seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I've had 80-90% of my days with much nausea. I have yet to vomit, but I feel a gagging sensation, especially after eating. I'm getting so frustrated.
I had an ultrasound of my abdomen which was totally normal (no gallstones whatsoever). Last sat, I had a CT-Scan of my abdomen and pelvis w/contrast...again I believe normal. WTH?
Symptoms are exactly the same during these episodes....back pressure in mid-back to upper back between shoulder blades, severe indigestion, stomach bloating, bone pain in left shin, upper left trapezius muscle, and left arm - ALL on left side.
Neck gets extremely tight too and kind of flushed. Lastly, I get pain (not too severe)/pressure in left middle abdomen area. Never on the right side. It seems intestinal in nature.
In Sep-07, I had a HIDA scan in the hospital that showed the gallbladder was functioning at a 9-15% ejection rate. Normal is 35%+. I have a surgeon willing to take it out whenever I ask.
The real issue is will this solve the problem? I've been through so much hell in 2008...three surgeries, endless diagnostic tests requiring sedation, etc. The surgeon can provide no guarantee this will alleviate these issues.
Would you go for it? I can't live like this every day feelng nauseated and gagging. It seems to be getting worse. It lapsed for 4-5 days, but it's back.
Oh BTW of course it's not Lyme - local docs said so. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Nausea (no pain) has been my number one symptom all along...it is AWFUL. I also had a HIDA done which showed I had an ejection fraction of about 12%. I of course was hopeful this was the answer for me. 2 gastro docs told me that if after injecting the CK I experienced increased pain/nausea for an extended period of time (beyond 5 minutes) that would have indicated something was up with my gallbladder.
Not sure whether that help you or not! Any chance you are dealing with a combo of gastroparesis/acid reflux. Maybe it is something to do with you gallbladder....hopefully more will come along with their experiences
Posts: 561 | From mass | Registered: Jul 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I've been off Abx for 10 days or so now. I'm getting severe chills. Wonderful. Just like the ole' days back in Oct-07. My gosh these docs here are out of it. What more do they need.
The ID doc told me 3 months ago I'm healthy enough to give blood. I'm going to call him and ask him if he wants mine for a transfusion. He doesn't 'believe' in Igenix results. Do any of you think he doesn't believe to that extent? lol. Place bets?
I have 10-15 days of Zithromax left. I may take that and move on to my 100 mg of Minocin per day and hope for some improvement. What choice do I really have given the circumstances? I'll toss some TOA Cat's Claw in there too.
Lymetoo, I do not mean right. I mean left. All my issues have been on the left side. It's not severe pain, just constant abdominal discomfort. My stomach won't stop making noises. I never had this until I took Mepron. I wish I never touched that crap.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Hey Seek,
I get the gastro stuff too. I have been to the ER several times in the past for this. Eating should not cause muscle pain or chest pain, eating should be enjoyable!
Anyways, everytime I went to ER they suspected Gallbladder...they did find some "sludge" one time, HIDA scan was said to be normal.
Still, I periodically get the pains with eating, for me, it sometimes feels like a heart attack, heavy chest pressure..I get really loud belches and dry heaves too.
Anyways, my opinion is that it is part of the syndrome. If your sx are caused by your gallbladder, they are not the "common" sx associated with gall bladder disease...though they still could be.
HaHa, I'll give him a pint of mine too, make him feel really good. He did not even aknowledge my IGENEX WB (9) positive bands in his diagnosis of Lyme.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
Babesia affects the spleen .. on the LEFT side. Maybe you're barking up the wrong tree. Mepron herx .. that lasted too long?
Stirred up the babesia, but didn't kill it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Isn't spleen pain more severe? Nothing is showing on the U/S or CT scan. How could it be a speen issue? I didn't think a spleen would cause nausea or pressure between shoulder blades either, right? Maybe I'm totally wrong though.
Feelfit, sorry to hear you have the same issues. This Lyme stuff sucks! You know that. Most people have a surgery done (gallbladder removal) with some assurance it will alleviate issues. With Lyme, we never get any guarantees. Crap way to deal with all this.
