posted
my 13 year old son is taking mepron and 200 mg artemisinin twice a day.
Posts: 52 | From silver spring, MD | Registered: Jan 2005
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posted
My 16 year old takes Artemisinin with Azithromycin and Doryx...
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hshbmom
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posted
Thank you all!
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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Geneal
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posted
Not recommended by my LLMD for my 7 year old.
How are you by the way?
Hope things are okay.
Hugs,
Geneal
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hshbmom
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I'm doing Geneal. Please send me an e-mail; I lost all my addresses. I've enjoyed your nursing home stories. I can relate.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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hshbmom
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What about younger kids?
I didn't beat babs until we doubled the Mepron and added artemisinin.
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2roads
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posted
Can you each tell me what your childs symptoms are/were?
I want to compare them with my 6 year old. I don't know if he has Babs, but I'm beginning to suspect he does.
He was antibody positive at 2 yrs old. Doc J did not treat. He said back then, without symptoms, some kids can fight it off without therapy. So, we never treated.
Heck, there was plenty of other things to treat with pcr positive lyme,bart and myco.
Thanks Much,
2roads
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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hshbmom
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The symptoms overlap with Lyme symptoms.
Two tested positive for Babesia with the FISH test and had several significant antibody bands on the Western blot.
Others here have bart and myco too.
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2roads
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My big symptoms are now upperespiratory and eye.
Bladder is still ongoing. Pins and needles in extremities is better and stomach is better.
He's on Zith and Bactrim.
Do these syptoms of lung and eye ring a babs bell to any of you and your diagnosis of your children?
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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tickbattler
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posted
Hi hshbmom,
I tried to pm you in response to your note, but your mailbox was full. Sorry you are dealing with this too with your young children.
Dr. J has my kids (4 year old twin boys) on a 100 mg capsule twice daily. I open it up and mix it in yogurt or sometimes chocolate pudding. It seems to be helping the babs symptoms along with the Mepron and zith. One of my sons seemed to have an increase in night sweats and also headaches when he first started it, so that told me it was doing something.
They have been on babs treatment for about 6 months so far. They still have night sweats, but my one son who tested positive on the babesia FISH test just had a negative test and many of his babs symptoms are disappearing such as his dry cough, his inability to exercise for more than 20 minutes (now he can play soccer for an hour), and his headaches, while still almost constant, are described as "medium" sometimes now rather than "very bad."
I think with babs that you really need to go at it from a lot of different angles.
hshbmom
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posted
Thanks tickbattler!
2roads, my kids get many upper respiratory symptoms, such as a persistent cough that's either dry & irritating, or productive. One gets pink eye, but it's not contagious.
They don't have bladder problems.
One gets pins & needles sensations in the hands and fingers.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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No art for our little one. For sxs, he had/has night sweats.
Pretty much everything has cleared up, even his potty issues. We are still waiting for a clear EEG, as he was having absence seizures, but it doesn't seem like he is having seizures anymore.
No more staring off, inability to take in info, no more wetting the bed and waking up wet and disoriented.
We are almost there. Yeaaaahhh!!!!
I hope all is getting better with your family.
Take care, kp
Posts: 394 | From tinton falls nj | Registered: Jul 2007
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hshbmom
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kp, that's great news! I'm very glad to hear this.
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2roads
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That's interesting.
My son's cough is a mucousy cough as he gulps gallons of mucous while laying horizontal at night in bed. Did so all winter. More volumous recently since on treatment.
During the day it comes up from the lungs, and his nose is moist but not running. He'll wipe it occasionally with his sleeve. He sounds a little hoarse.
He was never potty trained at night due to the pullup syndrome I fell into. But, usually his bed would be saturated with urine despite his pullup.
Here recently, his bed isn't wet at all, just his pullup. I get the feeling he is able to control his urine when he wakes up in the morning to run to the bathroom. Therefore, less overflow and bed wet. He's 6 and I know I need to get the night pees pottytrained this summer.
His urgency, I think is diminishing on treatement...hence a dry bed.
I'm trying to determine if some of this is Babs. He used to have night sweats, but not anymore. He was never treated for babs, despite positive antibody.
Thanks for everyones input. Any more thoughts welcome. He's on Zith and Bactrim now, 6 weeks.
2roads
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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For my son, bed wetting only occured when he had a seizure at night. Prior to getting lyme, he was fully potty trained for a year, had had night time dryness since the age of 2.
At age 4 he started having bm accidents. He was finally diagnosed with lyme at age 5, after running high fevers for 9 days, then developing over 20 em rashes, all over his body.
He had no sensation of needing to have a bm by this time. So all bms were potty accidents. This lasted for 2 years.
As to bed wetting, it happened probably 6 times over the past year, and it wasn't until this past summer when he had an eeg that we discovered he had seizure activity in his right temporal lobe.
IMHO, his potty issues were caused by lyme. They started right after he started hanging out at a friends house whose yard we later found out was tick infested.
And, more importantly, improvement consistantly appeared when he took a specific abx, and ultimately, the sx went away.
I hope that all goes well for you and for your child during tx. It is a rough road, but it will get better.
Take care, kp
Posts: 394 | From tinton falls nj | Registered: Jul 2007
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2roads
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posted
Thanks for your input everyone.
It's so difficult because there truly is a range of symptoms.
Lymemommy, hard to believe you send them to a friends, and they come back bit. No matter how I tried to protect the kids in West Chester, I knew they'd visit others who were clueless.
It's so tough.
I guess time will tell for my son.
Hugs,
2roads
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