posted
My Lyme/bart symptoms have been primarily neurological (along with fatigue and some pain).
Mostly it's word finding, writing, speaking. Lately I've had two bad "episodes" that I think might be simple partial seizures.
The other night I forgot how to climb stairs. I just couldn't figure out how to do it.
And then I had a very bad word night. I could see words typed out in my head, but could not speak them. Amusingly enough, in an academic "meta" kind of way, I forgot the word for "word."
Then I discovered that while I couldn't speak English, I could still speak in broken French (from my college days).
Unfortunatley, my husband doesn't speak French, so it wasn't much help. (We got a good laugh out of this.)
During both incidents, it felt like this energetic electrical storm in my brain. And afterwards, I was very tired and groggy.
I am fairly certain that this is Lyme (and possibly herx) related.
I have a good LLMD and we are working on treatment.
So is there any point in seeing a neuro? (There is a Lyme friendly, but not literate, neuro in town.)
While it would be interesting on an intellectual/curiousity level to see what's actually happening neurologically, I don't know if it's of any benefit. (Other than curiousity.)
My insurance is good and very happy to pay for specialists and conventional (read: non-Lyme) tests, so money isn't a problem with this issue.
Thoughts?
Thanks, AnnaL
Posts: 398 | From By the Salish Sea | Registered: Dec 2008
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posted
ask your LLMD if he/she works with a neuro. They often do have association with a neuro who is Lyme educated. Otherwise I fear you will simply be processed to Lyrica or Neurontin.
I think if you have not had a brain MRI you should get one. Your PCP should be able to process this request through insurance just based on your symptoms - without regard to Lyme as a possible cause. -p
Posts: 641 | From So. CA | Registered: May 2008
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posted
Have you tried the Buhner protocol? You might herx a lot, especially on the andrographis, but it seems to address some neurological stuff.
It gets rid of stuff like filarial worms, which are in tick stomachs but aren't always killed by antibiotics.
My mental function improved tremendously after that protocol although I was just doing it because of arthritis.
I don't think people realize how many other things ticks carry n their bellies besides the obvious things like Lyme, bart, babs, and ehrlichia.
Probably a lot of what people think of as lingering Lyme is due to the long-term effects of other, slower-acting organisms.
Just a thought.
-------------------- Just because it' s not nice doesn' t mean it' s not miraculous. --Terry Pratchett Posts: 121 | From Nazareth, PA | Registered: May 2008
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