My central nervous system is very sensitive to abx (just about all classes of abx). I want to talk to my LLMD about pulsing because in theory this may make them easier to tolerate. The typical side-effects that I get are severe ear-ringing, insomnia and depending on the abx sometimes anxiety or depression. Does anyone has any experience with pulsing?
Thanks!
Scottie
Posts: 90 | From massachusetts | Registered: Aug 2006
| IP: Logged |
dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
up for answers...I never pulsed so can't help on this topic
Posts: 2675 | From ct, usa | Registered: Jan 2004
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
at the end of my tx years ago i pulsed zith biaxin and amox
i took them fri, sat, sun and not mon-thurs when i was workiing
i think it helped a lot
you can' pulse zith cuz it stays in your system
i pulsed to fool the bugs into coming out ... not cuz i couldn't tolerate the meds
if you are doing what i did i don't think every other day would work-they need more time to come out
but if you can't handle the abx everyday-i guess if that is what your llmd says then do it
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I began pulsing this month, but there are other changes in meds that may be affecting how I feel. The jury is still out on this for me.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
| IP: Logged |
posted
I just started pusling after 5 months. I take high doses of zith, mycobution, and omnicef M, W, F for three weeks. Then the fourth week I am to take Flagyl. That will be next week.
So far this has been really, really tough on me. I think I have been herxing more as result of it.
My doctor did this because he didn't think I was progressing on constant abx. I have no idea if this will work, but he is a well respected LLMD. I have to trust him.
I have talked to two other patients of his who he is having pusling different drugs similarly.
Right now I am getting huge swings in anxiety, depression, and insomnia pusling.
Kathy
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
| IP: Logged |
bettyg
Unregistered
posted
i pulsed for 18 months abx:
3 days on doxy; 2 off; then 3 days on biaxin; 2 off; then doxy again
i had to write this on a special calendar to keep it straight to know which to take, and checked off as it was done daily!
IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic