Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Keep in mind also, if doxycycline never really helps you, you might want to ask your doctor about switching to minocycline or tetracycline.
Your doctor may prefer doxycycline, but if it isn't helping you, I would insist on trying something else. Some people do well on doxy, but I personally feel I wasted time on it.
No sense suffering like that and not seeing relief, in my humble opinion.
Minocycline has been a good drug for many, and it seems like it would be an easy switch. My doctor says the name brand (Minocin) is superior to the generic, so if your doctor is willing to write for the name brand only ("Dispense As Written" or "Do not Substitute"), that may be a good way to go.
If you have a doctor that is willing to listen, please don't be afraid to push him/her to try new things if you are not improving.
You will be in my thoughts.
Posts: 4590 | From Midwest | Registered: Jun 2008
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Hey bwillis, I just got this on email. Maybe when you feel really down it will inspire you:
groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All-
I bet I speak for Many if not Most people here that we all have thought about ending all the pain-
Personally I have been sick for over 20 years- for about 10 years I would pray that I would just not wake up every morning - and thought about killing myself Many times Every day --
3 years and 30 days ago I made myself a promise that that if in One year I had not made any progress that I was going to end all the pain by hanging myself out in my work shop - I set the date of January 6th -
I set up the rope and got everything ready because there was Many days that I was just to sick to even stand up or walk at all -
I called my parents and told them that at some point I was just going to have to end all of this pain -
Before I got sick I had a IQ of 160 and had started 3 business and always had a couple of thousand dollars in my pocket -
By the time I had Promised myself to endure just One more year of pain I was pennyless and the state was going to take my house away because I owed 3 years of back taxes-
All of my cloths were just rags and the shoes I was wearing I found at a bus stop-
I had lost Everything- my Kids my wife- and everything I had worked very hard to get-
I had to run off All of my friends because I did not want them to see me as I was withering away -
My IQ was about 50 and I would just walk around in circles in my room because I could not remember what I was just going to do-
I would only leave my home about 4 hours a month when I had to go to the store to get a bag of 42 cent pot pies because it was all I could afford to buy and had the mental focus to cook --
Before I got sick I raced Motocross in the 250 Expert class for many years and won a trophy in All but 3 races I ever did because my bike broke down -
At the age of 23 I arm wrestled the worlds champion on TV - I lost but that was the only time I was ever beaten
3 years ago I was so sick I could not even stand up long enough to brush my teeth so I lost 4 of my back teeth- One of which I had to pull my self-
Now 3 years and 30 day later I am up running around -I ride my bicycle 15 miles aday-
I started a new company and am making some money selling something I designed on Ebay-
Im not making big money now but I did it once before so I can do it again--
My IQ most likely will never get back to where it was but thats OK -
I getting ready to shoot a movie that I wrote in my mind threw the years while wrenching around in pain while laying in bed-
I still have a bad day every so often but I am totally pain free and have a perty high energy level-
A few months ago I had to watch my Mom die from cancer -- the doctors had given her Zero chance of getting threw it and she was in Horrible pain-
The night she died I had made up my mind that I was going to give her a lethal dose of morphine because I knew what she was go threw-
She sure did not deserve to be put threw all of this over living a few more days-
Luckily she died before I had to do this- My Mom had a Great life and Truly lived the American Dream --
The dissension to take Your life is up to You-
But let me tell you that with Good treatment- A Positive attitude and some Luck you can get threw this and have Many years of Life Love and Fun to enjoy --Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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1Bitten2XShy
Unregistered
posted
So well said Jay....right from the heart
IP: Logged |
posted
jay, thanks for sharing your very painful, almost suicidal story, that i don't think you have ever shared before on this board during the time i've been reading it. so glad you were able to OVERCOME the bottom of the barrel.
oxygen, i just love that video; i've received it over and over! he is so inspirational!!
willis, so glad you keep us posted, and knowing we all care about you; you recent "newbie"!!
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Metallic - great song, I've always liked it.
Jay - WOW!! What a story! You know you're such an inspiration to all of us here. Thank you for sharing such a personal journey and giving us all hope!
Lauren
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
| IP: Logged |
posted
bwillis, I am praying so hard for you right now, every minute I'm awake, you and everyone else in your predicament. Hopelessness is almost as evil as pain.
Please, make a list of the good things in your life, and then post them where you can see them often. Smile, even if it hurts!
I find I get really depressed when I'm just laying around all day just trying to make it to tomorrow. I've found that if I set a goal at the beginning of each day, accomplish it, and then at the end of the day I feel like I've at least done something. The goal can be as little as getting up and brushing my teeth twice a day, or hugging someone I love.
I also try to find things to look forward to. Looking back, or even looking in the present is sometimes too much to handle. All the doctoring, with conflicting ideas of how to help me, that all gets really hard to handle.
Please close your eyes, relax and breathe deep. Think of every muscle in your body from your toes to your head. Then feel the arms of all of us wrapping around you in a hug of love from the deepest parts of our souls.
God bless you, and all of the people who have lost hope. May you find love from those around you, and doctors that know how to heal you as your angels watch over you all day and all night.
In His care, Jenn
-------------------- When given lyme make lymeade! A tick check a day keeps lyme away! [email protected] Raising awareness by creating as many lymebassadors as possible! Posts: 158 | From Northern Wisconsin | Registered: Oct 2005
| IP: Logged |
lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
quote:Originally posted by groovy2: Hi All-
I bet I speak for Many if not Most people here that we all have thought about ending all the pain-
Personally I have been sick for over 20 years- for about 10 years I would pray that I would just not wake up every morning - and thought about killing myself Many times Every day --
3 years and 30 days ago I made myself a promise that that if in One year I had not made any progress that I was going to end all the pain by hanging myself out in my work shop - I set the date of January 6th -
I set up the rope and got everything ready because there was Many days that I was just to sick to even stand up or walk at all -
I called my parents and told them that at some point I was just going to have to end all of this pain -
Before I got sick I had a IQ of 160 and had started 3 business and always had a couple of thousand dollars in my pocket -
By the time I had Promised myself to endure just One more year of pain I was pennyless and the state was going to take my house away because I owed 3 years of back taxes-
All of my cloths were just rags and the shoes I was wearing I found at a bus stop-
I had lost Everything- my Kids my wife- and everything I had worked very hard to get-
I had to run off All of my friends because I did not want them to see me as I was withering away -
My IQ was about 50 and I would just walk around in circles in my room because I could not remember what I was just going to do-
I would only leave my home about 4 hours a month when I had to go to the store to get a bag of 42 cent pot pies because it was all I could afford to buy and had the mental focus to cook --
Before I got sick I raced Motocross in the 250 Expert class for many years and won a trophy in All but 3 races I ever did because my bike broke down -
At the age of 23 I arm wrestled the worlds champion on TV - I lost but that was the only time I was ever beaten
3 years ago I was so sick I could not even stand up long enough to brush my teeth so I lost 4 of my back teeth- One of which I had to pull my self-
Now 3 years and 30 day later I am up running around -I ride my bicycle 15 miles aday-
I started a new company and am making some money selling something I designed on Ebay-
Im not making big money now but I did it once before so I can do it again--
My IQ most likely will never get back to where it was but thats OK -
I getting ready to shoot a movie that I wrote in my mind threw the years while wrenching around in pain while laying in bed-
I still have a bad day every so often but I am totally pain free and have a perty high energy level-
A few months ago I had to watch my Mom die from cancer -- the doctors had given her Zero chance of getting threw it and she was in Horrible pain-
The night she died I had made up my mind that I was going to give her a lethal dose of morphine because I knew what she was go threw-
She sure did not deserve to be put threw all of this over living a few more days-
Luckily she died before I had to do this- My Mom had a Great life and Truly lived the American Dream --
The dissension to take Your life is up to You-
But let me tell you that with Good treatment- A Positive attitude and some Luck you can get threw this and have Many years of Life Love and Fun to enjoy --Jay-- [/qb]
groovy what a truly positive outcome! Many have gone through this and still I have not regained my strenghth or mental stamina/tolerance.
What helped you improve the most?
[ 02-26-2009, 04:16 PM: Message edited by: lymeHerx001 ]
Posts: 2905 | From New England | Registered: Sep 2004
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I think Jay left this board forever over a post that mistakenly was moved. He never came back!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Is Jay groovy?
Posts: 2905 | From New England | Registered: Sep 2004
| IP: Logged |
Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Jay, that was beautiful. If lyme didn't kill you, nothing will!!!
There are many too many survivors of lyme here in this board. You are CERTAINLY ONE.
You have fought beautifully, and you're certainly an inspiration. I hope bwillis won't do the final gesture and read what you wrote.
I think after having fought the medical system, healthcare, lack of money, total lack of health, of friends, of support, and still surviving and now thriving as you are, this is the best lesson of life you could get and give to someone.
There are many like you here in this board, many lyme survivors.
Bwillis, you aren't alone!!! There are alternatives, and ways to get on and having your life back.
Posts: 6200 | From Brussels | Registered: Oct 2007
| IP: Logged |
posted
I remember when my brother was fighting his battle with advanced colon cancer and he was having a bad day, feeling just awful.
When I told him how sad I was that he felt so horrible, he said, "that's okay, I'm sure those cancer cells aren't feeling very good right now, either."
I try to keep this in mind on my (frequent) bad days.
Hang in there, there is ALWAYS hope and you are not alone....
sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Is anyone in touch with Jay or bwillis? I was thinking about bwillis & wondered how he was...
Please let us know.
I hope Jay will come back, too...
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
| IP: Logged |
bettyg
Unregistered
posted
jay is back; last post was 2 days ago!! yes, he took a little time off here.
I'VE BEEN IN CONTACT W/WILLIS, and gave him some more llmd info for his area that i had OVERLOOKED the first time. he was going to schedule an appt. and very appreciative OF ALL THE COMMENTS ABOVE helping him.
it's extremely hard on his family too, and he feels bad for that as well!!
we helped him OVER HIS HUMP! told him we are here 23/7 ... come anytime and talk to us since we are walking in his shoes!
so yes, we've heard from both of these men! YIPPEE!
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
bw- word is things are better?
when you are able to, i hope you take a step back and really look and SEE the outpouring of support that came your way here, most of it from those still suffering too.
there are times when that support from people who know what hell you're in makes you decide to live that one more day, and then the next.
the thing about this frigging disease is, and after living with it for almost 7 years i guarantee it, that if and when you can suspend all your entirely reasonable and rational disbelief and yes, shout down your mixed and messed-up Lyme-brain too about what comes next and simply HOLD ON,
a better day will come along, even if it is one just one day for the time being.
that one day feels so gooooooood, you'll wwant and know maybe there is another, then another.
meanwhile. you sure found the right place to be for now...
hugs- dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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