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» LymeNet Flash » Questions and Discussion » Medical Questions » headache pain meds suggestions please

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Author Topic: headache pain meds suggestions please
djf2005
Frequent Contributor (1K+ posts)
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hey folks-

looking for some suggestions for pain meds for severe unrelenting headache.

non narcotic suggestions only or very low low narcs.

i understand meds like tramadol and ultram have very low levels of narcotics, but the headache med must be able to be taken with low dose naltrexone so it cannot be a strong opiet.

any suggestion are much appreciated. i have an appt with my dr tomorrow and i need to know what to be put on.

thanks again

derek

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

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Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
Wimenin
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For me, none of the prescriptions stuff worked so I had to develop alternative methods to fight the horrible headaches:

Apply ice packs to head, face

Deep tissue massage of head, face, neck, body

Apply pressure to pressure points (hands, neck, face)

Deep breathing techniques, meditation or mindfulness

go to a dark room, no noise, sounds, smells..calm the senses

Chew gum if its weather, travel related

If you feel like crying...cry...let it out... release the pain/stress you're holding in

eat ice cream fast, drink extremely cold water (brain freeze)

sometimes eating food may help (saltines, toast); raise blood sugar

caffeine pill plus taking aspirin or OTC pain reliever.

herbs: lavender, peppermint, ginger...could possibly help

reflexology massage of the feet areas

increase magnesium and water intake

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pab
Frequent Contributor (1K+ posts)
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Is it a pressure headache? If it is, you could try Diamox.

My kids (18 & 22) have unrelenting headaches 24/7. I know they have had a headache 24/7 since 1999.

They had shunts put in this summer and the headache is better but it's never gone away.

They take Tramdol/Tylenol daily.

Peggy

--------------------
Peggy

~ ~ Hope is a powerful medicine. ~ ~

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feelfit
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Same Derek. Ice and heat are the only things that help with my head pain.

Feelfit

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KirstenS
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Hi Derek,
Headaches have been one of the most debilitating symptoms for me. I am now on a preventative med called Topamax.

It is not a pain med it is a preventative like I said so you take it everyday. It has helped me a lot.

I still get some headaches when I am herxing but they are far and few between now.

I take a lower dosage and when I feel as if one is coming on I double up on it.

The 2 side effects I have noticed is the higher the dosage I would feel numb and spacey. Not good!

The other side effect is weight lose and lack of appetite. But, I have that anyway with the treatment.

It is used for migrains and acutally for seizure treatment. I was very leary at first but I am glad I started it.

Good luck, also acupuncture worked awesome up until I was finally diagnosed and started treatment. After starting treatment nothing but topamax has helped my headaches.

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Pauline
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Zomig is a miracle worker for acute headache. For a preventative there's Amitiptyline, Topamax, Cymbalta... Try massage too.
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echostef
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This is an incomplete list of pain medication that can NOT be taken with Revia/ Naltexone.

It definitely cuts down on your options.
Wish I could be of more help.

I take vicoprofen and it works great, but, unfortunately, it is one of the many drugs listed as being contraindicated when taking naltrexone.

Hopefully other posters can refer to this to see if the pain meds they are suggesting are acceptable.


Drug interactions causing Withdrawal symptoms:

When combined, certain drugs, medications

substances or toxins may react causing

Withdrawal symptoms as a symptom.

The list below is incomplete and various other

drugs or substances, when combined with

naltrexone, may cause your symptoms. Always

advise your doctor of any medications or

treatments you are using, including

prescription, over-the-counter, supplements,

herbal or alternative treatments.

