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Those of you who have had ear pain or dental pain that you thought was related to lyme or any of the coinfections---after you went on abx did it improve? I'm wondering if I will still have to take something to manage the pain after abx treatment. I read so many people whose stories are so much like mine, dental implants, cavitations, TMJ,enrelenting pan pain. Is there any hope even with long term abx treatment?
Posts: 199 | From utah | Registered: Jan 2009
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It must be the brian fog. I wrote pan pain, when I meant ear pain. What are sweet oil drops and where do you get them?
Posts: 199 | From utah | Registered: Jan 2009
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Keebler
Honored Contributor (25K+ posts)
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This is just one place. Herb Pharm also may make one. I'll check my cabinet as I have many types there.
Ingredients: Extra Virgin Olive oil, Fresh Garlic cloves, Calendula flower, Willow bark, Usnea lichen and Vitamin E oil.
. . .
Directions
Shake well. To warm, place entire bottle in warm water. Test on inner wrist before using to assure safe temperature. Always use warm. Apply 3-5 drops in both ears as needed, up to 5 times a day. Cover with clean dry cotton.
Warnings
Do not use if eardrum is perforated. Always apply to both ears. For external use only. Do not drink. Not intended as a substitute for professional medical care. . . .
Keebler
Honored Contributor (25K+ posts)
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posted
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Back to your main question: It can take a while and ear (or TMJ) pain can have many causes. Both are very common with lyme.
I had ear pain, terrible ear pain, for over 20 years since I first got ill with "mono" that never would go away. After the lyme + co. dx, and much work - the pain is better.
I never was able to see a LLMD or be on a full abx protocol. But I've done a great deal with specific herbal formulas as best I can afford.
Sounds still hurt my ears terribly and even trigger seizures, so I still have a long way to go. However, that constant ache is long gone.
Many here who have had ear or TMJ issues do find that it improves after treatment. However, be aware that some drugs and some over the counter products can be toxic to ears. Aspirin, even, can be ototoxic.
(If anyone reading this smokes or consumes alcohol, both can be very hard on ears, making recovery nearly impossible.)
Unless your hearing is in immediate danger, avoid steroids in all forms. Many ear doctors like to use them but they can make lyme blossom. Still, if ears, eyes, or a life are at risk, there are ways to increase safety during an emergency steroid use. See Burrancano's 2008 guidelines for that:
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links
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Going back to re-read your post, you mentioned cavitations. Have you had imagery to show that?
If you have cavitations it is important to address that. Although I had 2 wisdom teeth removed, all my scans are fine so I know very little about that part of this.
Others will come along with more. You can search for past posts from "GiGi" and cross search with "cavitations" as she has posted good stuff in the past.
You can also Google cross search: "cavitations, Klinghardt" and you might find some info.
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I had seven confirmed cavitations surgically repaired. I knew nothing about lyme at the time. I've since had two root canal teeth removed and all amalgam fillings replaced. Since my earliest days of being sick (FEB 2000) These were among the earliest attempts to regain health. Each thing I did made things a little better----for awhile---but something would always come back.
It has only been in the last few month that I began to look into Lyme, thanks to neurologist's suggestion.
There are no LLMDs in Utah and I have not the financial ability to go to one in some other state right now. I can't take food from from children's mouths to treat myself.
I feel like if I could end the ear pain, I could deal with the other, maybe that's too simplistic, but I haven't found anything yet or much encouragement here either.
Posts: 199 | From utah | Registered: Jan 2009
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Keebler
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All understandable.
Have you been tested for lyme?
Have you been clinically assessed by a lyme expert (physical exam and history).
Did you EVER have a bulls eye rash &/or known tick attachment.
(Not everyone gets the rash but it is a clear indicator. Not all ticks are infected and not everyone remembers a bite. Still, it's helpful information if illness began around the time of one.)
If you have insurance, some LLMDs do take that. Can you contact your local lyme support group and ask for lyme-friendly doctors if there are no LLMDs near you?
Do you have friends or relatives in a town with a LLMD? Perhaps you could stay with them for a few days.
While there may be some things you can do on your own, I firmly believe that a proper clinical assessment with a LLMD is best. From there, you would have a few different paths but you need to have someone with experience help you figure this out.
It may not be lyme. It may be. There are also many other similar chronic stealth infections that might need to be considered and a LLMD know more about those than most other regular doctors.
Still, if you can't get to a LLMD, you might also contact your local CFS support group and see if any members are being treated for HHV-6, Mycoplasma or similar infections. Doctor who treat them might be able to offer you help.
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From your post in "Seeking a Doctor" I see that BettyG sent you many good links.
In addition, these books below may be helpful -- in the meantime, you might see if magnesium glycinate (or citrate) and allicin capsules help.
Avoiding wheat, dairy, corn and soy is also a very good idea as they can produce more phlegm and that increases ear pain. The very best of health habits is vital. Be sure to get enough good quality sleep, too, and gentle exercise (but avoid aerobics until you see a doctor). [More about that in Dr. Burrascano's guidelines that BettyG sent to you.]
I might make the assumption that your being in Utah would be fairly free of mold, but be sure to check your house and car. Mold exposure can cause ear pain.
Best of luck to you.
This book, by an ILADS member LLMD, holds great information about treatments options and support measures:
posted
bwillis! I realized I forgot to give you my phone number in my reply! It won't let me reply again until you reply back. Oops! Please reply back and I will give you my phone number. Thanks!
Posts: 33 | From Utah | Registered: Mar 2008
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bwillis! I realized I forgot to give you my phone number in my reply! It won't let me reply again until you reply back. Oops! Please reply back and I will give you my phone number. Thanks!
Posts: 33 | From Utah | Registered: Mar 2008
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posted
bwillis! I realized I forgot to give you my phone number in my reply! It won't let me reply again until you reply back. Oops! Please reply back and I will give you my phone number. Thanks!
Posts: 33 | From Utah | Registered: Mar 2008
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posted
lorenzfam -I got your PM and phone number. Does this Dr. you are working with follow Dr. B's protocol or is it something different.
There is no way I could go to S.C. for treatment but I have found a Dr. is a little open but very cautious and very slow, he does like to do anything without good reason.
Posts: 199 | From utah | Registered: Jan 2009
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Keebler
Honored Contributor (25K+ posts)
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ILADS has training for doctors. you doctor may be interested.
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