Every morning I have such a horriblr headache. It is all over my head and extremely painful.
It gets so bad that if I wake up before my alarm, I can't go back to sleep at all even if I want.
Sometimes the shower will stop it.
Any ideas what this might be from?
Rifampin? Inflamation? I just need to wake up without this...I can't think straight until it goes away....
Posts: 193 | From New Jersey | Registered: Oct 2008
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posted
How's your blood sugar? Do you get hypoglycemic?
Caffeine withdrawl (if you imbibe)?
Has anyone ever mentioned that you snore? Apnea is a possibility.
How's your ferritin level? Ever had this tested?
-------------------- If you don't know where you are going, any road will take you there. - Lewis Carroll Posts: 356 | From Body-PA, Mind-elsewhere | Registered: Dec 2007
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gemofnj
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posted
lymph,
I had this same headache in the morning and was recently put on rifampin.
I wondered the same thing myself. It usually starts early in am around 4:00 or so and escalates till it feels like my head is going to pop off.
After moving about, ingesting liquids, and taking a hot shower it goes away.
I also thought that it could be from dehydration so I started to really drink alot of lemon water from dinner until bedtime.
I did seem to notice a difference, but wondered if it was because I was getting used to the rifampin.
Do you take yours all at once or 2 x a day? and when? Maybe that could be it?
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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Caffeine I am pretty religious about. 2 cups in am only...
Ferritin level, I am clueless about.
I take the rifampin 2x day, once in am when I wake up and once around 3:30 pm, both times on empty stomach and with no other abx or supps
Today it went away before the shower, but as you said gem, after I move around and drink something.
I honestly thought it was the xanax that I was taking before bed. But I haven't taken that in about a week to see if that was it. Still headaches.
I have been on the rifampin for 2 1/2 weeks approx. I have also been feeling better...mostly.
Still get the neck pain, but not as often or prolonged.
Still get jabbing eye pain, but only occasionally.
Neuro stuff is so-so. SOme days so happy and the next weird depersonalization. Very strange stuff.
Posts: 193 | From New Jersey | Registered: Oct 2008
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MartinJS
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posted
You've had many good suggestions, sorry you're going through this. Morning headaches may indicate a sleep disorder and not snoring does not mean you may not have one of the many sleep disorders--sorry I don't have the info in front of me, it's mainly for CFS/FMS patients where the soft tissue palate and surrounding area basically collapse preventing proper airway flow, thus limiting oxygen to the brain....etc.
You might find this info if you google "FMS and sleep disorders", if I find out exactly I'll PM you. Just another suggestion to consider and good luck!
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posted
I have experienced this also. I believe mine was from inflammation of the sinuses (from lyme/bart/babs..whatever) It was always worse while lying down. There was a time when I couldn't sleep lying down because of the intense throbbing.
It even showed up on MRI and months later another doctor looked in my sinuses and said the mucosal lining was abnormally thick.
The meds that I take now, pretty much have halted this problem. I have tried to go off of one or the other and it comes back.
I don't know if this is also the cause of your problem, but wanted to throw in my 2 cents!
posted
Martin, Are you referring to UARS? That's another possibility. From what I've been reading about it, some docs see this as a precursor to apnea, others as a standalone issue.
Upper Airway Resistance Syndrome (UARS) - part of the spectrum of obstructive sleep-related breathing disorders in which repetitive increases in resistance to airflow in the upper airway lead to brief arousals and daytime fatigue.
Apneas and hypopneas may be totally absent. Blood oxygen levels can be in the normal range.
-------------------- If you don't know where you are going, any road will take you there. - Lewis Carroll Posts: 356 | From Body-PA, Mind-elsewhere | Registered: Dec 2007
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TerryK
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Martin is right. I can attest to not snoring but still having a bad case of sleep apnea. Morning headaches can be caused by a lot of things but they are a classic symptom of sleep apnea.
Undiagnosed/untreated sleep apena is dangerous. Your chance of a stroke is 400% higher than those who don't have it according to my sleep doctor.
You can wake up hundreds of times a night and not know it. It makes healing very hard if not impossible until it is treated.