Accopain and Naltrexone interaction
Accopain and ReVia interaction
Actagen-C (CD) and Naltrexone interaction
Actagen-C (CD) and ReVia interaction
Actifed w/Codeine (CD) and Naltrexone interaction
Actifed w/Codeine (CD) and ReVia interaction
Afed-C (CD) and Naltrexone interaction
Afed-C (CD) and ReVia interaction
Alamine Expectorant (CD) and Naltrexone interaction
Alamine Expectorant (CD) and ReVia interaction
Alamine-C (CD) and Naltrexone interaction
Alamine-C (CD) and ReVia interaction
Allay and Naltrexone interaction
Allay and ReVia interaction
Alor 5/500 and Naltrexone interaction
Alor 5/500 and ReVia interaction
Ambenyl Expectorant (CD) and Naltrexone interaction
Ambenyl Expectorant (CD) and ReVia interaction
Ambenyl Syrup (CD) and Naltrexone interaction
Ambenyl Syrup (CD) and ReVia interaction
Anacin 3 w/Codeine 2-4 (CD) and Naltrexone interaction
Anacin 3 w/Codeine 2-4 (CD) and ReVia interaction
Anacin w/Codeine (CD) and Naltrexone interaction
Anacin w/Codeine (CD) and ReVia interaction
Anaplex and Naltrexone interaction
Anaplex and ReVia interaction
Anexsia 7.5 and Naltrexone interaction
Anexsia 7.5 and ReVia interaction
Anexsia and Naltrexone interaction
Anexsia and ReVia interaction
Anolor DH5 and Naltrexone interaction
Anolor DH5 and ReVia interaction
APC w/Codeine (CD) and Naltrexone interaction
APC w/Codeine (CD) and ReVia interaction
Astramorph and Naltrexone interaction
Astramorph and Narcan interaction
Astramorph and ReVia interaction
Astramorph PF and Naltrexone interaction
Astramorph PF and Narcan interaction
Astramorph PF and ReVia interaction
Atasol-8,-15,-30 (CD) and Naltrexone interaction
Atasol-8,-15,-30 (CD) and ReVia interaction
Atuss and Naltrexone interaction
Atuss and ReVia interaction
Avinza and Naltrexone interaction
Avinza and Narcan interaction
Avinza and ReVia interaction
Azdone and Naltrexone interaction
Azdone and ReVia interaction
Ban-Tuss C (CD) and Naltrexone interaction
Ban-Tuss C (CD) and ReVia interaction
Ban-Tuss-HC and Naltrexone interaction
Ban-Tuss-HC and ReVia interaction
Benylin Syrup w/Codeine (CD) and Naltrexone interaction
Benylin Syrup w/Codeine (CD) and ReVia interaction
Biohisdine DHX and Naltrexone interaction
Biohisdine DHX and ReVia interaction
Bitex (CD) and Naltrexone interaction
Bitex (CD) and ReVia interaction
Biuohisdex DHX and Naltrexone interaction
Biuohisdex DHX and ReVia interaction
Bromanyl Cough Syrup (CD) and Naltrexone interaction
Bromanyl Cough Syrup (CD) and ReVia interaction
Bromotuss and Naltrexone interaction
Bromotuss and ReVia interaction
Bromphen DC (CD) and Naltrexone interaction
Bromphen DC (CD) and ReVia interaction
Brontex (CD) and Naltrexone interaction
Brontex (CD) and ReVia interaction
Bufferin w/Codeine (CD) and Naltrexone interaction
Bufferin w/Codeine (CD) and ReVia interaction
Butalbital Compound (CD) and Naltrexone interaction
Butalbital Compound (CD) and ReVia interaction
C2 Buffered and Naltrexone interaction
C2 Buffered and ReVia interaction
C2 w/Codeine and Naltrexone interaction
C2 w/Codeine and ReVia interaction
Chem-Tuss NE (CD) and Naltrexone interaction
Chem-Tuss NE (CD) and ReVia interaction
Chemdal Expectorant (CD) and Naltrexone interaction
