I am not talking about being angry or enraged over having Lyme~ or how hard it is to endure all we Lymies have to go through.
I AM talking about Lyme rage: the up and down rage and anger that keeps popping up out of nowhere, just like any other Lyme sx.
The extreme irritability and anger at every little thing type of Lyme rage, that keeps everyone walking on eggshells..the type that (what I'm told) makes you want to put your fist through a window.. the smallest things set it off, and it's hard to move out of!
Will it ever get better with treatment? Has anyone ever really experienced this? I'm not looking for anyone to say the old "it'll get better with treatment" unless they really have witnessed or experienced it. (sorry to be so picky but I am desperate for hope on this one)
It is VERY trying on a marriage and hard to be on the other end of the anger, especially if you are sick and trying to heal yourself, as well as heal your kids from this disease.
I would love to hear any encouragement of real stories of "it" ending or getting better...Anyone? Posts: 232 | From MN | Registered: Jul 2007
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posted
I went through a period where everything set me off, and it was really difficult to control. I hated it just as you do.
I still get irritable, but don't get the anger. I feel it's the result of treatment over time and consciously working to control it.
So it can go away. And my wife's much happier for it Posts: 51 | From Reno, NV | Registered: Dec 2008
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Have you treated Bartonella??
Yes, I had horrible mood swings before treating Bart. There were times that my mouth and actions were so out of control that I barely recognized myself.
These outbursts damaged many of my personal relationships. I knew it was a product of sickness but when I tried to explain this to others they just didn't understand.
I've been on Zithromax 600 mg for many months now and I'm back to my old self - very laid back and much more happy-go-lucky.
Yes, it will go away but you HAVE to treat Bartonella. The herxes from treating Bart are horrendous, just to warn you.
If you think you're moody now, wait until you start Bart treatment. Yikes. Well worth it though!
Lauren
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
I don't know why mine got better, as I wasn't diagnosed for over a decade after getting sick. But my rage did stop after being sick for 1-2 years. I don't remember a lot from that time.
I was a teen, had always been a really good kid, never caused trouble. 6 months after getting diagnosed with Mono, I started having rage attacks. Where I would be sitting with my family at the dinner table and scream and get up and take a walk down the road.
Yes I could have put my fist through a window. I almost bit a table once I was so mad! It sounds funny now and I can hardly believe it, but it was awful! My mom said it as you do, that they had to walk on eggshells around me.
This really pushed me away from my mom as she would get angry at my anger (not knowing I had Lyme, she had no idea what was wrong with me), and we stopped being close for years, I thought she hated me and she apparently thought I hated her.
posted
My rage has gotten much better, ask my hubby.
I would scream, yell, throw stuff over the smallest of issues. I was really an unhappy person and I just thought it was my personality.
I can't tell you exactly what helped but it took a good 6 months of treatment to see a difference. It left slowly.
Then when I started Rifampin at about my 10 month mark, my hubby said I'm just sweet and happy most of the time.
Also finding a new church with lots of love, prayer and encouragement from people was a huge thing for our family.
And I have 3 kids under the age of nine and have a few lyme symptoms as well.
Oh and I do notice I get irritable if I eat too many carbs. I'm much even tempered if I stay away from that stuff.
Hugs
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Hey there,
I threw a TV once. Kicked my foot through drywall, spun in temper tantrum circles, pulled my hair, you name it. It was like a "switch" would go off, one moment I would be happy and conversing, the next raging.
No psych meds helped.
But, the rage went away on it's own as quick as it came....out of the blue.
I'm a real mellow woman now....you would think that I was describing the actions of a guy on roids above, but it was just little ole me....
So chances are, your husbands rage will go away too.
Best to you, Felfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
feelfit, Were you ever on doxy, zith, or rifampin? and if so , did you ever have emotional type herxes?
Posts: 232 | From MN | Registered: Jul 2007
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posted
For me it took at least 2 months after beginning treatment on Zith, septra, plaqunil and malarone to notice a small change.
Tindimax made me worse the entire 4 months on the stuff.
Finally switched to Doxy,Rifampin,plaq, pulsing Zith and hubby noticed the biggest difference in me. and it's still holding. I noticed a differance right away.
Just gotta find something for the cognitive dysfunction
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
My rage and anger had been out of control at times, partly from the infection, and partly from the anger over having this and that many doctors do not, nor want to understand what is going on! Man, that ****es me off. We haven't treated bartonella yet.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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