My doctor has recommended IV EDTA sessions which take about 3 hours at a time. He said I need to have around 20 of them which cost $180-200 each!!
I really can't afford that.
I've also read that IV chelators are unsafe as they are given too far apart and there's nothing to mop up the heavy metals it releases in the meantime.
More consisten oral chelation I thought was better.
I am really worried about this now.
A) I can't afford it B) I don't want to do damage to myself!
-------------------- Sx Start Jan 08 (test neg, but herxing)Susp Lyme, Bart + Babs??
ABX Doxy 400mg + Amox 1g Jun - Sep 08 Rifampin 600mg + Biaxin 1000mg Tinidazole 1000mg/day - Sep 08 to June 08
Currently taking Salt/C 15g (himalayan salt)
85-90% better Posts: 231 | From Australia | Registered: May 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Yep, let me guess...the LLMD offers IV chelation out of his/her office, right? Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
I hear ya, Kelly. Provoking metals on top of a chronic infection is not always a good idea. Is your aluminum # astronomical? (Nevermind I see it up above.) Perhaps there's a gentler approach.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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He's not actually a LLMD. We don't have them in Australia.
He is a holistic doctor, but I've already found him to be ripping me off with supplements I found over 3 times cheaper on the internet, and returned to him and got them myself. I am speaking to my normal doctor about it before I go any further. She's fantastic.
I am skeptical about the treatment.
The report I got was legit. It was from DDI (doctors data inc) in the US.
It mentions there that malic acid and magnesium have been shown to greatly reduce the level of aluminium. I think I should try this first. The don't even mention EDTA.
Just wanting to find someone who has been treated with this.
I have been really keen to get igenex testing done to confirm lyme - hopefully, but treatment is sending us bankrupt.
I have slightly elevated mycoplasma and HHV6 antibodies.
I think I need a new body.
I have to get this deodorant from a health food store so I hope I don't smell like a hippie on top of this!!
-------------------- Sx Start Jan 08 (test neg, but herxing)Susp Lyme, Bart + Babs??
ABX Doxy 400mg + Amox 1g Jun - Sep 08 Rifampin 600mg + Biaxin 1000mg Tinidazole 1000mg/day - Sep 08 to June 08
Currently taking Salt/C 15g (himalayan salt)
85-90% better Posts: 231 | From Australia | Registered: May 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I don't believe Doctor's Data is that great. Generally, hair tests aren't even considered 'gold' by all holistic doctors and considered absolute garbage by regular docs.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Hippies were before my time. What exactly do they smell like? (Just kidding). Actually, they have perfectly effective brand name deodorants without aluminum so no need to go hippie on us. As a tennis fan who watches the Australian Open every year, I know it gets hot down under too!
Perhaps you could rerun the test? Genova in the US has good metal testing. I don't know if they test internationally though (of course the distance may be an issue).
By all means, go slower if you don't trust your doc...
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
If the excess heavy metal already shows in the hair, it means that your body is able to release it. It is on the way out. It is a problem if the toxic metals in the hair are not showing up or are out of balance. A good doctor is able to identify this.
If you had mercury fillings in your mouth and showed no mercury coming out in the hair, I would worry. Because that means that the body is holding on to it for one reason or another.
Cilantro tincture and Desferal work well for alumminum. They worked for my husband for heavy alu toxicity. He did not do well with cilantro because it is now known that he is allergic to certain metals and thus the body cannot release them.
The EDTA did not work for us and I would not recommend it to anyone.
The easiest, simplest is heavy metal detox with the Bionic880. Per some practitioners I have talked with who do it, two or three treatments will do it. But it is wise to check into the allergy connection. It took us years to figure that out. We went with www.allergie-immun.de (click on Englisch) in the process of solving this problem. There is usually a reason why people accumulate certain metals and it often comes down to a dysregulation of the body.
Take care and good luck.
Posts: 9834 | From Washington State | Registered: Oct 2000
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
You can also do it gently and slowly by using something like NDF (Natural Detox Factors), it's a cilantro/chlorella combo. One bottle will last about 4 months, and it runs $99. I think I'm going to try this for lead/mercury. I'm also too scared to do IV chelation.
Posts: 3528 | From US | Registered: Apr 2007
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posted
I have read some stuff indicating the magnesium deficiency can sometimes casue aluminium toxicity as your body grabs on to alumnium instead of the mg.
Not sure if this is corred. My hair test showed up adequeate magnesium.
It's funny though because my hair test showed to be lackin in zinc, but my red blood cell levels were good.
-------------------- Sx Start Jan 08 (test neg, but herxing)Susp Lyme, Bart + Babs??
ABX Doxy 400mg + Amox 1g Jun - Sep 08 Rifampin 600mg + Biaxin 1000mg Tinidazole 1000mg/day - Sep 08 to June 08
Currently taking Salt/C 15g (himalayan salt)
85-90% better Posts: 231 | From Australia | Registered: May 2008
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NanaDubo
Frequent Contributor (1K+ posts)
Member # 14794
posted
kellyb - I have a friend in Australia who was just diagnosed with lyme and has no one to talk to and can't find a good doctor.
EDTA chelation did not work for me. I only tried it once and I had a horrible experience. Moved too much too fast and was quite unpleasant. Some people have had good experience with it but it is very costly and I am concerned with its safety.
I did it before I had my amalgams out and I think it moved mercury around as well.
I would look for gentler alternatives if I were you.
Posts: 1129 | From Maine | Registered: Feb 2008
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posted
I haven't been tested or anything yet so I cant really be of any help on that. However my daughter is taking B-12 shots and there is quite alot of aluminum in the injectable.
the pamphlet from the pharmacy cautions against long term use of injectable because of the aluminum. It seems that frying pans, deoderant and even foods we ingest contain detectable amounts.
-------------------- "Absence of evidence is not evidence of absence"--Carl Sagan Posts: 317 | From Kansas and New Jersey | Registered: May 2008
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