Chemdal Expectorant (CD) and ReVia interaction
Chemdal-HD and Naltrexone interaction
Chemdal-HD and ReVia interaction
Cheracol (CD) and Naltrexone interaction
Cheracol (CD) and ReVia interaction
Chlor-Trimeton Expectorant (CD) and Naltrexone interaction
Chlor-Trimeton Expectorant (CD) and ReVia interaction
Coactifed (CD) and Naltrexone interaction
Coactifed (CD) and ReVia interaction
Codecon-C (CD) and Naltrexone interaction
Codecon-C (CD) and ReVia interaction
Codehist DH and Naltrexone interaction
Codehist DH and ReVia interaction
Codehist Elixir and Naltrexone interaction
Codehist Elixir and ReVia interaction
Codeine (CD) and Naltrexone interaction
Codeine (CD) and ReVia interaction
Codeine Contin (timed release) and Naltrexone interaction
Codeine Contin (timed release) and ReVia interaction
Codone and Naltrexone interaction
Codone and ReVia interaction
Coricidin w/Codeine (CD) and Naltrexone interaction
Coricidin w/Codeine (CD) and ReVia interaction
Coryphen-Codeine (CD) and Naltrexone interaction
Coryphen-Codeine (CD) and ReVia interaction
Deproist and Naltrexone interaction
Deproist and ReVia interaction
Detussin and Naltrexone interaction
Detussin and ReVia interaction
DHC Plus and Naltrexone interaction
DHC Plus and ReVia interaction
Dicoril and Naltrexone interaction
Dicoril and ReVia interaction
Dimetane Cough Syrup-DC (CD) and Naltrexone interaction
Dimetane Cough Syrup-DC (CD) and ReVia interaction
Dimetane Expectorant-C (CD) and Naltrexone interaction
Dimetane Expectorant-C (CD) and ReVia interaction
Dimetane Expectorant-DC and Naltrexone interaction
Dimetane Expectorant-DC and ReVia interaction
Dimetapp w/Codeine (CD) and Naltrexone interaction
Dimetapp w/Codeine (CD) and ReVia interaction
Dimetapp-C (CD) and Naltrexone interaction
Dimetapp-C (CD) and ReVia interaction
Dolacet and Naltrexone interaction
Dolacet and ReVia interaction
Duocet and Naltrexone interaction
Duocet and ReVia interaction
Duramorph and Naltrexone interaction
Duramorph and Narcan interaction
Duramorph and ReVia interaction
Duratuss HD and Naltrexone interaction
Duratuss HD and ReVia interaction
Empirin w/Codeine No. 2,4 (CD) and Naltrexone interaction
Empirin w/Codeine No. 2,4 (CD) and ReVia interaction
Empracet w/Codeine No. 3,4 (CD) and Naltrexone interaction
Empracet w/Codeine No. 3,4 (CD) and ReVia interaction
Empracet-30,-60 (CD) and Naltrexone interaction
Empracet-30,-60 (CD) and ReVia interaction
Emtec-30 (CD) and Naltrexone interaction
Emtec-30 (CD) and ReVia interaction
Endagen HD and Naltrexone interaction
Endagen HD and ReVia interaction
Endal-HD and Naltrexone interaction
Endal-HD and ReVia interaction
Endocet and Naltrexone interaction
Endocet and ReVia interaction
Endodan and Naltrexone interaction
Endodan and ReVia interaction
Entuss-D and Naltrexone interaction
Entuss-D and ReVia interaction
Epimorph and Naltrexone interaction
Epimorph and Narcan interaction
Epimorph and ReVia interaction
Exdol-8,-15-30 (CD) and Naltrexone interaction
Exdol-8,-15-30 (CD) and ReVia interaction
Extra Strength Acetaminophen with Codeine (CD) and Naltrexone interaction
Extra Strength Acetaminophen with Codeine (CD) and ReVia interaction
Fiorinal-C 1/4,-C 1/4 (CD) and Naltrexone interaction
