posted
I went to the family doctor for joint pain and numbness in hands and feet and was sent to the rheumatologist. That doctor did alot of blood work and when i returned for the results she said she didnt need to see me but wanted me to see a back doctor and "oh by the way did i tell you your blood work shows that you were at some time infected by a tick with lyme disease but you no longer have it as it appears you had an antibiotic after" that kind of scared me as i have never been diagnosed with lyme and i am still having problems that she just dismissed where do i go from here?? I feel none of the doctors here even believe i have a problem!
Carla
Posts: 1 | From altavista, va | Registered: Dec 2008
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
She can't tell from a blood test that you were treated with antibiotics. The body's response to Lyme naturally converts after a time from one type of antibody (IgM) to a different type (IgG), even without treatment.
Since you were never diagnosed, is she seeing in your history that you were treated with antibiotics for something else? From your symptoms, it sounds like you may still be infected, or have an autoimmune condition. As others said, you may want to see someone who knows Lyme.
-- Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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DebAz
Unregistered
posted
hi. this happened to me.. In 2000 I had a slew of tests and I had about 4 infections and as well they said the same thing to me. You also one has lyme in the past but it is not active or current and for me. . ok.. I did not know better. I said ok.. Well now .. in 2008.. after a huge flu and having been fully retested I came up postiive for lyme. I immediaetey thought . ah ha.. I alwayas have had lyme. Between 2000 and 2008 diagnosed with FMS and CFS and even Babesia and Bartonella.. and such.. And still it took 8 years for the Lyme to come up positive and to be tested for it fully.
I agree.> Find a doctor who will understand and test again and even if you come up as a past infection again.. That still does not mean you have not and will not continue battling this as wellas co infections. There are many co invections. You need to get tested for all of them.. There is also some infections that are newly being discovered as well in patients who have FMS and CFS and auto immune disorders and there is not a test yet but ... they are discovering new things. A good doctor is critical.. Good Luck
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I agree with what others have said except that I would say find an ILADS LLMD. They have on-going education and seem to be the most knowledgable and consistent in terms of chronic lyme disease diagnosis and treatment.
Many people with lyme disease antibodies have picked up one or more co-infections from the tick when they were infected with lyme. If you have picked up a co-infection you will need treatment for the co-infections too. Depending on the infection, you may need a different treatment than you would need for lyme itself.
In my opinion, anyone who has lyme antibodies and is sick with lyme like symptoms is likely sick due to lyme or co-infections.
Borrelia (the pathogen that causes lyme disease) is known to persist in cystic form even after antibiotic treatment. It can exist for a decade or more and then re-activate when your immune system is stressed.
There is a huge policital conflict over lyme disease treatment. Do your own research and get to a lyme literate doctor for a full evaluation. That is your best chance of getting well.
Good luck, Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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bettyg
Unregistered
posted
yes, copy your entire post after you have edited it breaking it up into short paragraphs; see below suggested guidelines please for us neuro folks; big thanks!
copy broken up version and paste in SEEKING DR. forum in a NEW POST....
show largest city closest to you and state in subject line ok!~ NONE in city you listed!
then go to lower left hand corner and mark box to receive all replies! good luck!
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!
Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.
***************
please go to my newbie links, copy the entire thing, and then print this off....
financial burdens compiled by melanie reber pages 74 - 92; outstanding info there.
also in my table of contents, for FINANCIAL BURDENS, i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences. thoughts and prayers headed your way..
Betty's POSTING GUIDELINES
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
LYMETOO'S DR. C'S EXPLANATION OF WESTERN BLOT TESTING!
PRINT THIS OFF the full explanation, and then CIRCLE the numbers that coincide with your positives, IND! That will explain your no. results! ------------------------------------------------------
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bettyg
Unregistered
posted
sassy,
please UPDATE MY PROFILE and go to bottom and show YES TO ENABLE PRIVATE MESSAGES.
that's how we send llmd, lyme literate md, info to all! thanks!
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.![[Wink]](wink.gif)
otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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