Since I did not have these issues while on Abx, it's real deceiving. The Mepron could've stirred something up. Nice of my LLMD to put me on it and then tell me get off and then tell me he's done treating. Great. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i didn't read all posts-my gall bladder symptom was nausea-thats it
my xray or scan or whatever they did was positive...they forgot to call and tell me to schedule surggery
i called back after 2 months-still wicked nausea-couldn't take my lyme herbs and teas
they said-oh! it was poitive. you need surgery...grrrrr!
anyway-it was the easiest surgery i had - and nausea was gone. i haven't really changed my diet much-but it was an easy fix for me.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
This thread is very timely for me as I was at my PCP's office today due to constant nausea. After trying several things myself (elimination diets, etc) I decided it was time to get to the bottom of the issue.
I am going in for an ultrasound for two days and he suspects it is my gallbladder. I didn't realize that so many Lymies have had theirs removed until I read this thread.
Thanks for all of the information. It certainly is a frustrating symptom to deal with.
-------------------- Lisa D Posts: 103 | From MA | Registered: Jan 2009
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posted
If your pain and nausea are worse after eating high fat meals...it is definitely gallbladder. I had mine out when I was 25. I had no stones, but the HIDA showed 7%. They took it out and I was better for many years. I had residual sludge and occasional stones (during each pregnancy) in my bile ducts. I had them cleaned and stinted in June and also had a sphincterotomy. Very rare to have trouble with the sphincter of oddi. Removal should be a relief.
Pain between shoulder blades, sounds more like pancreas. Do you have constant nausea? Nausea without eating or when eating low fat meals? our pancreas can be spasming which causes pain. After you eat fat...your gallbladder releases bile to aid digestion. After you eat anything, your pancreas releases enzymes to aid digestion. If it happens after eating anything, could be pancreatitis. If it is constant, can be your pancreas "sweating" out the enzymes which basically digest your insides. It is extremely painful...I had it last June after my last MRCP and sphincterotomy. All my tests were normal, but I finally found a good dr who diagnosed and treated it right away. Symax duotabs will give relief quickly if it is that.
Good luck!
-------------------- Michele:) Posts: 30 | From York, PA | Registered: Jan 2009
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posted
If a gallbladder can cause pain up under the shoulder blades, I don't see why a spleen couldn't do the same.
Has a dr palpated the spleen upon exam?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
No, my LLMD felt my stomach at times, but I have no idea what he was doing. When it comes to organ issues, I didn't have faith in my LLMD's diagnostic abilities. Other docs were the ones who ran the U/S, CT-Scans, etc. My LLMD just did a manual feel of the organs.
The reason I mention the shoulder blades is because it's a common gallbladder symptom.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
I actually had my gall bladder out before I started having any kind of symptoms.
And I never had the classic gall bladder attacks, with the pain up into the shoulder, etc.
I just had a stint of nausea that would not go away. I went to the doctor, who referred me to a gastro and to have an u/s done of my gall bladder.
They found a number of stones, so they set up surgery right away. Not an easy recovery for me, since I had a 7 month old and a 3 year old at the time.
But since the surgery, and definitely siince starting these symptoms, I have had what feels like classic gall bladder attacks. i get pain in the right upper abdomen that shoots up into the shoulder area.
I called the surgeon, who didn't think it was related to the surgery, then I went back to the gastro. He had done the endoscopy, upper GI and colonoscopy, so he didn't know what to think.
He diagnosed reflux and put me on Prilosec, which really does nothing.
So the bottom line for me is, I don't know what to think about gall bladder/Lyme issues. For me the surgery didn't seem to help anything, and my issues began after the surgery.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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posted
I've had good luck with the (simple) Hulda Clark gall bladder cleanses. It requires epsom salt, grapefruit juice and olive oil. I've done it three times with good "output" every time. It could save your gall bladder.
The first time I did it last year, it took me 2 days to recover. The second time, 1/2 day. The third time, a little less. Each time I did it, I had fewer stones. They were REAL -- and stuck in my organs.
500,000 people donate their precious gall bladders each year without knowing about these simple remedies. Please spread the world that this can help some people.
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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