posted
sorry everyone for making such chaos- I should know not to post cities and dr. names...
donʻt know where my brain was....
sorry
-------------------- Energy flows where attention goes~ Posts: 302 | From Kauai | Registered: May 2007
| IP: Logged |
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I've seen her as well. She is really good, but extremely expensive, just to warn you up front.
Visits/consults with her will cost you big bucks. I think I worked with her 4 visits, and each was over $1k when all the testing and supplements she wanted me on were done. She is actually more expensive then the LLMDs themselves.
But if $ is not a problem, highly recommend her.
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I have worked with her for about a year. She is brilliant at looking at detox pathways, genetics, etc. I consider her more of a private investigator - looks at old labs for patterns, etc. Yes, you have to expect pay for her time but I have found it well worthwhile.
I am a big fan of DK as well but I think CR is better able to maintain a more consistent patient relationship as DK is often teaching and in travel. So depends on what you are looking for. Both are brilliant and that is why I am still working with them.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
did she teach you new things that you didnʻt know already or were not aware of... or bring to your attention some ʻproblemʻ that wasnʻt being addressed?
did you stop seeing her because of the $ or because it wasnʻt really helping?
$1k for a visit is outrageous! yea thatʻs way more than Dr. H!
sheʻs $275/hr ....
does she add all kinds of other cost in there-
I was reading the packet of info- and it says-
- you pay $15 for 15 min increments for an assistant for ART, if needed... -and also, pay her at her rate of $275 to review your labs and all before the appointment ranging from 15-45 min...
how long was her prep time for you?
money is tight for me, but if she will really help me, than I see it would be worth it...but thereʻs no telling unless I try her I guess...
mahalos! Fawne
-------------------- Energy flows where attention goes~ Posts: 302 | From Kauai | Registered: May 2007
| IP: Logged |
Expect to pay over $1000 for your first visit. My first visit was over $1200. I've only seen her once so far, so I really can't evaluate her yet. I also think follow-ups end up close to $1000 each as well.
[ 19. November 2008, 01:52 PM: Message edited by: AndrewInCA ]
Posts: 443 | From The Wild West | Registered: Jan 2002
| IP: Logged |
did you feel satisfied after your visit? like you gained something by seeing her, even in the early state?
thanks!
smiles~ Fawne
-------------------- Energy flows where attention goes~ Posts: 302 | From Kauai | Registered: May 2007
| IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
According to the agreement that I got, if she discusses your case with another doctor, she charges the hourly rate.
I don't know if this is an issue but if she talks to Dr. H. about your case, be prepared for more charges.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
She CLEARLY spells out the costs in her paperwork. I don't recall the exact amount, but it is something that should be understood. In my case, where she charged for charting time it was worth every penny. She looked at all my labs and said that she saw a mold pattern. We dug further. I had black mold in my apt. I moved. I would never have looked at mold again if she had not pushed. So, costs money but she works very hard for it. 275 an hour is CHEAP.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Yes, she will charge $275/hour for protocol prep, communication with Dr H or another doc, charting, etc. Think of it the same as a lawyer....billable hours. Yes, expect to pay about $1k/visit, because her appt are 1.5-2 hours minimum (you will pay for the full appt, so that's about $500 for the appt, plus tests and supplements) maybe less as you move forward...$800 or so.
I think if I had been able to stick it out, yes, she would have helped. I do agree with Scott that she looks at stuff no one else really has time to or thinks to do.
The good news is I think Dr H is picking up a ton of stuff from her, and she from him, since they are working so closely now. I notice that he's incorporating a lot of stuff from her into his appts now.
There's another good ND up in N. Cal if you are interested, I don't think quite as expensive. PM me for the name if you're interested. He was apparently doing some of the stuff C.R. is doing now, last year.
Seems like a lot of LLMDs are working with naturopaths now.
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Wow, she sounds great, but at $1k per visit, it would be a short duration financially. I can't imagine too many of you have those funds consistently. Can she cure people much faster than regular LLMDs?
Perhaps the cost of living being higher in CA is a factor? It seems like you wouldn't have a huge client base at that price. I am unsure as to the cost of non-participating docs out in CA though.
I was hissing because my follow-up appt was $285 last month and I felt ripped off. This puts it into perspective.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
| IP: Logged |
Iʻve read her history and ended up talking to her and she seems sincere and very knowledgeable. It does seem like she might catch other things that are not really addressed.....
I really would love to see her and give it a try- but I do have to see if it is going to be something I can afford...
I really want to see a naturopath who understands Lyme and does ART testing...and thatʻs not really an option in Hawaii...
at some point, I realize itʻs our health and how can we put a price on it- but also if we donʻt have the money - it makes it hard to do that....
if there is the WILL, there is always the WAY...
thank you all for your input!
Mahalos! Iʻll let you know my experience if I see her!
smiles! Fawne
-------------------- Energy flows where attention goes~ Posts: 302 | From Kauai | Registered: May 2007
| IP: Logged |
In particular, I am wondering if there can be worthwhile investigative accomplishments in only one or two visits?
I realize treatment would require much longer than one or two visits. But, if ongoing treatment (costs) is not possible at $1,000 per visit, is it still worth pursuing for what can be investigatively gleaned through records review and preliminary ART testing, etc?
Thanks for any comments on this.