Ask your doctor for an evaluation to determine if this is an issue. Actually, insist on it. I asked for several years until I finally found out that my Aunt had it. Apparently that was enough to convince them that I might have it. I probably had it for years.
Untreated sleep apnea can cause diabetes, weight gain, fluid retention, strokes, heart attacks, death etc. etc...
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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I'm not so sure about the sleep issues...I've never had this problem before now.
Don't get me wrong I'm not ruling it out, I will do some reading on the subject and talk to my dr., but it seems too coincidental to the timing of the headaches and the Lyme/Bart treatment.
I'm going to try sleeping with moore pillows and see how that works tonight.
I stopped drinking so much before bed, because I was getting up at least once a night to go to the bathroom. That in itself was keeping me awake.
Posts: 193 | From New Jersey | Registered: Oct 2008
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gemofnj
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Lymph,
This pounding headache started for me also around 11/5 when I went on rifampin. And I seldom get any headaches.
I am supposed to take it 2 x a day as well, but did a google search and said it was more effective if taking it all at once.
So for the first two weeks I took them separately and now the last two weeks just 2 once a day.
I do wake up once or twice to go to the bathroom, but did that anyway before lyme.
My pounding headache and stiff neck was roaring in the beginning, but now most has subsided.
The drug info also lists headaches as a side effect. So maybe that is it.
As soon as I am up walking around and/or shower, it disappears.
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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MartinJS
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posted
Curioser and Terry, precisely UARS is what I was referring to and there were lengthy articles about that in last year's Fibromyalgia Network Journal, darned where I put mine.
Very few sleep medicine centers actually test for UARS so you have to call around and/or ask the specialist. You may not even necessarily be aware you are waking up at night at all. I've always been a calm sleeper but my sleep study showed otherwise.
Some people do find relief with CPAP's or pharmacological methods if...of course this is what your problem is-- but then again could be the meds stirring up your brain, I know abx do mine.
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Carol in PA
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posted
I used to wake up every morning with a splitting headache.
In reading, I realized my symptoms might be due to hypercoagulation and inflammation.
I began looking into ways to reduce inflammation and read that systemic enzyme therapy can reduce both inflammation and hypercoagulation.
I did a trial of different enzymes, and when I tried Wobenzym, the morning headaches subsided within two weeks.
Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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gemofnj
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Carol,
That is a very interesting thought. Thanks.
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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i want to take enzymes but dont alot of herx when we take enzymes? i do herx on bromelain Radha
Posts: 392 | From New York | Registered: Dec 2005
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Shosty
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posted
My daughter and I both had this kind of headache, that is all over (for us, it was especially bad in the back and on top of head), feeling of head being swollen and about to burst etc.
For us, the cause was food allergies, which, I hate to say, we believe were a result of antibiotic therapy (yeast, altered GI flora, and leaky gut).
Your could try an elimination diet for a week or two, avoiding dairy, gluten/wheat, corn, eggs, soy, citrus, tomato, nuts.
You might get much, much worse the first day or two, and then, if that is your problem, the pain will go away totally, w/in a day or two.
Worth a try-? Food allergies cause all kinds of weird neuro symptoms. I have found that eating one of the foods I have a problem with, brings back all the burning and tingling I had with Lyme/ Strange, but must have to do with inflammation.
Give it a try if you think this could fit. I was skeptical, but the results, for us, were amazing.
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Feel around your temple and ear areas on the skull. Mine is always slightly swollen, undoubtedly by spirochete action. They do not like heat so I apply a hot water bottle to screw them up as well as Vicks Vaporub and other smelly things they dislike. Also I put Everclear on cotton balls and swab that area.
Sheryl
Posts: 258 | From Spokane, WA | Registered: Oct 2008
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Shosty
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Just to add re food allergies: if you notice that you are okay one morning, maybe you can think about what you did not eat or did eat the day/night before. I mean, before you go to all the trouble of trying the diet, maybe you could first assess whether there is a pattern to when you have pain and when you don't, in connection with food.
Weather is another factor for me, that I have traced...
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