Fiorinal-C 1/4,-C 1/4 (CD) and ReVia interaction
Fiorinel w/Codeine NO. 1,2,3 (CD) and Naltrexone interaction
Fiorinel w/Codeine NO. 1,2,3 (CD) and ReVia interaction
Gecil (CD) and Naltrexone interaction
Gecil (CD) and ReVia interaction
Glydeine (CD) and Naltrexone interaction
Glydeine (CD) and ReVia interaction
Histinex-HC and Naltrexone interaction
Histinex-HC and ReVia interaction
Histussin HC and Naltrexone interaction
Histussin HC and ReVia interaction
Hycodan (CD) and Naltrexone interaction
Hycodan (CD) and ReVia interaction
Hycodan and Naltrexone interaction
Hycodan and ReVia interaction
Hycomine and Naltrexone interaction
Hycomine and ReVia interaction
Hycomine Compound and Naltrexone interaction
Hycomine Compound and ReVia interaction
Hycomine Pediatric Syrup and Naltrexone interaction
Hycomine Pediatric Syrup and ReVia interaction
Hycomine Syrup and Naltrexone interaction
Hycomine Syrup and ReVia interaction
Hycomine-S and Naltrexone interaction
Hycomine-S and ReVia interaction
Hycotuss Expectorant and Naltrexone interaction
Hycotuss Expectorant and ReVia interaction
Hydrocodone and Naltrexone interaction
Hydrocodone and ReVia interaction
Infumorph and Naltrexone interaction
Infumorph and Narcan interaction
Infumorph and ReVia interaction
Isoclor Expecotrant (CD) and Naltrexone interaction
Isoclor Expecotrant (CD) and ReVia interaction
Kadian and Naltrexone interaction
Kadian and Narcan interaction
Kadian and ReVia interaction
Lenoltec w/Codeine No. 1,2,3,4 (CD) and Naltrexone interaction
Lenoltec w/Codeine No. 1,2,3,4 (CD) and ReVia interaction
Lorcet Plus and Naltrexone interaction
Lorcet Plus and ReVia interaction
Lorcet-HD and Naltrexone interaction
Lorcet-HD and ReVia interaction
Lortab and Naltrexone interaction
Lortab and ReVia interaction
Lortab ASA and Naltrexone interaction
Lortab ASA and ReVia interaction
M-Eslon and Naltrexone interaction
M-Eslon and Narcan interaction
M-Eslon and ReVia interaction
M.O.S. and Naltrexone interaction
M.O.S. and Narcan interaction
M.O.S. and ReVia interaction
M.O.S.-S.R. and Naltrexone interaction
M.O.S.-S.R. and Narcan interaction
M.O.S.-S.R. and ReVia interaction
Medipan 5 and Naltrexone interaction
Medipan 5 and ReVia interaction
Mersyndol and Naltrexone interaction
Mersyndol and ReVia interaction
Methadone and Rifampin interaction
Morphine and Naltrexone interaction
Morphine and Narcan interaction
Morphine and ReVia interaction
Morphine H.P. and Naltrexone interaction
Morphine H.P. and Narcan interaction
Morphine H.P. and ReVia interaction
Morphitec and Naltrexone interaction
Morphitec and Narcan interaction
Morphitec and ReVia interaction
MS Contin and Naltrexone interaction
MS Contin and Narcan interaction
MS Contin and ReVia interaction
MS-IR and Naltrexone interaction
MS-IR and Narcan interaction
MS-IR and ReVia interaction
Naldecon-CX (CD) and Naltrexone interaction
Naldecon-CX (CD) and ReVia interaction
Norcet 7 and Naltrexone interaction
Norcet 7 and ReVia interaction
Normatane (CD) and Naltrexone interaction
Normatane (CD) and ReVia interaction
Novadyne DH (CD) and Naltrexone interaction
Novadyne DH (CD) and ReVia interaction
Novahistex C (CD) and Naltrexone interaction
