posted
Kreynolds, I had a similar ramp up of yucky symptoms with the Mepron.
I've been on IV Rocephin for 3 months, which has not been a cakewalk, but Whoa Nellie, I feel terrible now.
I think the most important thing we can do is to not let ourselves get too tired. We are getting worn out by not even doing anything.
Holy Cripes! How are we supposed to keep up with it? I have a hard time eating enough to soak up all those pills and goos and such. I feel like Napoleon- I'm constantly gripping my stomach...
Kefir helps most of the time.
-------------------- Be Well Posts: 103 | From Out West | Registered: Jan 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
It sounds to me like you are herxing and reacting to the babs medication. Mepron, Zithro and Plaqueniel hit babs.
You don't need a positive test if you have the symptons and if you are feeling worse since starting babs treatment IMO it would mean you
are reacting to the meds and have it, positive test or not. It's so unfortunate that the treatment for this dreaded illness is just as bad as the illness.
Try to stick with it and hopefully you will see the light at the end of the tunnel in time. Herxes usually come in cycles, but everyone is
different so hopefully you will get some relief soon but it will probably be back again.
Hang in there.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Aloe vera juice was helpful for my daughter.
And, oddly, this pine nut oil we got online.
Posts: 2903 | From AZ | Registered: Feb 2006
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Thanks guys.... I know it will be a tough road ahead, but I'm a fighter!!!!
Kelmo:
I will try the Aloe Vera juice and the pine nut oil and let you know how I feel!
Thanks again
Roy
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Sorry you are feeling so bad
I think babs has been responsible for my digestive issues but that is just my guess.
I would make sure none of the meds can be causing your nausea (you could call your pharmacist)
For nausea some ginger either cut or grated (i think grated is better) and brewed in tea helps me if its not too bad (and depending on what its from)
they make ginger root pills but the real thing brewed in tea works better for me.
I'm so sorry as herxing is as bad, in now worse at times than the actual disease!! I agree with the above poster it that just by your reaction would strongly indicate that you have babs.!!
As far as the nausea, I've tried just about everything natural. However it didn't work for me; the only thing that worked is Dramamine. It helping a lot, along with eating small meals.
Make sure that you're detoxing too. Oh, and this maybe something that you already know, but I was never told. If you're taking supplements, which I hope you are, you cannot take Alpha Lipoc Acid while on Mepron!!! Now I am doubting my mememory on this, so I will double check, okay.
Hang in there----Boy does my heart go out to you!
Posts: 351 | From Georgia | Registered: Feb 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Hope this all works out in the end....
Thanks guys... you're the best!!!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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bettyg
Unregistered
posted
kate,
so sorry for all you are going thru; just stopped by to comfort you.
i have no personal experiences with those meds! hang in there; will get much worse before you get better as you KILL OFF THOSE CHETES in your body.
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Thanks BettyG!!!! Kill them all right?? I wish it was that easy!..
well thanks again for stopping by... this is the wirst tike of the day for me EST.
I feel the worst in the morning like my stomach is in a vice and my legs are like jello. Im a walking zombie.. ha ha. well thanks again. Roy
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
| IP: Logged |
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