I took clindamycin and quinine over a period of at least 2 yrs. Then finished it off with ART and zith.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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seekhelp
Frequent Contributor (5K+ posts)
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posted
Wow 2+ years....my LLMD treats it for 3 days. Maybe different strains? lol.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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cactus
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posted
3 days?
I want your strain!
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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cactus
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Oops, forgot to say - I thought I'd beaten it for a year or so.
But just had a relapse, so no such luck.
I hope you beat it quickly!
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Hoosiers51
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So far it seems to me that many of the people who have not relapsed have one thing in common: artemisinin.
Some people have taken artemisinin and relapsed, but artemisinin still seems to be a common deonomenator among those that didn't.....with a few exceptions here and there.
For me that begs the question, can artemisinin alone be a sufficient treatment for babesia?
I have heard people who say no, but I'm not sure if that is "the word on the street" or if they know the answer is no from experience. Or, maybe they did something wrong, like incorrect dosing or they didn't pulse it.
I wonder if it HAS to be combined with something else. Some will say Zithromax, but if that is the worst case, it seems easy enough.
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
Think I did, but only time will tell. Haven't had any treatment for it for more than 2 years. Regained the weight I lost (30 pounds) and lost the headaches.
However, the Red Cross won't let you donate blood ever if you have had babesia, I think, so that says something.
I did zith+mepron+art and was also on clindamycin at the time. Don't know which of these things, or the combination, did the trick.
The odd thing about my babesia case is that I had no symptoms from it until the lyme got worse, two years after the bite. It appeared that when the lyme overwhelmed my immune system, it could no longer hold the babs in latent form.
Posts: 8430 | From Not available | Registered: Oct 2000
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Hoosiers51
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lou,
What do you feel helped your lyme the most? Maybe that is part of the answer of getting rid of the babesia, or at least keeping it away.
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
I guess that is a possibility, but my lyme is not under control even after all the treatment I have had, so not sure what to say helped the most. I am not even sure anymore what mix of germs we are treating, as I may have Cpn too, and mycoplasma. Which are opportunistic and which came with the tickbite?
Well, since I am still alive, and some lyme symptoms abated, maybe it would be fair to say that some of the many different meds helped. I am much improved in some ways, but not in other ways. There have been studies that showed different strains of keets responded differently to meds. Plus the keets keep changing inside our bodies, maybe different genetically in one tissue from another. If all this is true, it would explain why the arthritis stays relatively controlled, but the neuro persists and is currently looking like ALS. We are shooting at a moving target.
Not a very good answer, I'm afraid, to your question. And it is pretty clear that we all respond differently to meds.
I keep editing this post trying to get the situation described better. The neuro symptoms changed, is what happened. The stabbing, burning, numbness, all that stuff subsided with treatment. What I have now is neurons being killed off and producing muscle wasting. And the herx increases the wasting, so I have to stay on suboptimal doses to avoid the herxing. I feel like what I did was swap non-lethal neuro symptoms for potentially lethal ones. And possibly because the keets changed location and genetic composition.
Posts: 8430 | From Not available | Registered: Oct 2000
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luvs2ride
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posted
I have babesia, CPN, Mycoplasmas, EBV and H. Pylori. (h.pylori may be gone)
I live symptom free and I don't believe it is luck.
I am very careful to follow as anti-inflammatory diet as much as possible and I avoid the foods I have tested sensitive too which are dairy and soy.
I eat simple, whole foods that do not have any additives or preservatives. I eat organic as much as possible, but I don't live in a major city so am limited there.
I eat mostly veggies with meat more as a side dish and I feel best the day after the days I avoid meat altogether. I am bloodtype A which is supposed to be mostly vegetarian.
Tending to my gut by diet has done more to heal me than any medications. My diet is alkaline, it encourages the production of glutathione which aids in detoxification. I also supplement with NAC, Vit C, Vit D3 (5000 IU), magesium.
My doctor is a rheumatologist so obviously she will use allopathic medicines, but after 7 mths of abx on me and not seeing much progress, we ran a gene test specific to my ability to detox and I am very poor at it.
Doctor felt she had been poisoning me with the medications and she switched to herbals. Both IV and oral. Last bloodtest results showed a marked decrease in my mycoplasma levels.
I do not yet have the results of my most recent bloodwork but am hopeful to see even more progress.
Babesia is the bug she is most focused on and it is a bugger to get rid of. But I am having no symptoms and I am sure it is because we do a very good job of keeping me clear of the toxins by way of diet and supplementation. It is my belief that a lot of the symptoms we experience come from the toxins.
Currently I use glutathione suppositories to provide extra glutathione. Glutathione is essential to good health and those of us with chronic illness are usually deficient.
I think for so many who don't get better, focusing on detox and especially by way of diet would do you a world of good.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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Hoosiers51
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So sorry lou....I hope as time goes on that you will find new answers for treating your lyme. I understand what you meant about the multiple bugs. I was hoping maybe progressing with lyme was what helped your babesia go away some....if it is indeed opportunistic.
Lyme treatment, obviously, can be hard and slow....I have been treating for 7 years (have taken a couple breaks). I am making slow progress. High dose Amoxicillin has helped me some, and for the brief period when I was on minocycline by itself, that was also good (it is a neuro anti-inflamatory i guess). So many of my symptoms HAVE gone away, thank God.
At any rate, I am very glad at least your babesia seems to be gone. Posts: 4590 | From Midwest | Registered: Jun 2008
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Hoosiers51
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Luvs,
Glad you are doing so well! Your post makes it sound like you didn't have lyme, because you didn't list it as an infection...?
Did you not test positive? Or how would you know you don't have it? Because it is possible to only have babesia from a tick bite. What symptoms were your primary complaints? Sorry I'm confused.
I understand that babesia infections can persist but become asymptomatic with time (and other measures i'm sure), but that is not my understanding of lyme. So how exactly did you get rid of lyme if you had it?
Hope that made sense....just curious a little more about what you feel was an anti-spirochetal component to your treatment, if any.
[ 17. December 2008, 07:08 AM: Message edited by: Hoosiers51 ]
Posts: 4590 | From Midwest | Registered: Jun 2008
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CherylSue
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posted
more responses?
Posts: 1954 | From Illinois | Registered: Aug 2007
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Maybe different strains? lol.
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