Novahistex C (CD) and ReVia interaction
Novahistine DH and Naltrexone interaction
Novahistine DH and ReVia interaction
Novihistex DH and Naltrexone interaction
Novihistex DH and ReVia interaction
Novo-Gesic (CD) and Naltrexone interaction
Novo-Gesic (CD) and ReVia interaction
Nucochem (CD) and Naltrexone interaction
Nucochem (CD) and ReVia interaction
Nucofed (CD) and Naltrexone interaction
Nucofed (CD) and ReVia interaction
Omni-Tuss (CD) and Naltrexone interaction
Omni-Tuss (CD) and ReVia interaction
OMS Concentrate and Naltrexone interaction
OMS Concentrate and Narcan interaction
OMS Concentrate and ReVia interaction
Opium Tincture and Naltrexone interaction
Opium Tincture and Narcan interaction
Opium Tincture and ReVia interaction
Oramorph Sr and Naltrexone interaction
Oramorph Sr and Narcan interaction
Oramorph Sr and ReVia interaction
Oridol-C (CD) and Naltrexone interaction
Oridol-C (CD) and ReVia interaction
Oxycocet and Naltrexone interaction
Oxycocet and ReVia interaction
Oxycodan and Naltrexone interaction
Oxycodan and ReVia interaction
Oxycodone and Naltrexone interaction
Oxycodone and ReVia interaction
OxyContin and Naltrexone interaction
OxyContin and ReVia interaction
Panadol w/Codeine (CD) and Naltrexone interaction
Panadol w/Codeine (CD) and ReVia interaction
Paregoric and Naltrexone interaction
Paregoric and Narcan interaction
Paregoric and ReVia interaction
Paveral and Naltrexone interaction
Paveral and ReVia interaction
Pediacof and Naltrexone interaction
Pediacof and ReVia interaction
Penntuss (CD) and Naltrexone interaction
Penntuss (CD) and ReVia interaction
Percocet and Naltrexone interaction
Percocet and ReVia interaction
Percocet-Demi and Naltrexone interaction
Percocet-Demi and ReVia interaction
Percodan and Naltrexone interaction
Percodan and ReVia interaction
Percodan-Demi and Naltrexone interaction
Percodan-Demi and ReVia interaction
Phenaphen No.2,3,4 (CD) and Naltrexone interaction
Phenaphen No.2,3,4 (CD) and ReVia interaction
Phenaphen w/Codeine No. 2,3,4 (CD) and Naltrexone interaction
Phenaphen w/Codeine No. 2,3,4 (CD) and ReVia interaction
Phenergan w/Codeine (CD) and Naltrexone interaction
Phenergan w/Codeine (CD) and ReVia interaction
Poly-Histine (CD) and Naltrexone interaction
Poly-Histine (CD) and ReVia interaction
Polygesic and Naltrexone interaction
Polygesic and ReVia interaction
Promethazine CS (CD) and Naltrexone interaction
Promethazine CS (CD) and ReVia interaction
Protuss and Naltrexone interaction
Protuss and ReVia interaction
Pyra-Phed (CD) and Naltrexone interaction
Pyra-Phed (CD) and ReVia interaction
Risperdal and Methodone interaction
Risperidone and Methodone interaction
RMS Uniserts and Naltrexone interaction
RMS Uniserts and Narcan interaction
RMS Uniserts and ReVia interaction
Robaxacet-8 (CD) and Naltrexone interaction
Robaxacet-8 (CD) and ReVia interaction
Robaxisal-C (CD) and Naltrexone interaction
Robaxisal-C (CD) and ReVia interaction
Robidone and Naltrexone interaction
Robidone and ReVia interaction
Rounox w.Codeine (CD) and Naltrexone interaction
Rounox w.Codeine (CD) and ReVia interaction
Roxanol 100 and Naltrexone interaction
Roxanol 100 and Narcan interaction
