LymeNet Flash: Starting week 8 of IV Rocephin report

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Starting week 8 of IV Rocephin report

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Topic: Starting week 8 of IV Rocephin report

mookiewill
LymeNet Contributor
Member # 14743

posted

Week 1 - whole body muscle aches. Headaches, heart palpatations.

Week 3 - more tired and fatigued, but can get up better. Blurry vision. Lost balance at bathroom sink, cut forehead.

Week 5 - Can feel it in my spine, neck, and back of head. My hands get weaker. The Rocephin is getting into my spinal cord and lower brain.

Week 6 - Clamly palms and feet. Harder to get around with walker. My writing is getting bad.
Eye focus problems. Fell backwards, re-opening forehead cut.

Week 7 - My left knee aches several times a day. Back and neck are sore. Can't stand very long. Lost bladder control a few times just as I was getting into position to urinate.

Week 8 - Walking with walker slow and difficult.

My Dr. started me on essential oils to help rebuild the myelin sheath because of supected demyelination.

Hug,
Will

[group hug]

Posts: 111 | From Mid Michigan | Registered: Feb 2008 | IP: Logged |

shelly23
LymeNet Contributor
Member # 16124

posted

Oh my are you getting better this sounds awful... best wishes are you worse now or before iv meds

--------------------
Shelly
~ IGM~Positive
CDC Positive
23-25 +
31+++
34++
41+

I am a Dreamer, Believer, and Conquer; I will overcome this disease !!!

Posts: 382 | From Alabama Via PA | Registered: Jun 2008 | IP: Logged |

mookiewill
LymeNet Contributor
Member # 14743

posted

About the same but worse. Dr. says to keep going.
I think it was a good sign that my spine and back of my neck were sore. Taking a shower is difficult. I hate feeling dirty.

Posts: 111 | From Mid Michigan | Registered: Feb 2008 | IP: Logged |

mookiewill
LymeNet Contributor
Member # 14743

posted

Week 11 or 12 now. Doc stopped Doxy and added Flagyl.

Ramped up Flagyl to 750 mg a day.
Also changed IV Rocephin to once a day.

Flagyl makes me so tired. My whole body hurts. [dizzy]

Posts: 111 | From Mid Michigan | Registered: Feb 2008 | IP: Logged |

Tracy9
Frequent Contributor (1K+ posts)
Member # 7521

posted

Week 1: Feeling better.
Week 2: Feeling even better.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005 | IP: Logged |

sammy
Frequent Contributor (5K+ posts)
Member # 13952

posted

Hugs to you Will:) I hope you start feeling better soon.

Posts: 5237 | From here | Registered: Nov 2007 | IP: Logged |

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