LymeNet Flash: Treating for neurological lyme

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Treating for neurological lyme

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Author

Topic: Treating for neurological lyme

CherylS
Member
Member # 17253

posted

I have been unable to convince my PCP to authorize treatment through insurance.

I had a postive multiplex PCR test using urine through Igenex.

My PCP says that is not an accurate test.

My LLMD wants to start treatment. I will need to pay for it out of pocket.

Does anyone know what the cost of a pic line and IV Rocephin cost?

My LLMD indicated that I will probably need to treat for 3-6 months.

Thanks for your help.

Posts: 10 | From MA | Registered: Sep 2008 | IP: Logged |

seekhelp
Frequent Contributor (5K+ posts)
Member # 15067

posted

I haven't done it personally, but from what people have stated on here, I think you're looking at $15,000-$20,000 out-of-pocket just for IV meds and supplies. [Frown]

Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008 | IP: Logged |

Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780

posted

There is information on lymenet about appealing insurance company decisions. Having a positive test should help.

Not sure where the info is, but do a search in the Medical and Support threads. Many llmds have ways of cutting costs also. Hope that helps and you get the treatment you need.

Posts: 2557 | From home | Registered: Aug 2006 | IP: Logged |

lpkayak
Honored Contributor (10K+ posts)
Member # 5230

posted

that happened to me

i had really good ins too-but couldn't get them to approve it

i did orals and got a lot better

iv is not all that important-bicillan gets better results in general-and there are extra risks with iv

also-most llmds know how to order cheaper abx and then there are the alt protocols: buhner, zhang

i hope you start with something if you decide to fight them -that is hard and stressful good-luck

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004 | IP: Logged |

bettyg
Unregistered

posted

haven't been on this, but read this post good ok on ROCEPHIN AS STICKY ON TOP OF MEDICAL!!

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=039004

IP: Logged |

lymeloco
Unregistered

posted

If your anywhere near Providence, R.I., there's a Vascular Institue. I know they take insurances but I'm not sure which ones.

I thought the cost was under or about $2000.00. I don't know about them supplying the rocephin but there is a number you can call and they'll be more than happy answer any questions for you.

I was very pleased with the service and how caring the professional is. Prices might have gone up since I've been.

IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-

You might also consider either of these. As I never had access to a LLMD and cannot tolerate abx, I have been very impressed with my experiences with time I've been on both of these (at separate times).

It's best to read the entire book(s) before deciding so that everything would be in place. Many LLMDs also incorporate elements from both:

http://tinyurl.com/5vnsjg

Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections - by Stephen Harrod Buhner

web site options: www.gaianstudies.org/lyme-updates.htm

================

http://tinyurl.com/5drx94

Lyme Disease and Modern Chinese Medicine - by Dr. QingCai Zhang, MD & Yale Zhang

web site: try www.sinomedresearch.org and use "clinic" and then "clinic" for the passwords or call Hepapro through www.hepapro.com

-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

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