quote:Originally posted by Bugg: Consult with your health care provider first, before using vitamin D, if you have any of the following conditions: sarcoidosis, primary hyperparathyroidism, granulomatous disease, or other conditions that cause high blood calcium..
And since sarc and lyme are similar illnesses with a similar cause (as discussed in another thread), those with lyme also need to be wary about supplementing with D. For those with either sarc or lyme 1,25D is often high while 25D is low. It's wise to have 1,25D tested to know if you too are experiencing D disregulation like most lymies.
Posts: 727 | From USA | Registered: Mar 2006
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posted
Bugg, Doc Luddite, all who are trying to help, I looked at the Vitamin D I took before that caused me so much pain and it was 40 units! Taking one every day crippled me in about a week.
The 5,000 units of expensive D3 I tried next was horrible too.
What do you think is wrong?
Thinking about getting the little bit in some good cod liver oil. What do you think about that?
Cod liver oil has lots of Vitamin A too, something I know I am deficient in, think lots of us are from Lyme but have no proof. Deficiencies in A have been linked to night- blindness, right?
Posts: 422 | From Luck home | Registered: Sep 2005
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posted
hey dguy, i just posted a similar question to jmb on the other D thread, but thought i'd also ask you:
according to what you've learned, what lab values do you think constitute a high D 1,25? and a low D 25? mine, taken last month, were 45 (1,25) and 39 (25) - do you think that makes me a candidate for trying to reduce (or at least not supplement) with D3? i've been supplementing D3 for several years...
thanks for any advice - this is all so confusing!
-------------------- Increasingly ill over past 10 yrs; treating since October '08. Posts: 180 | From Philadelphia, PA | Registered: Oct 2008
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djf2005
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posted
GO TANNING
reduces pain, increases endorphin production, and enhances general overall wellbeing.
highly recommended, cant say enough about it.
hollywood tans is a good deal, nationwide, about 20 bucks a month..
wear protective eyewear
derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
quote:Originally posted by landerss: according to what you've learned, what lab values do you think constitute a high D 1,25? and a low D 25? mine, taken last month, were 45 (1,25) and 39 (25) - do you think that makes me a candidate for trying to reduce (or at least not supplement) with D3? i've been supplementing D3 for several years...
If memory serves, those D numbers sound near the center of their normal ranges, and therefore it seems your D is not disregulated.
What has been observed is the worse the infection, the lower 25D drops and the higher 1,25D rises. People who are severely infected usually have a difficult time making their 25D rise via supplemention because the 25D is rapidly converted to 1,25D.
Posts: 727 | From USA | Registered: Mar 2006
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Bugg
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posted
MJO--
Given the number of your vitamin and possibly hormonal difficiencies, I would go see an endocrinologist for proper testing and treatment. A good endocrinologist can test you for all of these things....parathyroid...thyroid...horomones...vitamin deficiencies...magnesium...calcium...phosphate
(If your phosphate or calcium levels are low, or your alkaline phosphatase is high, this can point to a Vitamin D deficiency)...
If you're severely deficient in magnesium like I was, you might also have disregulation with your Vitamin D....helps to synthesize it....
I appreciate Dguy's Marshall Protocol info on this thread as well...
While I realize the choice to take Vitamin D is a very confusing one, I welcome all input from both sides of the issue...hopefully we'll all figure this out together....
Posts: 1155 | From Southeast | Registered: Oct 2005
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are you pretty closely following MP in your own treatment?
-------------------- Increasingly ill over past 10 yrs; treating since October '08. Posts: 180 | From Philadelphia, PA | Registered: Oct 2008
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Maybe I should get back on magnesium before trying any D again?
Yes, phosphate and calcium issues are evident; I have osteopenia. Alkaline phosphatase rises on antibiotics, though it never goes really high.
The only thing about seeing an endocrinologist is that the one I met (while in the hospital) was hostile to dessicated thyroid. ( I did not tell her I have Lyme.)
I am hypothyroid, but currently off much-needed Armour, after winding up in the hospital with severe and prolonged arrythmias.
The arrythmias did not occur while I was on thyroid medication alone, but when 3 types of abx (each on its own)were tried over the course of three months. I lasted 10 days on two and about 21 days on one.
So, the questions are: was it the abx working on Bb or other TBDs in the heart to cause the problem; was it a question of balance between abx and thyroid; could it be an imbalance of vitamins and minerals causing the arrythmias; or could it be the abx pushing the vitamin and mineral deficiencies over the edge which led to the arrythmias? Or, to throw in another monkeywrench, was it the hormones I take, estriol, estradiol, and prometrium (which I had had no problem with)?
Maybe I shouldn't bore others with all this and PM you?
Thanks!
Posts: 422 | From Luck home | Registered: Sep 2005
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Bugg
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MJO--
You might want to go on Mary Shomon's thyroid site where she posts a link to "Armour friendly" endocrinologists/physicians in your area....It really sounds like you need a great endo working with you due to your hormonal/vitamin deficiencies....Could your OBG/GYNO recommend a compassionate Endocrinologist? Even if that endo won't presribe Armour, you could at least go to him/her for testing...Then maybe get your LLMD, based on the results, to prescribe the Armour, if needed...
FYI, I too, had severe arrythmia due to too much Fluconazole which stripped my body of magnesium...
Hang in there and keep fighting for your health!!!
Posts: 1155 | From Southeast | Registered: Oct 2005
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CherylSue
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Good site for Vitamin D3 supplementation. It's that time of year again.
Posts: 1954 | From Illinois | Registered: Aug 2007
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