posted
I was diagnosed this summer with Lyme Disease and Babesia Duncani.
Yesterday I mentioned to my LLMD that I was juicing green veggie drnks (Kale, spinach, chard, etc)....thinking that was healthy. It surprised me that he offered alternative ideas saying those greens have sulfur.
The way he said suggested sulfur should be avoided. I meant to followup with him and ask more, but the subject got changed to treatments.
Sorry, this is likely something basic I should know. Trying to learn. Hoping y'all can share your thoughts about it.
Thanks for any help.
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
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posted
I've never heard that before. In fact a lot of Lyme patients take Bactrim DS (aka Septra DS) for Babesia, and that has sulfur.
I can't imagine those green leafy veggies to be bad in any way. Maybe you're on another antibiotic that it might interfere with?
Posts: 975 | From California | Registered: Apr 2007
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
*If* you have a specific methylation cycle defect (there are actually 2), that cause problems with sulfur, you would need to avoid it.
My LLMD had me get some test strips at www.holisticheal.com for sulfur and we found out it was high. I then had methylation cycle testing and found that I have a mutation that causes problems with sulfur and ammonia.
My LLMD has found that it is not unusual for lyme patients to have methylation cycle problems. There are a number of mutations that one can have, only a few affect sulfur.
I know of no other problem with sulfur and lyme.
You could ask him next time you see him about why he wants you to avoid sulfur.
If you do need to avoid sulfur you can juice other things besides cruciferous vegetables.
Terry I'm not a doctor
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
Thanks everyone! I think Terry hit the nail on the head with the methylation block. (I also think we have the same LLMD (DrH).
I have a methylation block, confirmed through testing with Vitamin Diagnostics Laboratory. I am on the RickVank Simplified-5 Methylation Protocol (supplements through holisticheal). I didn't realize the sulfur connection. I may have read it or been told about it but my lymebrain didn't retain it. Thanks Terry for connecting the dots for me!
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
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posted
I suspect the reason your LLMD said to avoid Kale, etc is due to the affect these have on your Thyroid.
In fact I have to supplement with a homeopathic remedy for sulphur, but I believe it is different than the broccoli, kale, spinach, collaflower, cabbage, brussel sprouts + mustard for your hotdog (bad food that hotdog).
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Yes we do have the same LLMD. Look at your results for a CBS upregulation or SUOX mutations. Those indicate sulfur problems.
If you have either of those and you use sulfur supplements (particularly before you get your methylation cycle block work around) you will create more toxins for your body to have to deal with. Not something that we lyme patients need.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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seekhelp
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Member # 15067
posted
is that typical practice for a good LLMD to understand de-tox pathway testing and how to get around it? I ask because my LLMD never mentoned anything or tested for any of these issues. I honestly don't know enough about them to be able to bring it up.
I take MSM at times. I'd hate to think it could be harmine me!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Hoosiers51
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posted
I was looking at the nutramedix.com website (Cowden Protocol), and I noticed they have a product called "Sparga" that is for "Sulphur Detox."
I wonder what that is all about?
Would that be for people sensitive to sulphur, or anyone?
Also, does whether or not you should take NAC (N Acetyl Cystine i think) have to do with this sulphur thing? Because my chiropractor muscle tested me for NAC, and said I shouldn't take it, because my body has a hard time detoxing something.....I vaguely remember something her saying something about sulphur. And if you can't handle NAC, after you urinate it will smell like the "asparagus pee smell."......is any of this ringing a bell?
I am just throwing stuff out there, to see if anyone knows about this or can clarify.
So I have been wondering if trying Bactrim is a bad idea for me, or if I could maybe just take Sparga and it'll be okay?
Posts: 4590 | From Midwest | Registered: Jun 2008
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Hoosiers51
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posted
Update: The ingredient in Sparga is asparagus root extract................
So I guess asparagus detoxes sulfur? Hmmm........?
Posts: 4590 | From Midwest | Registered: Jun 2008
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canefan17
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posted
Bump
Sulfur and Mercury have a role together?
Sulfur transports mercury around?
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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posted
I for one can not take sulfur or cysteine in any form (NAC, MSM, garlic, etc). It makes me feel horribly sick, I get rashes, and pee smells like...well...sulfur! Sorry if that's TMI.
I have a methylation problem -genetic mutation- confirmed by lab testing through LabCorp and Quest.
But, I've read that murcury toxicity can also cause problems with the methylation pathway and can cause new onset of sulfur sensitivity. I'll try to find the links...
Posts: 95 | From Maryland | Registered: Sep 2009
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djf2005
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posted
The sulfur detox tincture from NM was designed for those of us who have sulfur sensitivities and have used sulfur abx extensively over the years.
Lee's hypothesis is that the body retains these sulfur compounds and that sparga will help eliminate them.
Sparga is part of the condensed program now and I am unsure if it really provides me any benefit or not. It's not really a broad spectrum detox herb like burbur, parsley, or pinella and I'd like to know too if I really need it or not.
Seek- I also feel you pain on the methyl and detox pathway issues, at least w/ your dr. I have asked many many times how to test and correct the methyl blocks (ive gotta have some just by my reaction to abx) and been told "we dont do that" and "it won't change your treatment approach since we treat imperically".
yeeaah. o-k.
I am in the process of finding someone who will do it, because basically I don't think my dr knows how or is willing, either way it doesn't help.
One of the things that continues to frustrate me in general (albeit I have no power over it and should let it go) is that all of these awesome LLMDs, the top ones (we all know who I am talking about, there's only about 10) rarely share info and are willing to learn from one another.
Yes, they come together for a few conferences here and there, but each one thinks they know best and is so hesitant to apply anything from their counterparts treatment programs.
Frustrating to say the least, because all that knowledge assimlated and digested properly and then applied in an individualistic fashion according to a patient's UNIQUE needs would be revolutionary.
I'll keep dreaming for now.....
Derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
So what testing would you get to find out if you have a problem with sulfur?
I know that you can do methylation testing but I think those are pretty expensive. Plus I thought there was separate testing for a sulfur problem that you have to do in addition to the methylation testing? I could be wrong about that.
I thought the part that you need to know is if you have a CBS upregulation? If I remember right that is the part that tells you if you have a sulfur problem or not. So how do you get tested for a CBS upregulation...what test would that be?
Anyhow...I have come across this subject several times over the last couple of years and always wondered if that is something I could have a problem with or not.
Take Care, Pam
-------------------- Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting. Posts: 451 | From Virginia | Registered: Feb 2009
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
There is no life without sulfur. You cannot detox without sulfur. Metal detoxification is hampered without sulfur.
KPU/HPU patients are often sulfur intolerant. They may require molybdenum to address the sulfur issue. 300 of 1500 known metabolic enzymes are zinc dependent.
Consider doing Allergie Immun to correct the errors in the DNA. Maybe read the Allergie Immun Germany thread that is moving here.
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