posted
Am I the only one with super dry nasal passages from Lyme. I've never seen a posting on this but its about my most annoying symptom along with the pain and itching and all the other stuff.
Does anyone have dry sinuses? What do you do ? Saline sprays are worthless, do nothing.
Help anyone
Posts: 199 | From utah | Registered: Jan 2009
| IP: Logged |
posted
when i was in remission, i worked out religiously.
After work outs, I ALWAYS had extremely dry nasal passage, accompanied by a strange smell..
What's strange, actually is i have it again now.
not sure if we have the same cause, but i've defitely had that dryness. it hurts.
i don't think i ever did anything for it, it would just go away after a while (?)
-------------------- ...trying to be the coffee bean, not the egg. Posts: 420 | From East Coast | Registered: Jun 2008
| IP: Logged |
bettyg
Unregistered
posted
someone just told me to use KY JELLY on our nose.
i was using VASELINE protreleum inside nostrels for my cpap nostrel/mouth face mask.
IP: Logged |
lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Axyr makes a saline gel. That works tremendously well - I never leave home without it in the winter.
NEVER use vasoline in your nose. I just read something scary about that. Someone correct me if I'm wrong here.
Also use Xlear spray twice a day - it's a saline with Xylitol - keeps the bad stuff from sticking.
Also, boiling big pots of water and a cool air humidifier should help things a bit.
But I swear by the saline gel.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
| IP: Logged |
posted
up anyone else please
Posts: 199 | From utah | Registered: Jan 2009
| IP: Logged |
Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
Hi,
I had this, and it was from Lyme disease, but it also can be active if you have untreated babesia, because this lowers your immune
so lyme gets worse.
I used Azithromycin and Flagyl when I had this and it helped about 80%, then treated babesia, but you have to keep working on lyme and
treating babesia to get rid of it.
I had the dryness go into the lungs and eyes, and mouth.
It was severe.
it is better now, but it can get a little worse if I get worse.
I also had the dryness first start when I was OFF antibiotics and it occured on the lyme cycle, 28 day growth, so I knew it was lyme.
Good luck.
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
| IP: Logged |
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
I've used saline nose spray and drops (when unable to find the spray version). Both help tremendously when suffering with a dry nose from travel, winter weather, high altitudes, colds, etc. And you can't use too much since there are no drugs in it. Makes breathing easier.
Posts: 5237 | From here | Registered: Nov 2007
| IP: Logged |
2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Trish,
When it went into the eyes and lungs, what did it feel like?
I've been struggling with my sons symptoms-
Thanks
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
| IP: Logged |
Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
2roads,
the eyes were dry, and the lungs were dry, I had a severe case before I went back on antibiotics, and I was breathing through a humidifier 40 times a day or more, to keep the lungs moist,
it was a nightmare back then, and it took about 2 weeks for things to start getting moist.
It was such a nightmare, SUCH a nightmare,
I cannot believe that at that time it became so severe, it was also because I had untreated Babesia which had been untreated for about 15 years.
I have not read of a case like mine, but maybe no one wrote on here about it,
AND, the LLMD thought it was not lyme, but I persisted because others had this on here, but not as severe.
Also, anything at that time, even now really that stimulates the Immune makes it drier, so I think I am going to get tested for Sjgrodens syndrome to be safe, but I so far have no other autoimmune that is what they say.
I dont think?? it would be Sjgrodens syndrome if it got better on antibiotics.
Has your son tried the Azithro and Flagyl? try it maybe
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
| IP: Logged |
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
We recently had a humidifier attached to our furnance. It has helped alot.
I was having the dry nasal, dry skin and the worst was that I shocked myself constantly throughout the house.
It felt like I was a electric conductor. I would blow out light bulbs, light switches and even the entire circuit thing behind wall.
I tried the cheap way with having pots of water sitting around. It just wasn't enough.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
No you are not the only one. Dry eyes are a problem, too. Keeping a humidifier in your bedroom will help a lot. If you have forced air heating you should put a humidifier on your heating system, as it is the worst kind of heating for sinus and respiratory problems and will dry out your entire body.
Using a neti pot for nasal irrigation is also very helpful.
Rubbing shea butter inside your nose, as needed, helps a lot and I also use a spray called xclear categorized as a soothing & moisturizing nasal wash with Xylitol that works well.
posted
I have tried a lot of things too, with little to no help. The saline spray gives me relief while I am using it, but it doesn't last.
My nose and eyes burn terribly. I went to an ENT and he said the only thing I could do was get a procedure where they heat the inside of my nose with radiofrequency and it kills the tissues so it doesn't become inflamed. Didn't sound fun to me.
I have used the Ayr gel, and I liked it too, I tried to get some this weekend and it was not at my Walmart!! UGH!!
Posts: 893 | From Florida | Registered: Dec 2008
| IP: Logged |
2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Trish,
He's on Zith and Bactrim.
He's only 6 so I don't think he can take Flagyl...I don't know.
Doc J is running the show.
Interestingly though, he is 6 weeks into therapy and for two weeks now he has this lung cough. ..like he did when I think this started presenting itself 1,5 year ago.
He was treated around 2 years old with PCR pos Lyme and Bart, and babs antibody. He had Rif and bactrim...I think...also amox then.
It resurfaced a 1.5 years ago.
I don't know if this cough is a herx or dryness. Usually he gets nose bleed skivies on his pillow and coughs all night when he's dry. This time, no nose bleed and coughs throughout day and when he wakes up. It's a hacky, mucousy cough.
Any thoughts appreciated- Posts: 2214 | From West Chester, PA | Registered: Aug 2003
| IP: Logged |
posted
I get this sometimes when herxing, and always when overdoing activity. For me this can mean walking around the house too much.
Posts: 845 | From Eastern USA | Registered: Jul 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/