LymeNet Flash: Unknown organism cultured from blisters

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Unknown organism cultured from blisters

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Topic: Unknown organism cultured from blisters

Nicoles Mom
Member
Member # 14408

posted

Regarding the blisters my daughter had which I posted about here.

The general consensus from folks here on lymenet is that they may be Bart blisters.

A picture of what they look like is at:
http://www.scielo.br/img/revistas/bjmbr/v40n4/6497i06peq.jpg

An artical about them is at:

http://dermnetnz.org/bacterial/bacillary-angiomatosis.html

I just got a call from the supporting doc saying an unknown organism has been cultured from the blisters.

Not staff or shingles or anything else they can identify.

She says they are going to grow them for another 280 days to see if they can find something.

What does that mean?

Haven't they already found something?

Will growing it more days make it more identifiable?

Should they maybe send it somewhere else to have it identified?

If it is Bartonells, shouldn't they have been able to identify it?

Does this mean it is NOT Bartonella?

She could not answere these questions.

And suggestions on how to get the unknown organism identified?

Thanks

Posts: 93 | From Illinois / Ontario | Registered: Jan 2008 | IP: Logged |

seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

posted

Does she still have the blisters?

Don't know if this could in any way be Morgellons or not. Maybe that would be another possibility to consider.

Maybe call the microbiologist at Clongen Labs -- Dr K.

http://www.clongen.com

That lab seems to have some of the best DNA testing around.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004 | IP: Logged |

sparkle7
Frequent Contributor (5K+ posts)
Member # 10397

posted

I didn't really see anything about blisters in regards to Morgellon's symptoms. It's mainly non-healing wounds & fibers present.

Blisters can be a symptom of herpes. I don't know much about bart or the other co-infections.

I hope you can find more about this. I'm sorry you have to go through it.

Posts: 7772 | From Northeast, again... | Registered: Oct 2006 | IP: Logged |

Nicoles Mom
Member
Member # 14408

posted

Don't think it is Morgellons.

Doesn't look like it and no fibers.

I guess my main concern is how can it be an "unknown organism" and what can be done to figure out what it is.

Regarding sending it to another lab, can I insist we do this?

I suggested that and the doc said "that is the lab we use and they are the ones who cultered it".

Does this mean they own it?

The blisters are gone so we can't reculture for some other lab.

Thanks

Posts: 93 | From Illinois / Ontario | Registered: Jan 2008 | IP: Logged |

adamm
Unregistered

posted

The tick-borne "bartonella" has yet to be definitively identified.

IP: Logged |

Nicoles Mom
Member
Member # 14408

posted

quote:
Originally posted by adamm:
The tick-borne "bartonella" has yet to be definitively identified.

Major confution here.

How can people be tested for it with positive results if it has never been identified?

Posts: 93 | From Illinois / Ontario | Registered: Jan 2008 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-

For what might help: I had a mouth full of ulcers for four years.

I've been on andrographis for a couple months now. They all disappeared after the first week and are still gone. Nothing else worked this well for me. Nothing.

You can search Andrographis at Pubmed. There are 220 abstracts. www.ncbi.nlm.nih.gov/sites/entrez

No cross references with ulcers or with blisters, but it sure helped me. If you do try it, be sure to have enough lab samples for testing before starting it.

Andrographis is also discussed at length in Buhner's book: "Healing Lyme . . . "

==========

A couple kinds of Porphyria can cause blisters.

You don't need to reply but here are some things to consider:

Does your daugher have trouble with perfumes, certain medicines . . . is she sensitive to sound or light?

Has she ever had blisters as a reaction to sun exposure?

Have any new carpets or textiles recently come into your home?

Has she recently been exposed to chemicals? Or to heavy metals? (Some children's soft vinyl lunch boxes contain lead.)

Does she have trouble digesting meat?

If so, you might take a look at this thread:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=071168

Topic: PORPHYRIA LINKS - Re: Cytochrome P-450 liver detox pathway

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Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

adamm
Unregistered

posted

Oh, sorry--I'm talking about BLO, not B. Henselae.

It's something that they've observed in blood smears but have
been unable to classify. Current thinking is that it's either an
not-yet-described bart species or a mycoplasma.

IP: Logged |

Al
LymeNet Contributor
Member # 9420

posted

Take a look at this site, it mentions blisters/pustules in the discussion section.
I'm not comparing animals to people but most studies are done on animals first.

http://priory.com/vet/cfsdogs.htm

Let me know if you find anything !
Al

Posts: 789 | From CT, | Registered: Jun 2006 | IP: Logged |

treepatrol
Honored Contributor (10K+ posts)
Member # 4117

posted

Look familiar?
These blisters on a young girl's arm are the result of a skin infection by Staphylococcus aureus bacteria.

nichols
This was also a little girl.
check google images
google images

[ 18. November 2008, 09:17 AM: Message edited by: treepatrol ]

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003 | IP: Logged |

katc
LymeNet Contributor
Member # 17210

posted

Hey...don't know if this will help, but I just saw an episode on Mystery Diagnosis where a lady had Morgellans and Lyme.

This doctor was one of very few who knew about Morgellans. Not sure if she discovered it or what, but she knew about it.

Maybe you can find the episode and contact her with a picture of your daughter's blisters. Maybe she will know what it is.

The lady on the show had been to several doctors with no answer. So give it a try, you never know. She might be the one to help you all.

Posts: 117 | From Winston Salem NC | Registered: Sep 2008 | IP: Logged |

Nicoles Mom
Member
Member # 14408

posted

She (her blisters)tested negative for staf.

The second photo posted as staff is also the exact same photo (EXACT) posted under google images as bart.

[confused]

Posts: 93 | From Illinois / Ontario | Registered: Jan 2008 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-

What else are they testing for? Surely more than just one thing, I hope.

-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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From Bea Seibert - a lab that tests tissue samples. You can also call Igenex and talk to them. www.igenex.com

http://www.clongen.com

1-877-256-6436 - in Maryland

microbiologist - Dr Kilani at Clongen Labs - he is very willing to answer a few questions. Very cordial.

There would be someone in customer service for the more practical questions, of course.

-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

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