Roxanol 100 and ReVia interaction
Roxanol and Naltrexone interaction
Roxanol and Narcan interaction
Roxanol and ReVia interaction
Roxanol SR and Naltrexone interaction
Roxanol SR and Narcan interaction
Roxanol SR and ReVia interaction
Roxicet and Naltrexone interaction
Roxicet and ReVia interaction
Roxicodone and Naltrexone interaction
Roxicodone and ReVia interaction
Roxilox and Naltrexone interaction
Roxilox and ReVia interaction
Roxiprin and Naltrexone interaction
Roxiprin and ReVia interaction
Ru-Tuss and Naltrexone interaction
Ru-Tuss and ReVia interaction
SK-Apap (CD) and Naltrexone interaction
SK-Apap (CD) and ReVia interaction
SK-Oxycodone and Naltrexone interaction
SK-Oxycodone and ReVia interaction
Statex and Naltrexone interaction
Statex and Narcan interaction
Statex and ReVia interaction
Supeudol and Naltrexone interaction
Supeudol and ReVia interaction
T-Gesic and Naltrexone interaction
T-Gesic and ReVia interaction
Tamine Expectorant DC (CD) and Naltrexone interaction
Tamine Expectorant DC (CD) and ReVia interaction
Tecnal C (CD) and Naltrexone interaction
Tecnal C (CD) and ReVia interaction
Terpin Hydrate (CD) and Codeine (CD) and Naltrexone interaction
Terpin Hydrate (CD) and Codeine (CD) and ReVia interaction
Triafed w/Codeine (CD) and Naltrexone interaction
Triafed w/Codeine (CD) and ReVia interaction
Triamine Expectorant w/Codeine (CD) and Naltrexone interaction
Triamine Expectorant w/Codeine (CD) and ReVia interaction
Triaminic Expectorant DH and Naltrexone interaction
Triaminic Expectorant DH and ReVia interaction
Triatec-8, 30 (CD) and Naltrexone interaction
Triatec-8, 30 (CD) and ReVia interaction
Tussaminic C Forte (CD) and Naltrexone interaction
Tussaminic C Forte (CD) and ReVia interaction
Tussaminic C Ped (CD) and Naltrexone interaction
Tussaminic C Ped (CD) and ReVia interaction
Tussaminic Expectorant DH and Naltrexone interaction
Tussaminic Expectorant DH and ReVia interaction
Tussend and Naltrexone interaction
Tussend and ReVia interaction
Tussend Expectorant and Naltrexone interaction
Tussend Expectorant and ReVia interaction
Tussi-Organidin (CD) and Naltrexone interaction
Tussi-Organidin (CD) and ReVia interaction
Tussionex and Naltrexone interaction
Tussionex and ReVia interaction
Tycolet and Naltrexone interaction
Tycolet and ReVia interaction
Tylenol w/Codeine (CD) and Naltrexone interaction
Tylenol w/Codeine (CD) and ReVia interaction
Tylenol w/Codeine Elixir (CD) and Naltrexone interaction
Tylenol w/Codeine Elixir (CD) and ReVia interaction
Tylenol w/Codeine No. 1,2,3,4 (CD) and Naltrexone interaction
Tylenol w/Codeine No. 1,2,3,4 (CD) and ReVia interaction
Tylox and Naltrexone interaction
Tylox and ReVia interaction
Vanex and Naltrexone interaction
Vanex and ReVia interaction
VC Expectorant w/Codeine and Naltrexone interaction
VC Expectorant w/Codeine and ReVia interaction
Veganin (CD) and Naltrexone interaction
Veganin (CD) and ReVia interaction
Vicodin and Naltrexone interaction
Vicodin and ReVia interaction
Vicodin ES and Naltrexone interaction
Vicodin ES and ReVia interaction
Vicoprofen and Naltrexone interaction
Vicoprofen and ReVia interaction
Zydone and Naltrexone interaction
Zydone and ReVia interaction

