seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I am carefully charting symptoms each day and putting an overall rating of 1-10 each day on how I felt. I didn't do this my first four months of treatment, but I realized it's important. It's a nice tool. My LLMD recommends it.
It makes you realize where you are better than trying to remember how the last month was in aggregate.
I am noticing an obvious cycle. Every 7 days, I have a terrible day. Monday is usually a 2 or 3. ...today I hit my best day in a long, long time..an 8!! I see it jump from 2 to 3 to 5 to 7 and then boom to 2 again. Interesting, huh? It's so weird. Last Monday, I was wondering thinking life is terrible and why bother. Today, I'm walking aronnd with my wife and functioning better.
I am not pushing to levels of exercise and exertion so the real tests aren't there yet. That'll turn the next day into 1-2 real fast. Keeping in mind that I could barely stand up some days before, I guess it means somthing.
Any thoughts?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
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Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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very cool...i did that same thing. Pattern was pit different and my scoring system different..4 months agao i was 18-20 4 or days donw to 14-15 on good. i an now on 8 and bads days are 11-12.
You are on your way...on the goods day i did the max excercise without overdoing....outside of antibiotics i think the excercse keeps your immune system cranking.
Glad your making progress,
Dave
-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
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TF
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Member # 14183
posted
At some point in my lyme treatment, I noticed a 7-day cycle. I had 48 hours of feeling terrible every week. (I felt exactly like you said--life is terrible; why bother. I would just lay. Wouldn't talk, eat, etc.)
My lyme doc said that babs has a 7-day cycle and a 14-day cycle.
He was treating me for babs when this 7-day cycle occurred. So, he had me add artimesinin on the days I always got sick--Friday, Saturday, and Sunday. (I got sick from Friday evening until Sunday evening. Then, it would be gone.)
It worked great. The first week, it cut the sick time down from 48 hours to only 6 hours. Then, less each week.
Eventually, I got sick only once every 14 days. Then, finally, no more sickness!! End of treatment.
Seems crazy, I know, but there is a scientific reason for this stuff.
Posts: 9931 | From Maryland | Registered: Dec 2007
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seekhelp
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Member # 15067
posted
That is wonderful to hear there may be an explanation to this pattern and that I may be moving forward! Thanks for the inspiration. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Seek thank you for posting this. I know I need to be documenting my days and progress. I have significant brain fog and cognitive problems so the lack of ability to sort out a system has result in no system= no documenting = not good:(
Your post has pointed out to me that I shouldn't wait til I can build a TajMahal of a system...at a minimum I can start now and do a simple 1-10 day scale on how well I feel. Hopefully, I can build it on it from there.
I enjoy reading your posts, and this one has greatly helped ground me....thanks!
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Well...history repeated itself. Another 2/10 yesterday. EVERY Monday is a nightmare and a 2/10. Mon, Tues, Wed is no better than 4/10.
Monday is my worst day by far. I can't function at all usually. Interesting, huh?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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blaze
Unregistered
posted
I feel worse on weekends, too - definitely by Friday evening, sometimes as early as Thursday evening. By Sunday I often feel a little better.
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what format do you use for charting symptoms?
-------------------- ******************************** Thanks and blessings to all who share themselves to ease the way of others Dx: MS 1/2006; Lyme+ 10/2008; in treatment with great success Posts: 22 | From Columbia Gorge | Registered: Dec 2008
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I see it jump from 2 to 3 to 5 to 7 and then boom to 2 again. Interesting, huh? It's so weird. Last Monday, I was wondering thinking life is terrible and why bother. Today, I'm walking aronnd with my wife and functioning better.
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