posted
Well it was just a pressurized ball that dispenses the meds. Now I have the pump, bags, etc...
Posts: 123 | From Georgia | Registered: Jul 2008
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Oh okay.
So how is it going? Noticed any response yet?
Posts: 1366 | From Southeast | Registered: Sep 2005
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posted
Going pretty good so far. Mind feels a lot clearer, knees still swollen a bit but not hurting like before. Only a little over a week into it though.
Posts: 123 | From Georgia | Registered: Jul 2008
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Sounds like you are doing good. Best wishes for continued improvement!
Posts: 1366 | From Southeast | Registered: Sep 2005
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posted
Don't really know to be quite honest. I am allergic to the class of antibiotics that rocephin is in so I couldn't take it.
Posts: 123 | From Georgia | Registered: Jul 2008
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posted
I had one HUGE anxiety attack about 8 days into the treatment. I think that was my herx.
I've had panic attacks since 1998 so I know how to distract myself and get calmed down. I've also been on clonazepam since 1999 for them which helps me out a lot.
Trust me when I say that NOTHING was quickly helping on this one. I took more clonazepam, drank some herbal tea, paced the parking lot for about 2 hours, and was still going strong.
By the time the panic attack finally went away, I felt like I was reborn. I thought that panic attack was going to last forever.
That's really the only thing I got from the vanco that I would consider a herx.
This was just me though, other people may have a herx like crazy on it.
Posts: 123 | From Georgia | Registered: Jul 2008
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posted
Just want to add that I was going to go an additional 2 weeks on it, but my ears started ringing like crazy. So I was only able to do my initial 4 weeks.
If I have to another round of vanco, I will not hesitate.
Posts: 123 | From Georgia | Registered: Jul 2008
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Glad it went so well for you.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
tell me more on redman syndrome,,,and bart herxes on Vanco,,,fer-just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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OptiMisTick
Frequent Contributor (1K+ posts)
Member # 399
posted
My knowledge of it is that the patient can get it from running in the Vanco too fast and it is dosage related, and due to histamine release from the speed of infusion.
For a 500 ml. bag one patient I know had to run it in over a two hour period to be on the safe side.
The physician should be consulted about the correct speed to infuse the Vancomycin.
One can get dial-in tubing that goes from the bag to the picc clave, and the patient dials in the recommended speed. Some folks do feel the tubing can be re-used for two to three days, keeping the ends covered and maybe protecting the tubing in a plastic zip=loc and in the fridge. Ask the IV pharmacy about the dial=in tubing.
Some patients count the drops with regular tubing and learn to slow it way down so that they hit the correct timing and don't get Red Man Syndrome. (since dial-in tubing is a little more expensive)
My understanding is if you get Red Man Syndrome, stop the IV immediately and it should die down. However I am not a doctor, read more on it or consult the physician.
Folks should also keep an Epi=pen around and read how to use it when they DON"T need it, not wait till they do.
I was using 250ml bags of saline over 90 minutes. I had an infusion pump which I could input how big the bag was and how long I wanted to infuse for and it calculated the ml/hr for me.
When I got the red man syndrome, it only takes a few minutes for it to die down to the point of being tolerable. Mine happened at the end of my infusion, so when they injected the saline and heparin, my color went back to normal almost instantly.
My insurance covered almost all of it, so I never used tubing more than 2 times. I would one tubing for the 2 daily doses then throw it out.
Definitely get an Epi-Pen!!! And carry it around with you everywhere while you are on the vanco or any IV abx in my opinion.
Herx's are different for everyone, so there is no way to tell how you will herx from Vanco.
Posts: 123 | From Georgia | Registered: Jul 2008
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