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» LymeNet Flash » Questions and Discussion » Medical Questions » dysphagia and lyme difficulty swallowing

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Author Topic: dysphagia and lyme difficulty swallowing
stymielymie
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anyone have difficulty swallowing to the pooint that the food gets stuck in upper esophagus.

small amounts of food get caught and won't go down.
bile excreted with vomitiing??
questions for my mom
docdave

Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006  |  IP: Logged | Report this post to a Moderator
njlymemom
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I used to have this problem, and it was quite severe.

With tx it has gotten better. The only time I have a noticable problem is during a relapse or herx.

It did take a while to improve. How long have you been tx lyme or co's?

--------------------
This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.


The shortest way to do many things is to do only one thing at a time.

cb

Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
MY3BOYS
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sounds like she may need upper GI series to check for strictures, etc that may be causing obstruction.

that can cause those symptoms as well and doc usually can dialate them while doing edoscopy.

worth a look, esp. if food getting lodged and bile with vomiting, sounds like more than just a lyme symptom, best wishes

--------------------
i am not a Dr. any info is only for education, suggestion or to think/research. please do not mis-intuprest as diagnostic or prescriptive, only trying to help. **

dx in 08:lyme, rmsf, bart, babs, and m.pneumonia.

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onmyway
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I get this but mine is slightly different! It happens even with water! I think mine is a spasm of the esophagus. It hurts very bad for anywhere from 20 seconds to sometimes a minute! Then sometimes I get the hiccups afterwards! It is a weird symptom but it started with me about 8 months ago!!! Treatment has not helped! Not to say it won't! I just started TYGACIL yesterday so hopefully it may do the trick for all of the TBI's!!!

Take care,
Onmyway

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shelly23
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yes when this first started happening to me it scared me .. Now i am so use to it .. it seems to hit a week at a time and then disappears....... does this come in phases for anyone else

--------------------
Shelly
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I am a Dreamer, Believer, and Conquer; I will overcome this disease !!!

Posts: 382 | From Alabama Via PA | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
sutherngrl
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This happens to me mostly with water. However some times if I just swallow with nothing in my mouth, it feels like I can't swallow. Feels like the muscles don't want to kick in.
Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
TerryK
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I'm sorry your mom is dealing with this. It is miserable.

I had this really bad for awhile. Felt like I had a lump in my throat sometimes. With or without the feeling of a lump, I would choke on pills, food and even water.

It improved greatly with doxy. It took many months. I'm still in treatment and it comes and goes now but is gone most of the time.

I'd check for allergies too but for me it is mostly gone with abx.

Terry

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Geneal
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Hi Doc Dave.

I second the vote for an esophogram.

Maybe a Modified Barium Swallow Study while you are at it.

Sometimes radiologists can lower the x-ray and follow liquid/food

As it leaves the mouth into the upper esophagus.

If they are feeling cooperative on a particular date. [shake]

The four phases of swallowing are:

Oral Prep

Oral

Pharyngeal

Esophogeal

As a ST, I've mainly dealt with the first 3.

Problems with the esophagus are usually dealt with surgically.

Strictures are common.

A couple of things to try with Mom.

Very small bites. Small sips.

Wait at least 30 seconds to a minute (longer if you can) prior

To putting more food/liquid in mouth to masticate and swallow.

Softer foods sometimes are easier.

Eat at a 90 degree angle.

Do not lay down for at least one hour after eating.

Keep the head of the bed elevated up to 75 degrees.

Keep meals small and frequent.

Keep me posted. Let me know if there is anything else I can do.

Hugs,

Geneal

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lemonade
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My daughter and I both had/have this. Google "Bells Palsey of the gut". It may help to explain.
Karen

Posts: 82 | From east hampton ny | Registered: Jun 2006  |  IP: Logged | Report this post to a Moderator
glm1111
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Yep, I have/had this comes and goes. I have bells palsy of the gut. Drinking ice water helps me for some reason.


I think it may have something to do with constricting(tightening the esphogeal muscle) so I have more motility to swallow. Does your mom have Lyme?

Hope this helps a little,


gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
stymielymie
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she had a major workup 2 years ago
finally no etiology so they dilated the esophagus.
the dilation did not last very long.

do they have a stent they can place in the esophagus to keep it open since the muscle don't seem to produce an adequate peristalsis.

docdave

Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006  |  IP: Logged | Report this post to a Moderator
glm1111
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DocDave,

Has she been tested for Lyme? Parasites? I would definitely pursue the possibility of infection.


How old is your mom, if you don't mind me asking? I don't know about a stent.


Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
DoctorLuddite
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While those studies mentioned above may demonstrate a focal are of dysfunction, they won't explain the process that led to it, and a doc who demonstrates a lesion of that nature and steamrolls ahead with treatment without answering the question of how the problem evolved will be doing a disservice to the patient. For the muscles of the esophagus to exhibit dysfunctional peristalsis, some metabolic derangement in the contraction process must be present, or there must be some mechanical compression in the nerve or blood supply to the muscles in question.
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deersharon
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Yes this happened to me for 25 years, since first infected with lyme. I was tested 5x for GI/swallowing, they never found anything wrong. (Of course I never had problems choking on milkshake consistency!)
Finally in a routine check my doctor felt my throat and felt that my thyroid was hard. An ultrasound confirmed Hashimotos disease, which is very common from Lyme. But, I also had cancer tumors and my thyroid was removed. I no longer have the choking problem.
Please ask for an ultrasound. Hope it helps.

Posts: 5 | From arizona | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
   

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