posted
Thank you ALL so much for all the information, it's making a HUGE differece in what I say to my son's Infectious Disease MD. I have 2 questions.
I talked to Dr. H in WI yesterday. He sounds GREAT!
1. It turns out he DOES NOT use IGENEX. I told him IGENEX had some special equipment. He said his local University Lab has the same equipment.
Is that okay? Should I kind of INSIST that he use an IGENEX lab or TRUST that he knows what lab to use?
2.)BettyG says he's a ILADs MD, I don't know what that is YET. Is that good?
Posts: 43 | From Austin, TX | Registered: Nov 2008
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posted
Yeah he's one of the best. Other labs do good testing like IGENEX, I think MDL is another good one.
Posts: 499 | From Indiana | Registered: Oct 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Still keep in mind that testing is not the sole criteria for diagnosis.
I have a question, though. If you see a LLMD why do you also see an ID doctor?
(edited for clarity): Or are you talking about just one person?
gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
Jess,
ILADS is the organization that has a different approach than "CDC or IDSA".
Most regular MD's and ID doctors are IDSA doctors which mean they dont believe in long term treatment of lyme. Consequently, people relapse and never get well because they are under treated.
Here is Dr. Burrascano's guidelines just in case you have not read this. He is with ILADS.
That is why you see the term "lyme literate" doctor, because they follow ILADS protocol rather than CDC or IDSA.
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