Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Hi everyone,
I had a really good day yesterday. I started thinking maybe I really didn't have Lyme (ha!), like I felt almost normal. The anxiety was OK, I even considered driving somewhere by myself (haven't done that since last summer), only had a couple of heart palps, felt like I could think. It was weird to be almost normal!
I did have several muscle twitches in my ankles/calves, but other than that, was really good considering I felt like crap all last week.
Today I'm back to feeling crappy. The light hurts my eyes, I'm exhausted, the girls keep 'mommying' me to death and my nerves can't take it.
Bryan Rosner says that when you feel good and aren't treating, it may mean that you are doing worse than if you feel badly and are treating.
Do you agree? I'm seeing a new LLMD 5 weeks from today (can't wait!). I did a mostly raw diet and looots of garlic and antibacterial foods in Nov and Dec and have been definitely better, esp anxiety-wise.
I'm thankful for the good day, but today I just feel like a mac truck hit me today, I feel like I don't even want to stand up, just want to lay in bed all day (like my legs are just too darn tired).
Anyone feel like this? It's frustrating to get a taste of some normal living and then BAM! back to it again.
posted
I guess yesterday was that kind of day... I also had a "good" day. i ran errands ALL day, DROVE which is unheard of for me, went to a show, and stayed out to 12:30am singing Karaoke... HOLY PATOOKIES!!! It was SO unexpected, but I am SO grateful for it. I also had the weir heart palps and my neuro symptoms, but to a much lesser extent that i could ACTUALLY function....
I am feeling it today though just like you, but thats ok because yesterday gave me some hope!!! I think we tend to overdo it when we have a good day... but it was worth it!!!
I also started a Raw diet and Juice daily... started in November and LOVE it. I havent been able to eat for almost a week because we have had no food.. ah the price you have to pay sometimes when your sick.... It's all good though..
I am treating with herbs, I don't understand Bryan Rosners case by saying having a good day is a BAD thing??? I dont get it?? I have never read his book, but I dont quite understand how that makes sense. I will take my good day and be GRATEFUL for it!!
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Hey Shandy,
Wow, we must be twins!! Awesome with the Karaoke!! You go girl!!! Are you also doing abx right now?
Yes it was SO nice to feel SO good for a day. Of course I woke up at 3:45 am after a nightmare complete with racing heart and feeling weird, normally that would have turned into a panic attack, pacing around the house,ect.
I laid in bed and just calmed down and after about 20 mins I fell asleep again.
Do you chart your symptoms daily? I really need to do that.
posted
I'll take good days any time I can get them and willingly pay the price the next day
It seems to me it's a sign of getting better. If it's not, too bad. I'm still going to believe I'm getting better! Posts: 51 | From Reno, NV | Registered: Dec 2008
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posted
I havent been on abx since October 31st. I was going downhill and fast. It's a long story, but me and my new doc think I was having a lot of trouble detoxing the ABX. I am only on herbs, and Supps and CHOLESTYRAMINE. I may use abx in the future, but were just focusing on detoxing and Neurotixins.
When on abx I was so symptomatic we didnt know what was herx, side effect or just my regular symptoms.. It was to the point that I was suicidal and could no longer go on. I was on 4 different abx a time, plus, supps, + herbs, + antimalarials.... Just TOO much for my body as I have always been chemically sensitive.
I do chart almost everyday in my journal. Some days I forget.
I feel like a mack truck hit me today too... I am just so psyched about my day yesterday that I am holding that hope in my heart for fuel for today!
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Yes, good days are usually when I spend my day doing the things I want to do. I believe the majority of us a type A people.
We jump at the chance to achieve something that makes us feel worthwhile. Then we feel bad the next day(s) spending that good day doing what we love.
It's a cycle that I live over and over again. I can remember early on when all of a sudden...all sx would disappear and I would feel perfectly healthy. I too would doubt that I was ill at all.
How can you go from feeling like crap one minute to no sx and feeling normal? It didn't make sense to me.
I can remember getting so excited and hopeful that the end was near. Then bam, smacked down again. I used to cry thinking, how can this illness be so cruel to give you hope that it's gone for good?
It torchers you. That is until I accepted that it is what it is. It mentally, emotionally, physically and spiritually tries to rule you.
I call it the meanest SOB on Earth.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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I wish i had the answer. If Rosner is right i must really be healing because i'm on three straight weeks of feeling crappy. Anyway...just wanted to say i'm happy you had a good. Those are needed to stay energized.
Dave
-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Pam, I loved what you had to say. I've been trying to accept it, it's just so hard because I don't want it. I've had a year here and there of feeling normal and I cried for joy and said I was so glad that 'it' was over (not knowing at the time what 'it' was). Yes, it has tried to rule me in all ways, spiritually as well, I think most people cannot understand that one.
How long have you been sick? Have you been able to feel good for awhile since being ill?
Dave, Sorry you've felt bad for almost a month, that stinks! I like reading your weekly abx post, I'm going to re-read them when I start abx next month. Yes, keep saying that this crappiness is going to take you somewhere, who knows, you may come out of it next week feeling better than ever!
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Yep. I have good and bad days. I am so thankful for the good days and am able to get things done around the house that need it. Sometimes my good days are almost great even with almost no symptoms but muscle twitches and a few others.
I don't know who Bryan Rosner is, but I guess it depends on your thoughts... I would be sad to find out that on my good days I'm actually doing 'worse' than on bad days......which actually doesn't really make sense to me.. that's like taking away our bright light at the end of the tunnel or any hope we may have. If you have a bad day, it's just blah, but if you have a good day, then that's just as bad or worse!?!?! I don't get it.... If you're feeling good finally and haven't had a good day in a long time, I think that is progress of some sort! I don't see how it's BAD or could be a bad sign. Of course I'm no doctor....
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
Hey Ocean, I am so greatful for good days but then bad days creep in.. but i know you and i strated tx about the same time.. you have given really great advice when i am worried so here is a little together (all who suffer from lyme) can get through anything. Be greatful for the good days, becuse that means more good days are near.. i look at it like this before start of tx no good days .. that has to mean something
I am a Dreamer, Believer, and Conquer; I will overcome this disease !!! Posts: 382 | From Alabama Via PA | Registered: Jun 2008
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Hi Disturbed, Bryan Rosner wrote the book about Rife Machines and also "The Top Ten Treatements for Lyme Disease". I think he's saying that feeling good may mean that your body isn't fighting. I've felt good for a year or 2 at a time though, and I've ALWAYS relapsed due to not taking care of myself, not sleeping enough, eating waay too much sugar, ect.
Shelly,
Aww thanks hon. Yes I think we found out we were postiive around the same time. I've only done natural stuff so far, but am planning to start abx after I see my new LLMD next month.
You are right, I need to just enjoy the good when it happens. Yesterday I kept saying to my husband (he works from home so he's always with me), "why do a feel so good today??"
I'm trying to remember how my remission always happened before, it seems like it usually just happened pretty quickly, kind of like how I got sick, just happened all of the sudden.
Yeah even on my bad days, I'm feeling better mentally than I did on my 'good day's last fall. That HAS to mean something like you said!
groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All
Yep having a Good day is a Good sign-
Try not to over do things because it can bring on bad days --
I remember the day that just for a moment that the shell of crud feeling left me for Just 5 minutes - but from that day forward I Knew I was going to get Better and I have--
You Will Too--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Hey Jay, that is encouraging! Are you in remission now? I showed my husband your Hicks in the Sticks with Ticks the other day =)
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