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abigail
LymeNet Contributor
Member # 14936

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Imitrex works for me. I love it!

--------------------
Dying is easy. Living is harder.

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cactus
Frequent Contributor (1K+ posts)
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The only thing that takes the edge off for me is butalbital.

Nothing else helps at all, but this one seems to make it so I can function somewhat.

Hope you find one that works for you.

--------------------
�Did you ever stop to think, and forget to start again?� - A.A. Milne

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djf2005
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thanks all

dr mentioned imitrex today at appt.

most likely will give it a try.

have fiorinal for now until i start ldn

derek

pab-

thx for the suggestion. diamox doesnt help.

i have encephalitis but for some reason diamox no aid. duno why it is pressure it seems.

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

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Shosty
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How do you know you have encephalitis, just curious. What tests were done for that?

Butalbital helped my daughter some. Now she cannot take it due to another med, and just does caffeine (coke) for a migraine.

She had two very distinct headaches. The migraines are being treated, and quite successfully, with natural progesterone cream, and the caffeine too. Hers are definitely hormone-related.

The other headache, which was in a different place (back and top of head) was there 24/7 for more than 2 years, and kept her out of school.

We tried: massage, acupuncture, physical therapy, therapeutic swimming, and more; then went to meds like trazadone and topamax (unbearable). She went to a pain mgmt. clinic at a major hospital, more drugs (amitryptilene gave her seizures, there were problems with everything really).

Finally, we went to an MD, covered by insurance, who was alternative (he mixes mainstream Western med. with alternative). He had her eliminate all potential allergens from her diet for a few weeks, and within a few days, her headache completley disappeared! (It got worse first though, just a note of warning).

She stayed on that diet for some weeks, then gradually reintroduced foods. She now avoids dairy and gluten, and carries an Epi-pen for the dairy, which is a severe allergy at this point.

This did not work for PAB's kids, for which I am sorry, and might not work for you, but you would be able to tell within a week of eating only rice, veggies, apples and poultry or fish. No gluten (wheat etc.), dairy, nuts, citrus, tomatoes, berries, soy, seeds, etc. Worth a try!

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Vermont_Lymie
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To my surprise, my consistent headaches of late (they lasted for days for the last couple of months) went away soon after I started taking Wobenzym N (systemic enzymes).

I do not know if that is a fluke of timing, because it could be that I simply got beyond herxing on my other treatment, and that the headaches were due to bacterial die-off. But I am continuing the Wobenzym (which are not normally considered a headache treatment)! Hope you feel better soon.

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djf2005
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ive been on a diet like that for over 6 months no difference shosty. thanks for the suggestion.

also on wobenzym, no difference.

thanks for all the suggestions.

ill be using fiorinol for the time being then trying the other one i mentioned

derek

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

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soonermom
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I know I sound like a broken record, but this is working great for me.

Alpha lipoic Acid and NAC (n-acetyl cysteine).

I looked into glutathione after reading this post on lymenet:
http://tinyurl.com/6m6a2t

My LLMD doesn't do the IV Glutathione, but suggested I take the ALA with the NAC and it has made a huge improvement in my headaches.

I also recently read on my NAC bottle that alcohol depletes glutathione.....FINALLY making sense of the alcohol intollerance I experienced while sick with lyme.

--------------------
3/08 CDC Positive
IgM 18++ 23-25IND 31++++ 34++ 39+ 41+++ 58+ 83-93+

CDC Negative
IgG 31IND 39IND 41+++ 58+ 66+

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djf2005
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tosh-

done.

the nac and ala i take, no difference.

i do the IV glut it helps some.

much thanks

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

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djf2005
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shosty encephalitis dx spect and mri

butalbital is that fiorinol? thats what i have now, havent taken yet...

thanks

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

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TF
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Just a warning, butalbital (fioricet, fiorinal, etc.) has as a possible side effect chronic daily headache. An internist prescribed this for me when I was suffering terribly with headache and ear infection.

I took it a few times per day. I later learned that you cannot take this drug that often--you can only take it once in a while.

