posted
Has anyone tried IV saline solution and vitamin B-12 shots to help with fatigue? My daughter's doctor is having a nurse come to our house once a week to give her an IV of salin solution and vitamon B-12 shots to try and help with her symptoms. She is pretty much bedridden and too weak to get out of bed. She is also taking Minocycline, 100 mg. per day. She was diagnosed with Lyme 2 years ago and also EBV, CFS and POTS. Her most recent lyme test only had band 41 positive. Her doctor started her on the Minocyline about two weeks ago and I think she must be having a HERX because her symptoms are so severe she can hardly do anything. She is 17 years old and has been home schooled for the past year. She is also taking antidepressants which don't seem to be working anymore. I don't know how much more of this she can take. When I think things can't get any worse, they somehow manage to do so. I was wondering if anyone else has tried the IV saline infusion and if it has helped. Her vitamin B-12 blood test showed that it was on the low side, but not abnormal. Her iron was on the low side and she is taking meds for that. It seems that nothing we try makes her feel any better and her dr. thinks the IV and B-12 shots may help her even if only temporarily so that at least she can feel somewhat normal. We haven't started yet, but will probably do so in the next few days. Any suggestion would be greatly appreciated. Also she took antiobiotics for 2 months about a year and a half ago. So I think maybe she wasn't on them long enough to treat the lyme.
Posts: 11 | From Maryland | Registered: May 2007
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
It sounds like she doesn't have an LLMD? I'm guessing that because 2 months is probably not long enough to address her infection.
Post in Seeking a Doctor, to get some referrals, ok?
As far as B-12 injections go - they have worked wonders for me. I do them daily, and I think it's important to use methylcobalamin with no preservatives.
I get mine compounded at a compounding pharmacy, but insurance covers most of it.
IV Saline would help keep her hydrated which will certainly help her feel better, and help the POTS symptoms, but I think much more than that will be necessary to get her well.
Sending good thoughts your way, Cactus
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
Wow, you were able to get a doctor to prescribe IV Saline treatment? I've begged for that and can't get it. I've gone to POTS experts and all I ever get is drink more water and take Florinef.
However, once a week isn't really enough for someone with POTS. I pee it all out within 24-hours. Is she on Florinef or Midodrine?
I agree, if you don't have a LLMD, find one!
Posts: 23 | From Virginia | Registered: Jan 2008
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posted
My daughter is on IV saline 24/7 at home, she has also taken B12 injections (her level was extremely low- 170. 300+ is normal.) The saline in our case is to keep her from dehydrating, she vomits several times a day and has other issues. It has been helpful. The B12 shots gave her a bit of an energy boost as well. Good luck.
Posts: 371 | From CT | Registered: Jun 2008
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