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
| IP: Logged |
My opinion, I mean no offense, only trying to help...
The ND in Reno is worth the financials if you have a means to meet them. Think of all of the doctors you have seen or heard of others seeing, who do not know a whole lot about lyme or do not see it as a 'real' or serious disease. and the money that is spent there.
It is very important to work with someone who gets this disease and treats you like a person at the same time. She not only gets the disease but she looks at your whole system and goes to the root of stuff in your body. She knows what to do with this stuff to help correct it once its found too.
Think of those things as you are considering pursuing treatment.
We have to think long term too.
With lyme, its often a lifelong process so you want to work with someone you can have a rapport with and someone who will take the time and have the expertise to see you all the way through.
There are not many practitioners at all around who have the whole package.
Finding all that is priceless and could make the difference in your health and recovery.
Jsut my two cents, and from my experience with this ND
eagle
Posts: 21 | From USA | Registered: Oct 2008
| IP: Logged |
posted
hi Eagle, no worries, all comments are wanted and appreciated! I understand and agree with the considerations you have posted. How long have you been seeing her & how often do you see her?
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
| IP: Logged |
It was 1 K for the visit once all supplements were added in and assistant testing fees.
And I must say I was VERY VERY impressed. She honed in on everything. What infections and/or problems were present and what herbs and vitamins would work best. And also tested almost every antibiotic/parasitic RX out there.....
So now it really takes out a lot of guessing. I know itʻs in layers and more will show up and go away....but even if you could just afford one or two visits I would say its well worth your time & money....
Keep in mind, I just began seeing her, so my opinion might change down the road...but as for now, I am more than happy that I saw her and spent the money.
(I was pretty nervous prior about the money issue and why in the world she charges so much- but now I feel much better, still feel itʻs expensive to be charging that much, but hey- what can we do about it- see her or donʻt....I am glad I did...)
THere were things that I forgot to tell her, that after testing she came up with the same thing I already knew....it was pretty neat....
I saw Dr. H after her while in California...and he said if Queen Bee can give me some pointers I am a GREAT worker Bee....it was cute...yet true...
I hope to continue my new relationship with her and my road to recovery.....
hope this helps some....
smiles~ Fawne
-------------------- Energy flows where attention goes~ Posts: 302 | From Kauai | Registered: May 2007
| IP: Logged |
posted
Thanks, all the information being posted is really helping reassure me about this decision.
Fawne I am so happy for you that you have some answers. How reassuring that you now have a confirmed direction on things that will work for your body!
Fawne, you said: "She honed in on everything. What infections and/or problems were present and what herbs and vitamins would work best. And also tested almost every antibiotic/parasitic RX out there....."
Did you see her in his office or in Nevada? I asssume she has an inhouse stock of antibiotics/parasitics to try...or did you have to bring your own?
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
| IP: Logged |
posted
Thanks Fawne! Sorry about mailbox; it's cleared out now:) Thanks for all the feedback to help me better understand. I feel much reassured now that I am going in the right direction.
Does anyone know if CR brings the testing supplies when she is the CA office?
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
| IP: Logged |
Did you find her compassionate? I haven't seen her in person, I do long distance with her. Just trying to get an idea of what the atmosphere is like and her office, in person, you know?
I have had a few appointments on the phone, I live several hours away so I can't get there right now.
Jam, I hope you have a great experience and really get what you need. Will you go to NV?
eagle
Posts: 21 | From USA | Registered: Oct 2008
| IP: Logged |
posted
Eagle I am scheduled to see her in his office. However, I want to make sure that she brings all testing things when she comes here. If not, I may need to rethink about it. So, I really hope someone here who knows can post about whether or not she brings all testing things here.
Prior to the in-office appt she wants an hour and half phone interview appt. That is done after she receives copies of all your labs and the completed patient history forms. That appt is scheduled for next week.
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
| IP: Logged |
I am not sure but think she would go to Dr. H's office with the things she needs to test.
I am thinking that your phone interview will give you a lot better feel for her and whether or not you would feel comfortable having treatment with her. I am sorry I can't be more help. I haven't seen her in person yet so there is a lot I can't answer.
Please keep in touch and lets support each other... I hope your phone interview goes well. Ask everything you want to ask. I had a three and a half hour initial phone interview with her.
PM me if you like. I will do my best to help
eagle
Posts: 21 | From USA | Registered: Oct 2008
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
She bring everything she needs to test.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
She bring everything she needs to test.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
posted
Another question. The new patient medical history forms includes dental history. I faxed it to my dentist and they completed it this afternoon.
I had forgotten about root canals. I have 2. Does any of the testing that DrR does evaluate teeth, especially root canals? If so, what kind of testing is it? Is it the TOPAS that I read about in Gigi's posts??
I assume she evaluates teeth in some regard or else the form would not have been in the packet? I'd love to hear more on this from those who have consulted with her. Did anyone have teeth issues?
I ask because one of my substantive symptoms is teeth sensitivity, particularly top front teeth, which are crowned. I have had trouble with them ever since they were crowned. My dentist pretty much summarily dismisses any complaints about it. Seems to me this needs to be further evaluated, whether by DrR or biological dentist.
Thanks for any help/comments.
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
| IP: Logged |
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I recall her talking about dental health.
Just FYI I have top two front teeth sensitivity too, I was told that this is cranial nerve involvement.
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/