posted
'Florinef beta blockers and disopyramide (Norpace), singly or in combination . Half of the treated patients say their symptoms completely or partially disappeared within one month after treatment. In the treatment plan, patients were asked to increase in the intake of salt and fluid in their diet -- a prescription normally used to treat neurally mediated hypotension. The abnormality is also known variously as vasovagal syncope (fainting), vasodepressor syncope and neurocardiogeneic syncope.
A strong hypothesis suggests that an unknown virus, infection or some other unidentified condition could trigger CFS since so many patients can virtually pinpoint an abrupt on set' of their illness. The hypotension condition commonly occurs when the central nervous system's autonomic portion, which controls heart rate and blood pressure response, misinterprets the body's needs during periods of upright posture and sends a message to the heart to slow down and lower blood pressure. Such a response is the opposite of what the body needs at such times, the researchers said. And unfortunately, this particular kind of hypotension, or low blood pressure, cannot be detected by standard blood pressure tests. It is instead discerned by tilting a patient at a 70-degree angle to the floor.
During the "tilt" test, all 22 patients with the hypotension experienced Iight headedness, nausea or fainting with an unwanted drop in systolic blood pressure.
Other Research has recently been presented on the prevalence of hypotension seen in Gulf War veterans suffering from what has come to be known as Gulf War Syndrome. Dr. William Baumzweiger linked his military patients to a similar if not identical disregulation of blood pressure and a chronic form of brainstem encephalitis. Brainstem encephalitis is an inflammatory disturbance of the brain's central control mechanisms -- more commonly referred to as an organic brain disorder. But in regards to CFS similarities, Baumzweiger notes an abnormality in blood pressure regulation .as one of the central tenets to his research. In a series of laboratory and examination results on vital statistics, there were several common indicators:
-Patients all have a significant increase in blood pressure upon either getting up or lying down, depending on the individual case. - -They all have a significant increase in heart rate on standing up. -Ten out of the fifteen had hypotension, a fall in blood pressure when standing up while two had an increase in blood pressure when standing up. ~ . With both CFS and Gulf War illness plaguing so many. individuals worldwide, these new studies could prove Encouraging .
[ 22. December 2008, 12:10 AM: Message edited by: Al ]
Posts: 789 | From CT, | Registered: Jun 2006
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bettyg
Unregistered
posted
hi al,
i think you would get more readers and replies if you broke up your entire post more. i am scrolling on by .... big thanks
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
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posted
Another word used to describe this collection of symptoms is "dysautonomia". As Al described, the autonomic nervous symptom has difficulty coordinating heart rate and blood pressure.
Postural Orthostatic Tachycardia Syndrome (POTS), Neurally Mediated Hypotension (NMH), Neurocardiogenic Syncope (NCS), are some of the types of dysautonomia. Here is a link for more information in lay terms: Dysautonomia Info
My LLMD says that these conditions are very common in TBD patients because the neuro system is sometimes infected or affected by toxins. Dizziness, headaches, fainting, racing heart rate are common symptoms. A patient may not even have enough blood pressure to be able to stand up.
My child (has babesia and bartonella) and was first diagnosed with POTS before the TBD was discovered. Treatement with flourinef, midodrine, high salt, and high fluid diet has helped a lot. Treatment of the underlying babesia resulted in rapid improvement of the POTS.
If you search on the word "POTS", you will get a number of threads on this subject.
Best Wishes for a speedy recovery to all!
[ 23. December 2008, 02:13 PM: Message edited by: Lymepool ]
Posts: 170 | From New Jersey | Registered: Jun 2008
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welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
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