posted
I am only on 200mgs- what's everyone else on?
Posts: 319 | From nj | Registered: Jul 2008
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gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
200 mg is pretty low, but a standard ILADS dose.
Do you see a lyme literate doctor?
400 mg is the regular, but your doctor may want to start treatment slowly depending upon how severe your lyme symptoms are and how long you have had the untreated diseases.
Sometimes starting on 400 mg right away can make people have herx reactions (which is toxin die off that cause you to feel very sick after starting abx)
Have you been tested for coinfections?
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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posted
I started doxy a month and a half ago, and still can barely tolerate 100mg a day. This is the dose I started on, and within a half hour I noticed a reaction. I've been herxing ever since. I recently upped it to 200mg a day for about two weeks, but could not handle it.
I've been wondering if this is a problem with the meds themselves, or with detox? I see a LLMD, and he wanted me to keep trying to up my dose a few weeks ago. I will probably call him again soon if I'm still unable to tolerate it.
Posts: 11 | From Pittsburgh, PA | Registered: Nov 2008
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posted
I am only on 200mg a day as well (100mg bid) and I worry that its not enough! But the 200mg is making me sick...not sure if its herxing or just from the doxy itself. Good to know that someone else is on the same dose per a LLMD.
Posts: 55 | From New York | Registered: Nov 2008
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posted
I've been on abx for over 3 yrs. I'd been on 300mg/day of doxy, then increased the dose about 2 months ago to 400mg. I noticed a significant improvement with that so after finding that at least one other person on the board had taken 6oomg, decided to increase my dose.
My Dr. knows and he doesn't object. I feel that 600mg/day reaches a deeper level of the infection. You may have heard people refer to Lyme as being like an onion, and you have to keep peeling away the layers. Well, I think standard doses just doesn't get to the deepest layers and that higher doses may be required to get to them.
I have to admit that the 600mg/day (taken 300mg twice daily) isn't easy on my stomach. I need to take it with food, and then I'm ok.
Patti
Posts: 975 | From California | Registered: Apr 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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laurisabelle222 -
no matter how much - it falls short if used alone. Lyme treatment is NEVER monotherapy. Doxy will not address all the forms of borrelia.
And, have you been assessed for coinfections? Hope so.
Treatment is very intricate. Combination, rotation is required and adjusted for each patient. However, some guidelines in the next post.
Perhaps your doctor has started slowly (which can be okay sometimes) - and there is a plan to make adjustments soon ? If not, I hope you can see a doctor who has a full plan of action.
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" - By Virginia Savely, RN, FNP-C
As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.
Excerpts:
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.
"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."
. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.
- Full article at link above, containing MUCH more detailed information.
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Co-infections (other tick-borne infections or TBD - tick-borne disease) are not discussed in the Savely article due to space limits. Still, any LLMD you would see would know how to assess/treat if others are present.
The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
- 2/3 down the page, you can download Guidelines for the management of Lyme disease
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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