-intuprest as diagnostic or prescriptive, only trying to help. **
dx in 08:lyme, rmsf, bart, babs, and m.pneumonia. Posts: 422 | From TX | Registered: Oct 2008
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posted
My twitching has got a lot worse since I started Rifampin for suspected Bart.
-------------------- Sx Start Jan 08 (test neg, but herxing)Susp Lyme, Bart + Babs??
ABX Doxy 400mg + Amox 1g Jun - Sep 08 Rifampin 600mg + Biaxin 1000mg Tinidazole 1000mg/day - Sep 08 to June 08
Currently taking Salt/C 15g (himalayan salt)
85-90% better Posts: 231 | From Australia | Registered: May 2008
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I have heard of twitching associated with both but more with bartonella/BLO. Do you test positive for this? It's not very easy to get a positive test so your LLMD may be on the right track with wanting to treat you.
Posts: 3528 | From US | Registered: Apr 2007
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
When I stop treating for Bart...i get worse twitches.
After 5 years of treatment I finally talked my LLMD into longterm Bart treatment...changed my LIFE!!!!
Trout
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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i was told a few times by my llmd that i don't have bart.
but i have twitches, they have gotten a bit worse recently, 6 mos into treatments..
-------------------- do your best to educate the rest because 9 out of 10 doctors don't know jack about tick borne illnesses Posts: 437 | From shawangunk mountains, ny | Registered: May 2008
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posted
Yes it's vagal. If I move a certain way or I swallow or have heartburn I get PVC's. Inflamed vagus nerve without a doubt at least in my case.
Posts: 770 | From USA | Registered: Jul 2006
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posted
hey, DO any of you treat your twitching with Mag. I have twitching all over my body,along with burning. Mag takes care of the twtiching. Mag/Cal combo=Calm} Wish I couldfind something to stop the burning.
peace, BJG
Posts: 468 | From IL | Registered: Oct 2003
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I don't have the answer as to which infection is the culprit. Just wanted to chime in, me too, twitching from head to toe.
I have Lyme, Bart, Babs, Ehrlichia, Myco along with various viruses (a real cesspool). Been treating with oral for about 9 months now...still twitching like crazy. My symptoms are mostly all neuro. TS
Posts: 566 | From West Coast | Registered: May 2008
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