seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I read a bit about Myco infections today. I'm thoroughly confused as to why so many on Lymenet say they have infections. The data says it clearly shows up on chest x-rays.
Am I missing something? It seems like such an obvious Dx. Are there multiple forms of Myco? p Are there certain labs that are better for testing?
I'm just astounded how so many people have 6-7 co-infections! It seems so hard to acquire.
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Hi -- are you questioning why people have mycoplasmas at all, or if they get it from a tick? Wasn't sure of your question.
There are multiple forms of mycoplasma. A lot of us have m. pneumoniae, which is not necessarily tick-borne. M. Fermentans is a strain thought to be associated with gulf war syndrome, and possibly tick-borne. There are many others.
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sutherngrl
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posted
I think many people pick up other infections due to being immune suppressed due to LD.
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I was questioning how people have Myco if it's a pneumonia-type infection. When you have pneumonia, it's as obvious as a street sign. It shows up glaringly on a chest x-ray. I had it 3 times (twice viral, once bacterial).
How can it exist as a stealth infection in so many people on Lymenet? If there is a different form of Myco, I'm not aware of it. Maybe I'm just not educated enough on the topic .
I hope people aren't referring to IgG reactions because wouldn't most of us have them if ever exposed to pneumonia? I did.
I don't doubt for a minute infections are opportunistic when we're so sick.
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posted
About 45% of general population has myco or recently had it. This stuff is very popular. Note, some species could be harder to get rid of than others.
I don't know, perhaps in Lyme they can be opportunistic. It is also possible that they have no role and the culprit is still hidden and unknown?
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Yeah, it seems like we could blame everything under the sun for contributing in some way. Who really has perfect tests? Eradicating every possible issue based on IgG testing seems like a never-ending and expensive endeavor.
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Mathias
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posted
Typical Mycoplasma pnuemoniae is in the lungs but atypical kinds can leave the lungs and survive elsewhere in the body and cause all kinds of problems. Don't underestimate mycoplasma, it can do a lot of damage in the body and really mimics lyme disease in a lot of ways.
-------------------- Mathias Posts: 1250 | From New Jersey | Registered: Feb 2004
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timaca
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Member # 6911
posted
In talking with Dr. Baseman's assistant (he's the mycoplasma expert in the country)...I learned that an IgG for mycoplasma pneumonia over 1:200 MAY indicate active, chronic infection. Titers less than that do not suggest active infection.
Best, Timaca
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seekhelp
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Member # 15067
posted
Mine was 1:256. Active infection?
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
seekhelp~ There is that possibility that your titer is high enough to indicate active infection. You could talk with your doctor about it. You could also do internet searches on "Dr. Baseman mycoplasma" and either call his office or read articles written by him.
Best, Timaca
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posted
"...About 45% of general population has myco or recently had it..."
Scary, and may be true...but can you provide some additional information? References? Thanks Art!
Timica, thanks for the reminder about Dr. Baseman. One of the most useful summaries I have ever read on mycoplasmas (other than those of Dr. Nicolson) was written by Baseman. Somewhat surprisingly, it is still found on the CDC web site:
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
I'm not far from the University of New Haven and they've been conducting research the past couple of years....here's an article about myco....
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
I'm not sure about the 1:200 measurement.
I have mycoplasma pneumoniae. My bloodwork reads <.90 as normal. I have consistently tested >5. Finally after a year of treatment, my last bloodwork read 358 which at least means I am now on the chart.
I have never had pneumoniae, but mycoplasmas are hugely implicated in rheumatoid arthritis which I do have. Lyme also is indicated and I have that. I also have babesia WA-1 (ducani) and CPN.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
luvs2ride~
I LOVED your comment: Lots of opportunities to get well (based on the fact that you have lots of pathogens to conquer!)
Great comment!!! I'll be sure to use it. I see my doctor next week. I'll try to use that line as we go over all my elevated antibody titers.
Best, Timaca
[ 16. November 2008, 11:06 AM: Message edited by: timaca ]
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sparkle7
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Member # 10397
posted
Certain forms of Bb can also have characteristics of mycoplasma.
There are similarities between the L-form & cystic phases of Bb to mycoplasmas.
I think it has something to do with being a cell-wall deficient bacteria but I'm no scientist!
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lymie_in_md
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Member # 14197
posted
I think the following link explains mycoplasma best. If you have only a single mycoplasma you are probably ok, but if you have more then one you probably have a lot of issues. On the other hand if you have one myco and one borrelia it is the same as having multiple myco infections.
Also, states there is a high incidence of myco infections in all people who have fatigue oriented symptoms.
posted
What antibiotics treat mycoplasma? I have both CPN and Mycoplasma. I know Cpn is usually treated with 3 abx, such as zithro, doxy, and flagyl...but what about mycoplasma?
I'm wondering if my current abx covers it.
I've heard these infections are very hard to eradicate.
sparkle7
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Member # 10397
posted
Thanks Bob. I'm going the homeopathic route with this.
I had an Asyra test last week & they came up. I had a test done by Garth Nicholson's lab in 2002 (I think) & another one done by the Fibro & Fatigue Center more recently & they were both negative.
I'm posting this in case people might be interested in what happened with me. I had no idea that mycoplasmas might be an issue. There may be some forms that are not picked up by standard testing...
I don't know why these things didn't show up on the standard tests. I'm going to treat then with Deseret Biologicals remedies & the LightWorks.
I have the remedies - I'm just waiting for the clear vials to arrive. Should be interesting...
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