posted
This doesn't mean that his treatment was successful? That Igenex, which has very sensitive testing, no longer shows a positive IgM? I'd think the guy is getting well. Am I missing something?
Posts: 17 | From new york | Registered: Nov 2008
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posted
True.... How long were you sick before beginning treatment?
IF it's a recent bite, then you COULD be getting well. For most of us chronic Lymies, the Igenex result could be the result of being on abx when the test was taken.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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DebAz
Unregistered
posted
The report says the two bands on the IGG that you showed positive for on test two can come from just a vacination of an unifected person. Now that the IGM is cleared and you have no other positives I would be happy if I were you and then..
I would just retest in about 6 months I heard you are supposed to stay on treatment for a good 3 months after you think things are cleared.. For that final make sure its gone time...
And I would ask your doctor what they think of that and of the results..
I would love those results but also would want another lab like Fry lab to confirm the co infections at least.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
I looked over your past posts. You had a bulls eye in Oct. and became ill. IMO you need much more aggressive treatment. The doses you have been on have been very low.
You said:
" . . . I have been on Minocyline for about 2 months and 1 month of Doxycline before that.
Am I missing anything? . . ." end quote
--
It sounds like you've only been given one Rx at a time. Monotherapy is never enough for any tick-borne infection.
Are you seeing an ILADS educated LLMD?
Combination, rotation is vital to address the different forms of borrelia. Monotheraphy is never advised.
Doxy or mino will do nothing for the cyst form. Is that to come as the next step, then?
And, what is your liver protection and endocrine support?
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As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.
Excerpts:
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
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- Full article at link above, containing MUCH more detailed information.
Co-infections (other tick-borne infections or TBD - tick-borne disease) are not discussed in the Savely article due to space limits. Still, any LLMD you would see would know how to assess/treat if others are present.
===================
This book, by an ILADS member LLMD, holds great information about treatments options and support measures:
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posted
Testing is a notoriously inaccurate way to diagnose lyme disease, espcially the WB.
Since you and I have chatted on the side and I know your circumstances, I would say that a neg. Igenex WB is due to the abx given you to 'stimulate' a positive result.
Apparently it backfired and killed off enough of the bacteria that the test could not find current antibodies.
The sickest person I knew tested 1 step from negative. The bacteria had moved out of the blood stream and into the muscles, tissues and tendons. Had he not been educated about testing, he easily could have been overlooked for lyme. You could be in the same condition, having the bacteria lodged elsewhere besides your bloodstream.
I also know the person you are seeing for treatment because I recommened them as a local resource. They are very good but there is a point where you need the teacher, not the student. An ARNP w/a few years experience w/lyme is not comparable to a vastly exerpienced LLMD. If you have the opportunity to get to one, I recommend it. A pos/neg result would not be a question, the answer is in your symptoms.
Are you totally symptom free and totally the person you were before the lyme??
If so, then you might consider yourself in the lucky few that get cured. I hope that to be true but it would be unlikely, especially considering how positive your original WB was and ESPECIALLY since it was Labcorp!
Hope this helps, Curley
Posts: 982 | From Florida | Registered: Feb 2002
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I agree with Keebler, you have not been treated adequately yet.
A bullseye rash is diagnostic of lyme. That combined with your postive WB clinches the diagnosis.
Are you still having symptoms?
The problem with lyme disease is that it can come back later. Do everything you can now so that hopefully you can avoid chronic lyme.
If it were me, I'd see a top notch ILADS LLMD and follow their recommendations. They have the most experience with this sort of situation.
I hope you can forgo the horrific life changing experience of chronic lyme disesae.
edited to add: Bottom line: as curley mentioned, lyme testing is not reliable. Go with the experts experience on this one.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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