posted
Tremendous muscle twitching sort of "pulsating" and vibrating all over! My toes are moving back and forth. Fatigue, ears feel "clogged", pale, a little dizzy.
Does it treat my Lyme? OR is it the bart or babs that are herxing out?
Added Bactrim to a regimen of Mepron, Zith, Plaq and pulsed Art, that made me quite well, BUT it doesn't cross BBB that well, as Bactrim does!
So maybe those spirochetes in the head are getting a hard time???!!! Posts: 347 | From sweden | Registered: Feb 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
I'm having the same issue....herxing on Bactrim.
About 5 hours after I take it, my skin gets hot to the touch and I feel sort of flu-like.
Does anyone know what disease I could be killing from skin being hot to the touch? (I don't have a thermometer)
Then, when I stand from the sitting or laying position, I get a bad headache.
I am in your shoes, I wish I knew what I was killing!!!!
I'm taking it with Zithromax, Minocycline, and artemisinin, but only the Bactrim DS (and those symptoms) are new.
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
My doctor gave me Bactrim DS for Bartonella. It has worked wonders for me.
Robin
Posts: 276 | From Maryland | Registered: Dec 2006
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Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
Bactrim kills Babs and Bartonella.
Your responses could be from either Babs, Bart, or you may be allergic to sulphur or bactrim or intollerant to the drug or it may be set at the incorrect dosage for you.
Personally until I have my Genelex genetic test back I am not adding or changing any drug as how the hell do we know if it's drug or bug???
At least if we know we are not intollerant to the drug then we feel safe in the fact that its not the drug and also how do we know if we are a normal/moderate or slow metabolizer? until we know that how can the correct dosage be set???
I personally think this test is a must for any doctor/patient as with this available you never have to `guess' what medication or dosage to give a patient.
I am prepared to take any medication to treat my Lyme and co-infections but have always been uneasy taking medication that I have no idea I can tolerate or metabolise and now this test is available I need to ensure I am dosing and giving my body the correct medication and at the correct dosages, as understandably this takes a large amount of anxiety away from the patient, knowing that any reaction you have will be die off/herxheimers reaction and not a drug reaction or intolerance.
posted
I got extremely fatigued from Bactrim and I blamed it to a herx. But the fatigue remained for many weeks after the treatment and it took be about 3 months to recover from it.
I had the same test done that Rianna mentiones and it shows that my liver has trouble to detox Sulpha drugs.
So, be careful. If the "Herx" lasts longer than a few days it might well be that you are poisoning yourself with a drug that you cannot metabolise.
Gabrielle
Posts: 767 | From Germany | Registered: Feb 2004
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Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
Hey Gabrielle,
Did you have the DetoxiGenomic Profile done to determine your ability to detox or the Genelex profile to determine what drugs you can take and metabolize.
Im interested to know cause I am having both done but then need an expert to interpret them - can you PM me
X Rianna
Posts: 1172 | From UK | Registered: Jan 2007
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Bartonella is the common culprit. I didn't know Bactrim worked on Babesia. I thought Babesia was a protazoa, and Bactrim is only antibacterial?
News to me, that's pretty cool if that's true.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All
Bactrim dose fight Babs -- helped me alot- also give the second worst herx reaction that I have had--jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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posted
Thanks for your input! Yes I feel this could be a babs herx. that pale face, the extreme fatigue and the extreme night sweats. Also fluttering ear stuff. Strange and "off" feeling.
Posts: 347 | From sweden | Registered: Feb 2008
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
quote:Originally posted by METALLlC BLUE: Bartonella is the common culprit. I didn't know Bactrim worked on Babesia. I thought Babesia was a protazoa, and Bactrim is only antibacterial?
News to me, that's pretty cool if that's true.
I believe it does. There is someone on here that used it for Babesia before Mepron was out (I think it was Mepron!) and it really helped get rid of a lot of the Babs.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
It works on toxoplasmosis too....very similar xs to babesia....
Posts: 347 | From sweden | Registered: Feb 2008
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Bactrim hits bart and babs (it does have some effect on protozoans).
After a hefty herx, I feel better and better when on Bactrim.
Will be adding it again this weekend - and actually looking forward to it.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
I've always had significant muscle twiching after starting treatment too.
Also have the Bart. Ears/eys...back of eyes front of brain/forehead= feel all clogged, foggy, and I'm SOOOOO friggin' DIZZY! So dizzy that it scares the **** outta me sometimes. I have panic from it.
I think Zithromax and or rifampin does a good job increasing twiches for me.
Posts: 269 | From Valencia, CA | Registered: Aug 2007
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posted
Toxoplasmosis, the more I read about it the more I am convinced that The lyme has made this infection active again.
The symptoms mirror Babesia infection, (night sweats etc) but also involves lymph nodes to enlarge (lake bart...) and causes cranial nerve disturbances (like lyme...) and twitching (like Bart and lyme) low grade fevers also.
This must be the case that Bactrim is so hard on me. Treats parasites.
Posts: 347 | From sweden | Registered: Feb 2008
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posted
FWIW, I hardly felt any herx from bactrim whereas I most certainly do from other abx.
Posts: 727 | From USA | Registered: Mar 2006
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Bactrim made me herx big time too. Especially when I upped the dosage to TWO tablets a day. Made me encredibly sick and I had to back down.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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