posted
I've been sick with what was thought to be chronic fatigue for two years now. However, I have lately realized that I may have lyme.
I saw a LLMD three weeks ago, got a number of tests run, and a perscription for doxy. Based on my symptoms, he says there is a good chance I may have lyme.
I haven't gotten my results back yet, but have been experiencing a pretty bad herx from the doxy. The question I have is related to my dose.
I have had bad reactions to a number of immune boosting supps in the past and was afraid of starting too fast on the doxy. My doc told me to start with 100mg a day, and work my way up over the course of a few weeks to 100 2x a day. Once my results are in he will probably suggest further treatment with a higher dose, or a combo of antibiotics.
I am aware that 100mg a day is a very small dose, however I started herxing the first day, and have gotten progressively worse since then.
I would like to know if anyone else has experienced a herx with such a low dose? If so does anyone have any suggestions?
Posts: 11 | From Pittsburgh, PA | Registered: Nov 2008
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
A herx is another strong indication of Lyme.
I started at 200mg a day (100mg twice daily).
Boy was I sick!
Hang in there.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
I agree to LymeToo -
Build up to higher dose as soon as you can-
Low dose can make germs become resistant to meds- --jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
tkearn,
Herxing can be really harsh for some even on low doses of abx as it depends on the load of the bacteria. That is why some doctors start very slowly so that the patient is not too uncomfortable.
You probably already know from reading the instructions on the package not to lay down within a half hour of taking doxy, not taking it with dairy, staying OUT of the sun, and taking with food if it bothers your stomach.
I'm sure your LLMD may have discussed taking good refrigerated high culture/high strain probiotics to replace all the bacteria doxy is killing off.
If not, I would get a really good brand such as Renew Life CRITICAL CARE at your local healthfood store in the fridge section.
Your supplments which should/may include Fish Oil, B Complex, Immune Booster, and a good quaity vitamin, and an herbal antifungal to kill yeast.
Hope you can continue ramping up your doxy safely and without much pain.
Good luck with your treatment and keep us posted.
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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bettyg
Unregistered
posted
what type of symptoms are you having herxing? see my newbie package link where it talks about EYE SENSITIVITIY to doxy, etc. and other suggestions ok!
good, informative post and nicely spaced for us neuro folks!! i'll attach what i send to all newbies, and again, you did an OUTSTANDING job on your post!
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @ http://www.ilads.org/burrascano_0905.html suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!
Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.
***************
please go to my newbie links, copy the entire thing, and then print this off....
financial burdens compiled by melanie reber pages 74 - 92; outstanding info there.
also in my table of contents, for FINANCIAL BURDENS, i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences. thoughts and prayers headed your way..
Betty's POSTING GUIDELINES
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
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In response to your questions, I am on a high quality probiotic, which I take 3x a day. On top of that I take fish oil, multi, b complex, and milk thistle.
My herx symptoms, are mostly a worsening of my normal symptoms. Brain fog, anxiety, and fatigue are the worst of these. My stamina is also significantly less than usual.
I've been told my case is unusual because I don't have any pain. My main symptoms are the afformentioned brain fog, anxiety, fatigue, and low stamina. I also have sensitivities to many foods, and odors.
This is the main reason it took me so long to come to a lyme dx. My Igenex results, as well as tests for co-infections should be in soon. Hopefully I will have more of an idea what I'm dealing with then.
Thanks again.
Posts: 11 | From Pittsburgh, PA | Registered: Nov 2008
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
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