posted
My name is Kayellen (Kln), I am new here, female, 49. I was partially raised on a farm, as and adult had my own farm in central Texas, have almost always lived in wooded areas, enjoy gardening and have been bitten by ticks countless times since I was a child. I have never had a ``Bullseye Rash'', that I know of and I have Never been diagnosed with Lymes .
I received a message from a lady on another board who suggested I check out this board.
I am curious, I wonder if what I have experienced with my health all these years could be Lyme Disease? I am so sick of the ``smile and nod'' reaction I usually get when I see a doctor, as if I am full of hooey and just coming to see them for attention sake.
In researching Lymes I came across this site www.anapsid.org/lyme/symptoms/tbi-symptoms.html It listed 62 symptoms for Lyme Disease. Of the 62 I can check off 40 that apply to me or I can identify with.
I know you are not medical professionals and all you can give me is your opinion and life experiences. I do not have medical insurance; we are not financially able to afford budgeting in a doctor. So I was wondering if any of you have any idea of what I might be able to do or read that will aid me in easing my symptoms until I can see a doctor.
PM me if you would rather.
Here is what is and has gone on with me...quirks is what we (hubby and I) have called them. I am/have 1. Easily bruised,
2. My joints ache and sometimes lock or swell.
3. I cannot lie down in a prone position because it causes me incredible pain in my lower back after just a few hours of sleep(3-4 hrs), so I now sleep in my recliner. (not hubbys favorite idea).
4. Can't scratch an itch because it hurts my skin and the underlying tissue feels as if it has been hit or poked hard.
5. My feet burn like someone is giving me a hot foot, my legs burn and ache, anything touching the skin on my legs, toes or feet causes a stinging burn and achy sort of pain.
6. Shooting pains in my arms, legs and feet. (like electric shocks or zings)
Things I have been diagnosed with over the years; 1984 Restless Leg Syndrome 1986 left thigh went numb (forget Dx. though) 1999 Diagnosed with TB and treated for 1 year 2000 Diagnosed with COPD 2003 Diagnosed with early onset Dementia. 2006 (Winter) I noticed an indentation in my outer thigh that was painful. The dent cleared up but the area is still painful. 2006 Macular Degeneration 2007 Diagnosed with ``Dupuytren's Contracture'' (auto-immune disease) 2008 Heart Palpitations (now more frequent, several times a day) Also, I have taken antibiotics for weeks at a time because of swollen glands or respiratory infections. Can's take Biactin as it caused me heart pain last go around. Allergic to Penicillin and Sulfur drugs.
I do not take any regular meds or OTC's. Don't drink, do smoke, can't exercise or garden anymore, eat relatively healthy and do enjoy my coffee and non caffeinated soda pop.
Posts: 13 | From Texas | Registered: Feb 2009
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posted
#5 & 6 might indicate co-infections, possibly Bartonella or Babesia. You might want to get tested by Igenex for those in addition to the Lyme test. Call them, they will send a 'kit' -- if, big IF, you can find a doc to order the test. 800-832.8200
There is a list of references about Lyme and Alzheimer's on LNE.
Search for more info about Lyme and Alz there also.
Biactin? I couldn't find that on drugs.com. Did you mean Biaxin? It rarely causes heartburn if taken with some food. Did you try taking an antacid as diagnostic for the 'heart pain'?
My 'unstable angina' turned out to be heartburn most of the time. Worst at night after smoking all day. But I still smoke, just try to do it less in the evening. Yeah, I know, I should stop smoking but I have enough to deal with right now to add nicotine withdrawal to it.
-------------------- Sassy Posts: 12 | From TX | Registered: Oct 2007
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adamm
Unregistered
posted
Lyme may very well be the most common cause of dementia worldwide. One doc, Alan MacDonald, has a website implicating it in Alzheimer's (molecularalzheimer.org), and it's know to cause MS, ALS, Parkinson's and Pick's diseases, and a host of other neurological conditions as well. With the multi-system involvement the patient under consideration is experiencing, I'd say you should be highly suspicious of Lyme.
You should check out these links lymecryme.com lyme-info.net underourskin.com
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Sassy... yes I meant Biaxin. It doesn't cause me heart burn but pain in my chest and heart. I too still but should not smoke.
Adamm...thank you for the links.
Before today neither my husband or I ever gave Lyme Disease a second thought. Nor has any doctor ever suggested I be tested.
I was just floored that out of some 62 symptoms associated with Lyme I could identify with 40 which to me is astronomical.
Thank you both
Kln
Posts: 13 | From Texas | Registered: Feb 2009
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bettyg
Unregistered
posted
welcome kay ellen to the board!
sure sounds like lyme and possibly co-infection to me!
i'd recommend IGENEX LAB, calif., to check for lyme with their western blot igm and igg blood test. it's $200 PREPAY unless you are on medicare; free then.
that doesn't include their co-infection testing which is around $1,000; same as other prepay unless on medicare.
look thru my newbie package links; print off the FINANCIAL BURDEN INFO that i mention below and pages are shown. glad you found us!
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
sorry, link takes you to END vs. beginning, so just use UP ARROW and go to the TOP for detailed info! thanks! *************** please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
Betty's POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING. delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
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I will work on reading it and ask my husband to as well.
It will be easier that way. I don't always understand what I read since I have to keep going over it.
Thanks again
kaye
Posts: 13 | From Texas | Registered: Feb 2009
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bettyg
Unregistered
posted
kaye,
my late sis-in-law died at age 40 of early onset alzheimer's disease. she had this between 8-14 yrs.
mayo clinic did a complete autopsy of her; her brain took almost 5 months to get results back; yes, early onset alzheimers.
they didn't look for LYME at that time; and i'm sure that was responsible for her loss of mind completely since she helped my bro. farm our family farm.
walking beans, picking up rocks, etc.
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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