posted
First of all great news...we have an appointment with a highly praised llmd Feb. 9th. Our family doc has agreed to work with him in whatever treatment plan he comes up with.
I talked with the scheduling person today. When I asked her if my wife should increase her dosage of doxy (prescribed by our family doc) the receptionist said two things:
1. The doctor won't give any medical advice before seeing your wife. (I understood)
2. Then she said that any abx she's currently taking will sku the results of any tests that the doc may want to give.
I told her that my wife has had two tests already She had two reactive bands: IGG and IGM.
She then said, "Oh, Okay." I kick myself for not asking a follow up question, "well, is it okay to continue taking the doxy?" I didn't!
Finally...My Question: Do you think the LLMD will want to run any addtional test?
We will be traveling 8 hours to get there so we want to get the biggest bang for our buck.
Thanks for any input you may have. Connections
[ 12. January 2009, 10:16 PM: Message edited by: Connections ]
Posts: 15 | From Midwest | Registered: Jan 2009
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posted
Most LLMDs do run their own testing, regardless of any testing you have already done, at least in our experience. My daughter had been on short-term IV abx. for weeks before seeing the LLMD for the 1st time, she still tested positive, but we were also warned it may skew the results prior to the testing. There's nothing you can do about it, just hope for the best. Good luck!
Posts: 371 | From CT | Registered: Jun 2008
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bettyg
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posted
connections, please send me a private message, going to my post here, and click on 2 people standing together.
which llmd are you going to? S. MISSOURI ??
if yes, he'll send you 20-30 page questionnaire and complete it in detail !! he'll use all info and many tests done won't have to be done again; that's what i've heard from from who go there .... i've NOT been there.
see link below about 1st office visit too!!! -------------------------------------------
i don't remember if i sent you my welcome or not since board has been DOWN MORE than up, so if this is a repeat, my apologies
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
DebAZ's 12.08 comparison of 05 to 08 new guidelines:
Differences in newest Guidelines compared to 2005 Guidelines
Page 25 26 and 27 Added section "Sorting out the co infections"
Page 28 New info given to get supplements from additional places
In all areas of Supplements there has been various changes and additions to each description and i advice people to re read the full supplement section as well the following additions to the whole supplement section:
Basic Daily Regimin NT Factor Added
Alternative Treatments CITICHOLINE Added
Immune Support Transfor factor Added
For Fatigue Took out "For Fatiuge" section
Other Optional Vitamin D Added
Page 31 "Lyme Disease Rehabilitaion" is rewitten and added to
He mentions Flexcreme (Flex Cream) by Pharmanex as great for body pain
. suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
sorry, link takes you to END vs. beginning, so just use UP ARROW and go to the TOP for detailed info! thanks!
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!
Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.
***************
please go to my newbie links, copy the entire thing, and then print this off....
financial burdens compiled by melanie reber pages 74 - 92; outstanding info there.
also in my table of contents, for FINANCIAL BURDENS, i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences. thoughts and prayers headed your way..
Betty's POSTING GUIDELINES
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
LYMETOO'S DR. C'S EXPLANATION OF WESTERN BLOT TESTING!
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
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posted
My LLMD was happy I had already done Lyme testing for myself and my daughter through IGeneX and had copies of the test results with me. He did not repeat the Lyme tests.
I suggest you take with you copies of all recent tests that have been done, including blood work like CBC.
Also, I think he will be fine with your wife already on Doxy. He may want to test fo other things. Tests are usually extra costs - so I'm not sure about the "bang for the buck" idea you have.
If you are going to test for co-infections, it may be better cost wise to have your wife's blood drawn at your PCP's office.
Check with the LLMD as to which Lab to send the blood work off to.
Then call the Lab and get "test protocol" from them. They will tell you what to do to get best test results. They will also send the test kit to you.
Good Luck! -p
Posts: 641 | From So. CA | Registered: May 2008
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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