posted
I believe Clongen has better equipment than Fry, but you do not get a photo of your smear and it is a bit more expensive. Clongen does use PCR testing for bartonella and I think Fry just does the antibody test.
Hiker53
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 10178 | From Illinois | Registered: Aug 2004
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DebAz
Unregistered
posted
Hi There
I have only used Fry labs and feel confident with the tests.
He now believes that there is a new bug that he has been seeing and has named it something like
ProteobacteriaRheumatica
There will be some new information soon coming out in article form and there is a group and most on here looking for more information.
I see him.. and he has diagnosed me with it.
If you follow some of the other threads on the mystery bug you will learn about it.
First LLMD just did standard lyme test then after 8-9 months of going nowhere I tested positive titer of 1.20 Babs WA-1
Thought is was time to see new Doc tested for Mycoplasma and CPn = positive also thyroid antibodies....CIDP
As of now I am on IVIg only. Don't know how many docs I'm suppose to see to get tested for these bugs. I'd like to get the hole panel since I am into it this far. What would that entail???
What protocol is working best for you?
-------------------- Raymond Leave the gun, take the cannolis Posts: 214 | From Rhode Island | Registered: Nov 2007
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DebAz
Unregistered
posted
Well.. Hi there. I am not so clear on what your trying to accomplish But.. If you have a lyme doctor .... they should be able to test for everything you want... .. Lyme and the co infections and such.
But the thing is that person usually should know which labs to go to for each and should offer you those choices when ordering the tests...
I would use one doctor to gather all the information but you need a good doctor.
Do you have one??
IF not? maybe you need to find one... or worst case ..
i could help you with the list of tests I have done and who has done them and you could ask for your doctor to send out for them?? Not sure though again.. what your goal is.
I would use Dr. Fry.. but I am familiar with him and can offer a full panel ... including: Do you want more than the below?
Lyme- Western blot Babesia Microti CCP (3rd Gen) Ehrlichia Anaplasma Febrile Agglutin Panel Rckettsia Q Fever ANA ASO CRP SED Rate RF DNA AB Double Stranded A Teichoic Acid Special Stains Bartonella quintana and hensalae Unofficially - Proteobacteria Rheumatica - on blood smear
I think that anything else such as virals items would need to be sent to other labs.. and such.
I would really talk to you doctor in order to get the labs ordered and in order to have insurance coverage etc.
You can PM if you like .. if there is something more I can try to help you with.
SO far it is a full 6 months of Mepron/Zithromax in high dosages and Ketek that has been helping me.
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