richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
This is killing me! I can't do certain things, I have to find an answer. Those of you who got better on treatment and had arm, wrist, hand pain - how long did it take to go away? Do you remember what treatment was it that finally killed the pain???
THANKS! Rich
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi Rich -
Babs caused Most of my pain --
The ABX you are on is a Good selection- Add in Artimisinin at some point in time-
Also drink Tonic Water -Daily- 1 liter or More -
the Schweppes Brand is the strongest I have found --
Tonic Water Has Quinine in it -- get the Diet kind - Jay -
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
quote:Originally posted by groovy2: Hi Rich -
Babs caused Most of my pain --
The ABX you are on is a Good selection- Add in Artimisinin at some point in time-
Also drink Tonic Water -Daily- 1 liter or More -
the Schweppes Brand is the strongest I have found --
Tonic Water Has Quinine in it -- get the Diet kind - Jay -
Thanks, but my doctor thinks the Babs is cleared out or at least under control, because most of those symptoms subsided. I stopped the Mepron and Zith, plus the ceftin! I am on the Doxy and Biaxin now.
What does the Quinine do???
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
I get very confused about things since I have a genetic disorder, Hemochromatosis H63D Homo, so can't be sure of what is what.
Doctor's hate it when you have overlapping problems, it is just too hard for them, boo hoo.
BUT, hand involvement that really hurts could be indicative of iron overload.
I and another person that I know of on this board have HH and Lyme, so take it from us you can have both.
Just search "Hemochromatosis hand" and see if it fits.
The initial test is to check your Ferritin level.
As with Lyme, the powers that be cannot agree to include this little test in the basic blood panel workup, even though when caught early, you will never have a problem. Not caught early, arthritis (major hand involvement, I have had carpal tunnel surgery and 4 trigger digit surgeries) and liver cancer are in your future.
FYI, once diagnosed with a genetic test, you will have problems getting health coverage.
Estimates are 1 out of 200 people have it, so it is not "out there". Also referred to as the Celtic Curse.
-------------------- 3 Strains Mycoplasma and Chlymedia 2001. After treatment fine for all 2004. Major symptoms since 2005. Diag Aug 2008 Lyme. 400 mg/d doxy 500 2/d Ceftin Posts: 164 | From Texas | Registered: Jun 2008
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posted
THis is the worst thing overall for me. I have the same pain. It kind of waxes and wanes with me. Try epsion salt bath, ben gay.. i useing doxy sometimes i think it works somethimes not .. i have good bad weeks.......... Do your finger ever feel weird?
I am a Dreamer, Believer, and Conquer; I will overcome this disease !!! Posts: 382 | From Alabama Via PA | Registered: Jun 2008
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Could iron overload be caused by excess iron in the diet or is it always hereditary? I'll ask my doctor this week when i see her.
I have been doing epsom salts and acupunture but no change yet. Maybe I'll look into Lidoderm.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I had severe hand pain, one of my worst areas of pain. After being on treatment for 7 months it is much better. My hands still feel stiff at times but the pain is so much better. I treated with antibiotics, then Malarone. Still dealing with Babesia. Still have overall pain, but not as severe as before.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
quote:Originally posted by sutherngrl: I had severe hand pain, one of my worst areas of pain. After being on treatment for 7 months it is much better. My hands still feel stiff at times but the pain is so much better. I treated with antibiotics, then Malarone. Still dealing with Babesia. Still have overall pain, but not as severe as before.
What abx? I was on mepron, zith and ceftin and now doxy and biaxin. During ceftin treatment, my feet started feeling better and even more so since on doxy and biaxin. still the hand, wrist and arm hurt terribly.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
My arm pain has been a combination of congested lymph in the neck and shoulder, meningitis, general inflammation, and a compressed cervical disk.
My suggestions:
Gentle arm movement drains the lymph. We tend to protect the arm and not move it, so the lymph stays congested. Get it moving, and later when possible, lift weights.
Address the possibility of lyme meningitis.
Take supplements that reduce inflammation.
Massage, Craniosacral therapy, and lymph drainage therapy can help.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
quote:Originally posted by bejoy: My arm pain has been a combination of congested lymph in the neck and shoulder, meningitis, general inflammation, and a compressed cervical disk.
My suggestions:
Gentle arm movement drains the lymph. We tend to protect the arm and not move it, so the lymph stays congested. Get it moving, and later when possible, lift weights.
Address the possibility of lyme meningitis.
Take supplements that reduce inflammation.
Massage, Craniosacral therapy, and lymph drainage therapy can help.
Very interesting. I am noticing, the less I protect the arm, the better it feels. It feels better when I play my guitar and get all the forearm muscles going. I started lifting weights again and it also feels much better at that time....however, I am a little limited because the pain can be so bad in parts of the arm like the wrist!
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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Maybe I'll look into Lidoderm.
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