posted
I am at a point where I am very confused about what my next steps should be. Here is my dilemma (sorry for the spelling):
- I supposedly caught lyme in Oct/ Nov '07 & have been under treatment w/ a doctor since June '08. I had 1 month Biaxin, then 4 months Biaxin & Plaquenal, and now I'm on my 4th month of 100mg Doxy 2x day. (I am much better than I was last summer & fall- but still have daily issues & have days when I get slammed). Through this forum I have learned that this doctor supposedly does not treat lyme aggressively enough. I also believe that I have co-infections and she does not, since the blood test have come back negative............. So I've been considering changing doctors to one that come more recommended base on both of my concerns.
- I've also been seeing a naturopath since September'08 for Rife treatments- which I believe is doing more than the antibx. She says, through an F scan, she reads both forms of lyme, bart, babes & a small amount of erlichea. We have beaten all of these down though the Rife treatments, but she claims that the lyme can hide from the F scan & I may want to consider coming off the antibx in a few months so the lyme will start to come out of hiding & she can hit it with the Rife (she claims that she has successfully done this in the past).
I'm looking for any insight from anyone who can recommend which path to take & why.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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sman,
As many here have trouble reading large blocks of type (it sort of turns into a grey swirl) . . . here's a repost with more white space so that more can read and reply.
=======
ORIGINAL POST:
I am at a point where I am very confused about what my next steps should be. Here is my dilemma (sorry for the spelling):
- I supposedly caught lyme in Oct/ Nov '07 & have been under treatment w/ a doctor since June '08.
I had 1 month Biaxin, then 4 months Biaxin & Plaquenal, and now I'm on my 4th month of 100mg Doxy 2x day.
(I am much better than I was last summer & fall- but still have daily issues & have days when I get slammed).
Through this forum I have learned that this doctor supposedly does not treat lyme aggressively enough. I also believe that I have co-infections and she does not, since the blood test have come back negative......
....... So I've been considering changing doctors to one that come more recommended base on both of my concerns.
- I've also been seeing a naturopath since September'08 for Rife treatments- which I believe is doing more than the antibx. She says, through an F scan, she reads both forms of lyme, bart, babes & a small amount of erlichea.
We have beaten all of these down though the Rife treatments, but she claims that the lyme can hide from the F scan &
I may want to consider coming off the antibx in a few months so the lyme will start to come out of hiding & she can hit it with the Rife (she claims that she has successfully done this in the past).
I'm looking for any insight from anyone who can recommend which path to take & why.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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I'd go for the rife.
But I'd also be sure to include liver protection/support and support for heart and adrenals. Your ND, I assume, has been doing this all along.
You might ask at your local support group (and other groups within a 90-mile radius to her office) if anyone there has gone through treatment with this ND.
Here are some links to other sources of information:
===================
This book, by an ILADS member LLMD, holds great information about pharmaceutical treatments options, as well as specific support measures:
D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
I do not really know how long you can stay on ABX without having problems so that should be part of the equation also.
I generally like to stick with something once started. Otherwise you really never know if it would have worked.
The Lyme will not be any worse for staying on the ABX. It may not be producing much in the way of killing effect but there is no way to know for sure other than staying the course.
I guess if the ABX is is not causing harm or extreme side effects, I would stick with it for the duration, you have nothing to lose.
You can still Rife for co-infections as the ABX should not interfere with these.
You may want to try enhance the effectiveness of the ABX by drinking Green Tea. It is supposed to make antibiotics much more effective. I would also take plenty of Magnesium. It will help the immune system and I suspect it may bring Lyme out of the cyst form.
My wife has been using mostly Rife treatments and she is doing well. It is unlikely you are going to cure it using Rife alone. Many can control it effectively using Rife.
I would not rely solely on the F-Scan reading. This device is not extremely reliable either.
In the end it is your decision. I hope it all works out for you.
D Bergy
Posts: 2924 | From Minnesota | Registered: Aug 2006
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
it took me 2 full yrs on abx then a year of detox to get well enough to work another 10 yrs and get my kids thru college
i don't think you have had as much abx therapy as most llmds would give---there are at least 3 types of protocols and each should be 3-4 months a t minimum. also-you say you are getting better...why stop?
in my experience use abx if you can at first...when it is really knocked down or they aren't working or you can't tolerate them then use herbals and alt stuff
i've seen too many ppl get really sick by not zapping with the big guns first
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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