After 3 months of continuous terrible headache, I finally got to a neurologist (headache specialist) who informed me that I was suffering from rebound headache from butalbital. It was horrible.

The neurologist prescribed indocin (indomethacin 25 mg) instead. Said he never prescribes butalbital anymore due to the rebound headache side effect. Indocin is an NSAID.

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pab
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Derek,

Do you know if you have high intracranial pressure?

--------------------
Peggy

~ ~ Hope is a powerful medicine. ~ ~

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djf2005
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hey pab-

no LP has been performed, wont do it.

i know its silly since ive had severe headaches for 2 yrs now, but i just cant bring myself to do it.

i know i would most likely have a higher opening pressure, but the treatment would be no different except for the option for a shunt, etc, if it was needed.

i am trying to avoid all those things altogether but eventually ill crack i guess...

diamox doesnt help so one would think its not pressure related but diamox doesnt always help reduce icp as far as i know?

best

derek

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

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glm1111
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Hi Derek,

When I had unrelenting headaches, I was given a lot of different pain meds along with phenergan suppositories etc.


When I took a valium it would relieve the headache bigtime and I could sleep.


I think when our bodies are in a high state of stress we don't realize it with everything else going on.

\

All I know is that it worked for me.


The other thing I did was I went to the Jefferson Headache Clinic and was given IV magnesium. It helped some. Hope you get some relief.


Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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seekhelp
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Have you tried Feverfew (herb)? I never have, but I heard it's pretty effective for headaches.
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4Seasons
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Hi Derek,

I'm sorry the headache has you so down.

The only thing that helps my headaches (migrane or other) is chiropratic adjustments.

I have a chiropractor who specializes in atlas and cranial adjustment. You could google "Atlas Orthogonal" and see if there is one in your area if you want to give it a try.

It has been a lifesaver for me.

Marla

--------------------
"Life isn't about waiting for the storm to pass, it's about learning to dance in the rain."
Anonymous

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imagine2
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Hi Derek,
Imitrex really works for me. The headaches can be brutal. I feel for you.

We also use Excedrin Migraine, Vanquish, and Percogesic.

Whatever you decide to take, remember to catch it as soon as it comes on. If the headache settles in, it can hang around for a week.

Hope you get some relief.

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pab
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Derek,

Do you remember the dosage of Diamox you had tried?

I take Diamox daily. I rarely get the pressure headaches anymore.

My kids have shunts because they couldn't take enough Diamox to bring their pressure in the normal range.

There are other meds to take for PTC.

My sons and I take Relpax if we get a migraine or really bad headache.

My kids tried every OTC drug and many prescription drugs and nothing relieved their headaches.

I wish there was an easy fix!

Peggy

--------------------
Peggy

~ ~ Hope is a powerful medicine. ~ ~

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pat1950
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If you think you might be clenching your teeth at night(or daytime too), it could be contributing to headaches. Check out this website [URL=http://www.headacheprevention.com/][/URL] . As a dentist, I've made hundreds of these things and found that by relaxing the temporalis muscles, those tension headaches, migraines, neck pain are greatly reduced or disappear altogether.

Pat

--------------------
Patrick S

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djf2005
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thanks gary, once im off nalterxone i will pursue ultram.

take care

derek

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

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Beverly
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Hi,

So sorry you have headaches they can be horrible to deal with.

This is what I have taken to help my headaches.
Relafen, decongestants, Zyflamend OTC, Stephania root herb liquid extract, massaging my head, neck, caffeine, and laying on my spine roller.

The best thing that helped me tho was being on antibiotics, my headaches went from severe to mild, it showed on my SPECT scan.

I also found diet was very important for me;
keeping my yeast under control, no aspartame and no MSG.

If I was having a migraine rubbing peppermint oil around my head worked good. If I caught it in time it would disappear, does not work for pressure head pain tho.

Good luck to you, hope you find something that works for you.

--------------------
God Bless You! Everything..is just my opinion.

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