posted
Does anyone have any experience with hypothyroid and Lyme. My results just came in and it shows hypothroid-I've had symptoms for so long( cold, tired, hair falling out, anxiety,insomnia,brain freeze or fog). So know my family doc wants me to see endo. I saw one in Dec.-said everything is normal. But the #'s are very differnt now. I have been on Iv rocephin for about 3 weeks- mental process is better but can't make myself do more than go to clinic and get Iv daily. Hypo seems to have a lot of the same symptoms as Lyme. My sister also has graves. Any input is appreciated.
Posts: 30 | From pennsylvania | Registered: Jan 2009
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
From what i've seen on this board, it is common for Lyme to cause problems with the endocrine function. If you are hypothyroid you need to treat for it. It should help you feel much better. It is harder for the body to heal when the thyroid and/or adrenals are out of balance. If I were you, i'd go see the endocrinologist. If you didn't like the one you saw in Dec ask for another referral.
Posts: 5237 | From here | Registered: Nov 2007
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Lyme can upset endocrine function but keep in mind hypothyroidism can mimic lyme all by itself (and can at times be difficult to gauge through routine tests). Using myself as an example, my labs look somewhat OK until you assess the RT3 level and then you notice that there is an unhealthy T3 to RT3 ratio. Maybe Wilson's Syndrome? This it seems is another controversial illness (but T3 only therapy may be curative or of tremendous benefit). It may not be curative for me as I have longstanding Hashi's...but it may help reestablish some kind of equilibrium so that more T3 is doing its job. I have seen people on the board shortchange thyroid issues but they can have a big impact on overall health... Don't discount the possibilities.
posted
I have that problem but my tsh tests were always very normal but I was wearing a winter coat in July and my skin was so sensative that I could only wear a loose long dress cuz pants at my waist felt like sandpaper rubbing my skin.
My body temp was very low and I had the sleeping problem too,
I finally got so lucky cuz I found an endo doc who was willing to look at me the patient instead of just a lab sheet.
The thyroid meds fixed my skin and my body temp is fine except for the winter but Im 100 percent better than I was before the meds.
I still have sleep problems but that from the lyme.
Posts: 55 | From ct | Registered: Sep 2005
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I too am hypothyroid. In the beginning, before I was diagnosed with lyme but trying to find out what was wrong with me, my PCP had said that my thyroid kept jumping around which didn't make any sense to him at all.
But usually I was coming up on the side of hypo. I saw a N.D. since I was desperate and had seen five years of specialists and kept getting tossed in circles and back and forth from dr. to dr.
The N.D. told me that my PCP may think that's a normal range to not treat, but he felt strongly that unless I wanted to FEEL like a tired 80 year old woman, that it was NOT normal.
So he put me on Armour Thyroid. Since then, I have a different PCP that is atleast Lyme tolerant since my other one was not and chose to believe it was still me being "mental" even after I saw an LLMD and had positive blood work.
In any case, my PCP still watches my thyroid and one thing I've noticed in the 2 plus years of treatment is that even while treating lyme, it will continue to bounce around so my dosage for my thyroid has to keep getting changed.
Yes, lyme can definitely cause havoc on all aspects of our endocrine system. I'd definitley have it watched and treated since it can make you feel miserable as well. Good luck.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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