posted
Anyone get this? I have had this in the past before being treated. Then I wasn't considered chronic and shortly after received doxy for 21 days. Currently I am taking cefuroxime and I now have had at least 3 attacks since I started taking it about a month ago. Tonight I just had 2 row, which has never happened before and I am scared there is another one brewing.
The pain.. extremely painful. Feels like there is a fist twisting and turning. I get a weird sensation to by back up to my neck. Tonight I did throw up, I believe from the pain and after the attack I was sweaty and had ringing in my ears. Walking to the bathroom I almost did pass out. Shortly after the second wave came. Cold sweat as well. I wanted to just pass out and not feel the pain.
Just curious if this could be something more. Lymes has affected my heart in the past. Not sure if this is all related?
Posts: 60 | From WI | Registered: Nov 2008
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
It could be heart pain. Or it could be an inflammation in the joints where your sternum and ribs meet. Costrochondritis. Very painful.
What ever it is. You need to be in contact with your physician. This is a symptom not to ignore. Especially with being lightheaded too.
Best, Karen
Posts: 1844 | From Maine | Registered: Jun 2004
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
jl, I've been having this sx for the last few months. I've been at this lyme & co for ten years.
This was a new sx for me. It started after I started a protocol of levaquin. I was about three weeks into the month treatment. So I ignored it for several weeks.
I thought it was probably just a result of levaquin getting to some bacteria in heart/lungs/rib bone?????
After it hung on I went to my PP and he ordered a bunch of heart test. All negative. So I thought I'd just wait this symptom out and maybe it would go away on it's own, like many have over the years.
I also describe this as a fist in my sternum area, pain that raises up to my neck and then down through both my arms. It comes and goes.
Sometimes with activity, sometimes at rest. It really scares me. I'm going to make appt for this week with PP and let him know I'm still experiencing.
I've had anxiety attacks before. This symptom is nothing like those.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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I am going to go to my reg. dr today. They said they are going to do some test probably due to my history with the heart problems as a result of lyme in the past.
I still feel funny today. The back of my neck is all numb/tingly feeling.
Posts: 60 | From WI | Registered: Nov 2008
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posted
I have this kind of pain as well. Have had heart tests that came back normal too.
It happens during a herx and is accompanied by profound fatigue along with difficulty breathing.
I sometimes wonder if it's lung related. Is it a babesia symptom?
Posts: 677 | From Virginia | Registered: Sep 2002
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
I've had a mild version of this, all my symptoms being mild. It felt like a cramp starting in the sternum and radiating up the esophagus muscle as far as the jaw. I would say ow, ow!
I used to get this 3 times a year while on abx.
Some people here said that symptom was Babesia for them, and i believe it was Babesia.
Posts: 1226 | From USA | Registered: May 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Please please please.
If you have heart symptoms or something like what this poster describes...
GO TO THE EMERGENCY ROOM IMMEDIATELY!
The INTERNET can't help you if you are having a heart attack!!!
You should NOT be posting.. you should be calling 911 if you have chest pain and these symptoms.
READ the symptoms here that the poster listed.
Chest pain, back and neck pain, vomiting, sweating, ringing in the ears, feeling like going to pass out... and all this with a HISTORY of previous heart problems related to Lyme.
PLEASE do not guess as to what this person may or may not need when they say the words, chest pain. PLEASE tell them to go to the ER immediately.
That and only that is the responsible thing to do.
If he/she isn't having a heart attack, no harm done. But we are NOT doctors and posts like this should immediately send up a RED flag for everyone.
We don't mess with heart issues or eye issues here. The consequences of playing doctor and being wrong are too great.
THANK YOU for listening.
The person's life you save may appreciate your efforts and concern and good advise... if they live.
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Yeah, my PCP asked me why I waited 4 weeks with these attacks to come see him? I asked him if he'd like to see me weekly for odd sx?
All heart tests came back normal. With special attention to lyme effects on the heart during reading of test. Normal
He told me last week he thinks these attacks are from the sternum bone due to lyme & co, stirred up with levaquin.
These attacks have calmed down now. They are less painful in the sternum (the fist isn't slamming me so hard) and the pain that radiates up my neck and into my shoulders and arms is very mild now.
I've been non abx treatment(mainly) for many years. I was worried that the last organ that hadn't been effected was my heart. That levaquin had stirred it up?????
So I can relate.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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JLC -
So, what's up? Did this work out okay?
I was glad to see you were going to your doctor the day of your last post.
The kind of symptoms you described warranted a trip to the ER - perhaps even a call to 911 for paramedics to evaluate before being stable enough to be taken to the ER.
Often, with lyme, we have to suffer many harsh symptoms. Still, it's important to know the signs of a heart attack and realize that those signs can be a bit different - and women's patterns are a bit different from men's.
I hope you are okay. In addition to the help you needed, I hope you got excellent instruction in how to assess symptoms regarding seeking emergency care.
And while lyme can cause heart problems, the heart can do some things on its own even apart from lyme.
quote:Originally posted by kgg: [QB] It could be heart pain. Or it could be an inflammation in the joints where your sternum and ribs meet. Costrochondritis. Very painful.
could be ... but ... I agree with Tincup...get to the ER immediately!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
Thanks for all the advice. Turns out that I was having some sort of spasams in my esophogus. Something that can be caused by antibiotics. My LLMD took me off of the anti's for a week. I also took Nexium which is commonly used for treating GERD. This did calm things down. The dr said that the spasams have the same symptons as a heart attack. If I get this again with taking this medicine I will be calling 911.
Posts: 60 | From WI | Registered: Nov 2008
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
This was in my email today. Maybe I need to continue pushing my doctor to ensure that there is NOTHING going on with my heart, like TC and Tutu are warning. Pam
Borrelia-like organism in heart capillaries of patient with Lyme-disease seen by electron microscopy Lalosevic D, Lalosevic V, Stojsic-Milosavljevic A, Stojsic D.
Letter to the Editor
International Journal of Cardiology, (Article in Press, Corrected Proof) Received 8 December 2008; Accepted 14 December 2008. Available online 24 January 2009. http://dx.doi.org/10.1016/j.ijcard.2008.12.165
Abstract
A case of a patient who developed an acute myocarditis due to Lyme disease is reported. An increased serum antibody titer to Borrelia burgdorferi suggested a diagnosis and in addition of basic clinical methods, endomyocardial biopsy performed and analyzed by transmission electron microscopy.
The lumen of myocardial capillaries was founded mostly filled with detritus and fibrin precipitate, between them several bacterial fragments were identified. The electron-microscopic characteristics of the microorganisms in this specimen, revealing irregularly coiled appearance and consistent thickness of 0.2 μm, correspond to the spiral-like structure of Lyme disease borrelia.
The presence of fibrin deposits on the capillary endothelium and necrosis of myocardiocytes, suggests that the cardiopathy in our patient was represent borrelia-mediated damage of the hearth microcirculation.
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-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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map1131 - thanks so much for that article. It's hot off the press, too.
You said you found this in your email - do you subscribe to a service that sends you new research?
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
jlc...
Good to hear you got it checked out. THANK YOU!
My mind can rest a little better now.. and hopefully you can too!
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