Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
Hi everyone. Just wondering if anyone else has had any kind of visual disturbances associated with LD, and if so, what? AMong other symptoms, I've had some really weird things going on with my eyes, and I've seen 2 optometrists and an opthamologist. None of them have come up with anything despite checking my retinas, macula and optic nerves. I've had blurred vision, general trouble focusing, floaters, occasional light flashes and the weirdest thing is that my right pupil keeps dilating abnormally. That sent me to the ER when it started happening, but when the ER doctor couldn't find anything, he blew me off and pretty much told me not to come back to the ER.
I am on a waiting list for a LLMD in my area, but I was just wondering if anyone else has had similar vision issues. Thanks!
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Yes I have most of that too. Eye doc said my eyes were great. Yea right! My vision has gone down hill fast, I see halos around lights, I see spots, I have had a hemorrage in my right eye, my eyes hurt very often, and I also noticed my pupils dialating for no apparent reason.
Thought about seeking out another eye doc, but it's the same old story all the time. No one can find anything and no one believes in LD.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Yes to all of the above.
Pupils dilating differently can be a sign of neuro involvement. Mine has improved with long-term abx, but still happens when symptoms are flaring.
Most of the other symptoms have improved as well.
If you can, make sure your eye doc is somewhat knowledgeable about TBDs and how they can affect the eyes. I don't have an LL eye doc, but he's definitely aware of the possible complications and keeps an eye out for developing trouble.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
Hi, YEP all mentioned. I got Uveitis from Lyme/which is linked to Lyme. Yet, having problems for yrs., so most patients constantly changing script. It is brain neurotransmitter thing why, have long ways to go there. 1 doc. said least 100 neuro`s. Not only in past 5yrs, much do to the FM part. You are not alone. Good Lock. Right now trying to save my vision/just 1 more to add.sigh....Never get id of Uveitis, throughout bod. Hugggsss, to all in Need Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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bettyg
Unregistered
posted
CHECK your profile for eye/lyme specialist in your state; highly recommended here!!
yes, there ar emany members who have lyme eye issues.
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tickbattler
Unregistered
posted
Hi,
I see you live in PA. There is an excellent lyme-literate neuro opthamologist near Lancaster, PA. Dr. S is his name. If you can't find his info, send me a pm and I will give you his number.
My son sees spots from lyme and was evaluated by him. He is wonderful. He told me that bart can affect the eyes too, so it is very important to get checked.
posted
Yes...to all your Qs. Floaters, double vision, trouble focusing, halos, auras, eye migraines, eye pressure, tearing, etc, etc... And pretty much all of it cleared up for me once I got abx treatment. See a LLMD, and get some sound advice on tx.
Posts: 514 | From . | Registered: Apr 2008
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
Thanks for all hte responses. At least I know I'm not crazy (well, at least not for the eye problems, lol). I have good days and not so good days with my eyes, and I just have this fear that I'll wake up totally blind some morning. I know I shouldn't think about negative things like that, but I just get so down and so frustrated with all this crap that just started suddenly over the summer, but no one can figure out what's up. I have days where I'm convinced it's Lyme, then days where I just know it's not. My poor husband and kids. I feel like they deserve better than I am right now. Sorry for the vent. Jusst one of those days. My 2 year old is down with the stomach bug, and i just don't feel like dealing with it today.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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posted
I see floaters, spots, and flashes. I also just see lights in my vision that aren't there. It is sooo frustrating! This is one thing that I really hope goes away with treatment. It's driving me insane!
Posts: 71 | From New York, NY | Registered: Aug 2008
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
I have had problems with my eyes for years now.
The most upsetting is my unequal pupil dilation. Unfortunately, this problem never corrected itself but did get better with treatment, especially bart treatment.
Posts: 1603 | From ny | Registered: Aug 2006
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posted
Yes, and I fixed my similar eye symptoms by drinking mangosteen juice, an anti-inflammatory, anti-oxidant juice.
I drink the Ultra kind, with 72 minerals added to it, but there are lots of varieties. Sold through healthfood store, online and the strongest through multi-level(Xango).
There are some mangosteen threads here on lymenet, if you want to search for them.
It worked instantly for me, within 24 hours. If you try it, just drink a little bit, as it can be powerful, and drink a lot of water too.
We are all different in how we respond to treatments. This one works for me.
Btw, I did go to a neuro-opthalmologist right before I started the juice. He couldn't find anything wrong with my eyes in his tests, even tho he had to anesthetize me for me to be able to look at light. We're very odd patients...
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
I was diagnosed immediately by my Dr. in NY. She knew where I lived and where I was working. Doxy did the job fast. 4 mths later, powerful headaches, pixalated vision, bad focus, and a blind spot. Dr. says cluster headaches. She is also concerned about neuro problems. She is not truly LL but she's really sharp. we never attributed the vision problem to the LD. Dr. has other neuro concerns. Muscle/joint pain, tiredness, bad sleep yes, but not vision. I wonder what the neurologist will say in Jan.?
Posts: 1 | From Rockland County, NY | Registered: Jan 2009
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bettyg
Unregistered
posted
welcome rockland,
i'm glad you had a sharp md who helped you immediately and worked with you.
i hope you will UPDATE YOUR PROFILE and go to the bottom to allow private messages by enabling YES vs. no.
i'd be interested in who you are going to. would you send me a private message, it's 2 people standing together, to right of my name ok.
we do NOT show lyme literate mds, llmds, names/addresses/phone nos. on this PUBLIC board; it's a no no per lymenet rules.
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
DebAZ's 12.08 comparison of 05 to 08 new guidelines:
Differences in newest Guidelines compared to 2005 Guidelines
Page 25 26 and 27 Added section "Sorting out the co infections"
Page 28 New info given to get supplements from additional places
In all areas of Supplements there has been various changes and additions to each description and i advice people to re read the full supplement section as well the following additions to the whole supplement section:
Basic Daily Regimin NT Factor Added
Alternative Treatments CITICHOLINE Added
Immune Support Transfor factor Added
For Fatigue Took out "For Fatiuge" section
Other Optional Vitamin D Added
Page 31 "Lyme Disease Rehabilitaion" is rewitten and added to
He mentions Flexcreme (Flex Cream) by Pharmanex as great for body pain
. suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
sorry, link takes you to END vs. beginning, so just use UP ARROW and go to the TOP for detailed info! thanks!
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!
Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.
***************
please go to my newbie links, copy the entire thing, and then print this off....
financial burdens compiled by melanie reber pages 74 - 92; outstanding info there.
also in my table of contents, for FINANCIAL BURDENS, i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences. thoughts and prayers headed your way..
Betty's POSTING GUIDELINES
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
LYMETOO'S DR. C'S EXPLANATION OF WESTERN BLOT TESTING!
PRINT THIS OFF the full explanation, and then CIRCLE the numbers that coincide with your positives, IND! That will explain your no. results!
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