posted
I was most likely infected in the mid '90's when I worked outside for about 9 years. I had periods of severe fatigue, headaches and depression but was diagnosed with chronic fatigue, an active Epstein Barr infection, etc. I got really sick again in Jan. 2005 after a severe intestinal virus and subsequent surgery. I was diagnosed with Lyme in July 2006 and have been on antibiotics ever since. (2 1/2 years)
Posts: 33 | From Ohio | Registered: Feb 2007
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I was most likely infected when I was 14. That is when I was bitten, saw the tick attached in my arm, and pulled it out. Wasn't extremely ill with many, many symptoms until I was around 23 (and I'm 25 now), so almost 10 years later, though before that I had things here and there...
I've been on treatment (abx, herbs, supplements, etc.) for a year and a half.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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bettyg
Unregistered
posted
boy, those are SHORT time frames!
me, 39 years this christmas! tick off folks' live christmas tree did this to me!
35 years MISDIAGNOSED by 40-50 drs.
18 mo. antibiotics
6 mo. supplements ... off them all; on other RX meds for other body symptoms
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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adamm
Unregistered
posted
19 months of illness
- 6 months unable to get to an LLMD on account of brainwashed family members (I knew I had Lyme right away) ______________________________________________
13 months of treatment which has nothing to stop the decomposition of my CNS
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
18 years without diagnosis
1 year treatment.....so far, not near being well yet.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
2 and 1/2 years ill, 7 months in treatment so far.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
I was sick for 6 years, with various diagnoses.
Have been treating for Lyme for the past 13 months, and this will be my first month on no antibiotics.
Posts: 306 | From Brownsville, PA | Registered: Jul 2007
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posted
Symptoms for 2 years prior to diagnosis. Sick for one year prior to diagnosis. Been on treatment abx and herbs 2 years.
Much better but not well. Don't know when or how I got it.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
See below
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i really don't know. could have had it since childhood since my mom had it.
but definitely had bull's eye rash in 2005, no treatment until december.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Sick either since Sep-07 or late '96. It's a crapshoot and I don't trust a LLMD's "gut shot opinion" on this. No proof of tick bite/rash.
On Abx for 3.5 months....not much change yet.
Overall, this thread is very depressing. The replies so far make me question the success of long-term Abx. Everyone's on them forever and many are saying they aren't better. When i see YEARS and little improvement, it gets me down.
If I had to guess, I'd say over 50% of people on LN do not have Lyme, but obviously are ill with an unknown disease that may be positively impacted with Abx treatment. There seems to be too much variation in improvement levels to be one diease. I know co-infections come into play, but as usual they are just a LLMDs wild guess based on symptoms.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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ajisuun
Unregistered
posted
Tick bite Summer 2003 Started treatment Fall 2005 Still treating with only doxy and supplements. Not well yet, but I'm much, much better than I was 3 years ago.
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posted
husband bit in 99 got sick in 01..sick for six yrs until diagnosed in 06..on abx now 2 yrs and not better...even sicker...but fighting..but we know what it is now...that its not in his head..but funny thats where his lyme is..oh my.
-------------------- madgen Posts: 342 | From newjersey | Registered: Oct 2007
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posted
Bitten by a tick in 2003, EM rash developed, 3 days of abx. prescribed. Many doctors, many diagnoses, surgeries, etc. Finally diagnosed w/ Chronic Lyme in 2006.
So, 5+ years infected, 2 years on abx...and counting
Posts: 371 | From CT | Registered: Jun 2008
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quote:Originally posted by seekhelp: Overall, this thread is very depressing. The replies so far make me question the success of long-term Abx. Everyone's on them forever and many are saying they aren't better. When i see YEARS and little improvement, it gets me down.
If I had to guess, I'd say over 50% of people on LN do not have Lyme,
I agree with you on this. But, just because many haven't been "cured" by long term abx, does not mean their lives have not been greatly improved by them. Also, the people who have had success are long gone from LN, they're living their lives.
I feel Lyme is both underdiagnosed and overdiagnosed, many here probably do not have "Lyme", but have other "Lyme like illnesses", Tick borne, or not.
[ 13. December 2008, 09:09 AM: Message edited by: JKMMC09 ]
Posts: 371 | From CT | Registered: Jun 2008
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Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
Very ill for 8 years before diagnosis - Positive for Lyme, Babs & Bart
Have been diagnosed for 2 years but only stated AB's 5 months after diagnosis and was only on Ab's for 6 months with a 6 month break as I became intollerant so had to work on high detox for 6 months before I could tollerate any more AB's
So this time I have been on Agressive AB's now for 6 months,
So a total of 1 year antibiotics.
Presently on 2gms IV Rocephin a day - 6 days a week 900mg Clindamycin oral 975mg Quinine Sulphate 400mg Artimisinin pulsed
Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
My sister in law got bitten and had a massive E.M. & a CDC positive test, she had treatment within 6 weeks of E.M for 4 months with agressive combination AB's and is totally well now.
posted
I, for one, tested positive for both of the infections for which I've treated--so they definitely can be extensively drug resistant (Bb is a bioweapon, you must remember.)
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bettyg
Unregistered
posted
forest,
i'm sure there are MORE than you/i will ever know about! i was lucky i kept a diary since 13 to help me track this back to when i was so deathly ill!
2+ yrs. ago, a young 20's couple w/2 toddlers said they ALL got bitten by ticks off their christmas tree too! so sad!
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