My tongue is always not right. It's either numb, burning, thick feeling...it's always something and has been this way since I got acutely sick almost 3 years ago.
It sounds weird, but when I got so sick, one night it sort of had this electrical/vibration feeling in it for several hours, then went numb and it's pretty much been weird since then - 3 years ago. Did a nerve get fried? I see no difference with various foods I eat.
I assume this is a cranial nerve problem. Anyone else deal with this? Anyone find relief? I keep hoping with slow improvement on abx that this symptom will subside. I can certainly live with it if I have to, but I'd rather not! TS
Posts: 566 | From West Coast | Registered: May 2008
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Hey TS,
I had this quite often at the very beginning of tx. I would talk funny from it too. It has gradually gone away.....quite early actually.
On IV Rocephin.
I do get occassional tongue zaps and a novacaine type feeling, but they are not very often now.
I would say a cranial nerve problem too...
Hope that it resolves sometime soon.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
posted
I think it's transient. I had a numb tip of the tongue for a little while, so dalking was derribly dricky for about a month and then, presto, gone...
Posts: 13171 | From San Francisco | Registered: May 2006
| IP: Logged |
ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
My tongue has played up throughout my long illness [sore, coated, but not white, etc], but it was much worse earlier before I had my amalgams replaced with white composite fillings:
according to the man who diagnosed me with mercury sensitivity [a top UK person, well-respected]my fillings had rusted, which made them even more dangerous.
When I can remember to do it, oil-pulling [I use sesame oil] for 10 to 15 minutes first thing does seem to ease the tongue,
posted
Lots of tongue issues here too, like feelfit. I still get them from time to time, typically numbness. I've been treating for two years and it's improved a lot. Three years, I agree, is a long time. On the other hand, one of my first symptoms, numbness/tingling across the left shoulder, which can sometimes persist, is STILL with me after all this time and so many other amazing improvements/recoveries. So your tongue may be first in/last out as my shoulder is!
Symptoms of the tongue are particularly annoying, hope yours resolve soon.
Best -
otm
Posts: 314 | From east coast | Registered: Oct 2007
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
my tongues ok but pretty regularly my lips and parts of my cheeks will start moving on their own
also a puff of air involuntarily blows out of my mouth
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
posted
I have facial numbness/tingling/and tightness almost constantly. It is my #2 symptom next to chest pain. It also affects my tongue and affects my speech a lot.
I am at a loss. I don't know what to do, or what will make it go away.
Just know that you are not alone.
I feel like I should get a SPECT scan to see if they find anything there.
posted
The right half of my tongue goes numb about 2 hours after I eat. I hate it. It is also really sensitive, it gets painful when I eat spices or brush my teeth, or use mouthwash.
What worked for me for a while was sublingual liquid form b-complex, with lots of b6 and b12. It did stain my teeth though. It worked better than b-12 shots, I think because it is absorbed under your tongue and closer to your brain. It's no cure, I still have it, but it helped me for a while.
Steroids helped a little too, low dose cortisol, and low dose methelpregneslone.
Infrared sauna helped too, but make sure to hydrate yourself after wards: salt, potassium and water.
I just went to the dentist today and he was able to scrape the stains off from the b-complex, so I don't think it's that permanent.
This is my worse symptom, does anyone know anything else that might help?
Posts: 33 | From Chicago | Registered: May 2008
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
I used the Herb Pharm ( http://herb-pharm.com ) spilanthes-usnea (formula) tincture as a mouth wash and to take in water, too.
Spilanthes helped a great deal when I had a mouth full of apthous ulcers - and horrible burning & huge swelling of tongue - for four straight years with no relief.
Although, I found that andrographis has worked MUCH, MUCH better for me in that regard, clearing up my mouth completely within the first two weeks. That was a couple months ago. My mouth is still good.
The severe burning is gone and I can actually move my tongue around in a closed mouth again (there was no room before due to the swelling).
And, I can eat food again. Before, everything was like a batch of razors.
--
You can find andrographis detailed in Buhner's book, "Healing Lyme . . ." It's best to read ALL about it before starting. His book has the best detail I've seen.
This is exactly what I used, dosing as per Buhner's book.
But I'd start with one - with food - to see how your stomach handles it. And, some people can have other side effects, so that's why it's best to start very slow and to continue the very best health habits while taking it.
It did create upset stomach and severe fatigue for me, but after two months, the stomach part is much better and it's not quite as fatiguing - and I see so many positives with this that it's worth it.
---
Now, you might have a cranial nerve problem, but you might give andrographis a try for a couple weeks. Within one week, you should see a big difference. At two, even better. I know it will take down the swelling.
If that does not help, see a D.O. who does gentle cranial-sacral therapy (The Upledger Technique is good) might be a good idea. But I had years and years of that. The andrographis was my ticket.
In the meantime, either Herb Pharm's tincture Splinathes - Usnea or Herb Pharm's Calendula Succus are both helpful as a mouth wash.
-
[ 02-10-2009, 05:19 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
Thanks UKcarry, Holly M and Keebler and others for ideas, I'm going to look into these further and discuss with my LLMD when I see her next week. This is by far, not my worst symptom - so many others that are more uncomfortable and scary. But this is an almost constant annoyance. Appreciate the input! TS
Posts: 566 | From West Coast | Registered: May 2008
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
What you describe seems to be more involved, but
For women over the age of 35, "Burning mouth" can also be part of peri-menopause, menopause or post menopause.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic