tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
I am thinking of seeing this LLMD. Just wondering if I could get some feedback from those that are seeing him or have seen him. Thanks a bunch!!
[ 02. January 2009, 01:38 PM: Message edited by: laura j ]
Posts: 2541 | From Northeast | Registered: Jan 2008
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Hmmmm, I wonder who that is lol. I'm sure many will pm you with info. I have no experience personally but have heard good things from others.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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posted
He is my doctor. He is a brillant man period. Very aggressive treater. His nurse is the probably one of the most knowledgeable nurses anywhere when it comes to Lyme and its co-infections. She is wonderful!
They accept some insurance plans. Mine for the love of God was one of the ones they accept.
When I called IGenix to ask them a question they spoke very highly of him and said he is one of the best LLMD's around.
He's not the most happy-go-lucky guy but his nurse is. You will deal with her alot. The girls that work in the office are great as well.
He and his staff are up to speed with Lyme. Trust me. They have over 1500 lyme patients. They are quite experienced.
Posts: 59 | From CONNECTICUT | Registered: Sep 2008
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
By the way Laura, I think that technically you're supposed to delete the city name from your post.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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bettyg
Unregistered
posted
but for those of us with lists, having the CITY name sure speeds things up when there are many llmds in a state!
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I have recently had a very bad experience there, and I would caution anyone about going there.
He is a great doctor, but his nurse is now completely overwhelmed with their increase in patients over the last few months.
I laid out $1,000 for two visits with him. He was extremely helpful in getting me diagnosed with things, ordering tons of tests I hadn't had before, and laying out a treatment plan.
That's where it ended. He gave me a written script for IV Rocephin, prescription for Actigall, but his nurse NEVER set up my IVs.
It has now been TWO FULL MONTHS. We have called repeatedly, faxed letters there, my Visiting Nurses have called repeatedly, my PCP has called. I got a few return phone calls from Betty, in my opinion she was just overwhelmed and couldn't get to me. She sometimes gave some lame excuses that were frankly transparently untrue, and inconsistent. Then she simply stopped returning all calls.
My original PCP, Dr. P in Wilton, who referred me there for IV therapy, told me to go to another doctor. There are MAJOR problems in Dr. W's office now.
What good is it to undergo a zillion tests and lay out all kinds of money if no one will make a couple calls to order you IV antibiotics? It is nothing short of malpractice.
I now have an appointment with Dr. L in MA for January 19. She has given permission to use her name publicly. She is brand new, trained under Dr. Horowitz, and the people who have seen her so far are blown away by her.
I can't wait to get to her and FINALLY start my real recovery after 4 1/2 years of this nightmare.
She is at the Marino Center if you are trying to locate her, or I have posted her phone number in the last month or so in Seeking a Doctor...again, with her full permission.
NOTE: Permission or not, LymeNet rules CLEARLY state "No posting of doctor's names..." Lou B
[ 02. January 2009, 09:07 PM: Message edited by: Lou B ]
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
How ironic Tracy! I also have an appointment w/Dr. L at the end of January! Please let me know how your appointment goes as you are seeing her first. My appointment is 1/27. Good luck!!!
[ 02. January 2009, 09:08 PM: Message edited by: Lou B ]
Posts: 2541 | From Northeast | Registered: Jan 2008
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I took my daughter to see Dr. W as a Lyme-literate Neurology consult. My daughter has been under the care of 2 Neuro's in NYC, who have been great, but obviously do not "get" the whole idea of Lyme/Co-infections. I wanted to see if he picked up on anything they may be missing.
My daughter ended up having a seizure in his office, he was nothing short of professional and jumped into "ER" mode very quickly. His nurse kept me calm throughout the ordeal, for which I was grateful.
He spent SO much time with us(4 hours!) He was focused on my daughter and her situation, he gave us his complete attention.
We met a girl in the waiting room who had been bed-bound and very ill for 3 years, who is now walking around perfectly! She looked great. It gave me a little bit of hope for my daughter.
He agreed with our NY LLMD's current treatment plan, but also made a few suggestions as well.
He has been an active part of our "team" over the past few months. He's very caring.
Best of luck!
Posts: 371 | From CT | Registered: Jun 2008
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posted
He has been a great asset to my care and treatment. He did a ton of tests, but those helped me believe that I HAD Lyme/TBDs and not some other untreatable neurological disorder.
He gave me the BEST physical exam I've ever had and found all sorts of problems other docs didn't check/missed/or didn't tell me about.
But I agree with Tracy9 that his office is not run well. I think I called him 10 times requesting a copy of a receipt.
He isn't my only LLMD so it is OK. My PCP ordered the IV at his suggestion, since I'm in RI. I think it is essential to have a reachable MD when on IV. As a neuro, he might have pull to get another MD to prescribe IV at his suggestion and do the follow-up.
Good luck Tracy!!! I'm thinking of you!
Allie
Posts: 300 | From Northeast | Registered: Dec 2006
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posted
I think he is a great Dr, but has a bad support staff. It's too bad because he is very knowledgeable and detailed. Does all the right things-- but does not have good office support.
We referred appx 15 new patients to his office and have been told they are overwelmed with new patients.
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but for those of us with lists, having the CITY name sure speeds things up when there are many llmds in a state! ![[group hug]](graemlins/grouphug.gif)
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